The parents of a total of 4.9 percent of CSHCN reported needing but not receiving family support services. The most common of these is family counseling, needed but not received by the families of 2.4 percent of CSHCN, closely followed by respite care, needed but not received by the families of 2.2 percent. The families of 1.3 percent of CSHCN reported needing but not receiving genetic counseling services.
While these overall proportions are small, families of low-income and uninsured children were most likely to report needing but not receiving family support services. Of CSHCN living in poverty, 7.4 percent reported needing but not receiving at least one family support service, compared to 2.6 percent of children with family incomes of 400 percent of poverty or more.
Similarly, families of uninsured children are more likely to report that they needed but did not receive family support services. The families of 11 percent of uninsured children did not receive needed family support services, compared to 7.7 percent of children with public insurance and 2.7 percent of privately-insured children.