State Data


Estimated number of CSHCN in Montana: 27,853

All statistics are based on parental reports

Prevalence of CSHCN State % National %
Percent of children who have special health care needs 13.6 13.9
0-5 Years 7.9 8.8
6-11 Years 13.9 16.0
12-17 Years 18.1 16.8
Male 15.9 16.1
Female 11.3 11.6
Poverty Level
0-99% FPL 18.0 13.9
100-199% FPL 12.8 14.0
200-399% FPL 12.5 13.6
400% FPL or More 12.2 14.0
Hispanic Origin and Race
Non-Hispanic 13.4 15.0
White 13.4 15.5
Black 20.4 15.0
Asian * 6.3
American Indian/Alaska Native 11.2 14.5
Native Hawaiian/Pacific Islander * 11.5
Multiple Races 15.2 17.9
Hispanic 14.0 8.3
Hispanic, Spanish language household *** 4.6
Hispanic, English language household 14.4 13.1
*Due to the small size of this group in the State population, data have been suppressed to protect respondents' confidentiality.
**Estimate suppressed as it does not meet the standard for reliability or precision.
***No CSHCN were identified among predominately Spanish-speaking Hispanics in the survey sample.
Indicator State % National %
Child Health
CSHCN whose conditions affect their activities usually, always, or a great deal 28.7 24.0
CSHCN with 11 or more days of school absences due to illness 18.7 14.3
Health Insurance Coverage
CSHCN without insurance at some point in the past year 17.4 8.8
CSHCN without insurance at time of survey 10.3 3.5
Currently insured CSHCN whose insurance is inadequate 33.5 33.1
Access to Care
CSHCN with any unmet need for specific health care services 21.8 16.1
CSHCN with any unmet need for family support services 7.6 4.9
CSHCN needing a referral who have difficulty getting it 23.4 21.1
CSHCN without a usual source of care when sick (or who rely on the emergency room) 7.4 5.7
CSHCN without any personal doctor or nurse 9.5 6.5
Family-Centered Care
CSHCN without family-centered care 37.7 34.5
Impact on Family
CSHCN whose families pay $1,000 or more out of pocket in medical expenses per year for the child 26.2 20.0
CSHCN whose conditions cause financial problems for the family 25.3 18.1
CSHCN whose families spend 11 or more hours per week providing or coordinating the child’s health care 12.3 9.7
CSHCN whose conditions cause family members to cut back or stop working 22.0 23.8
Core Outcomes % of CSHCN Achieving Outcome in the State % of CSHCN Achieving Outcome in the Nation
Families of children and youth with special health care needs partner in decision making at all levels and are satisfied with the services they receive 56.5 57.4
Children and youth with special health care needs receive coordinated ongoing comprehensive care within a medical home 45.9 47.1
Families of CSHCN have adequate private and/or public insurance to pay for the services they need 55.2 62.0
Children are screened early and continuously for special health care needs 55.7 63.8
Community-based services for children and youth with special health care needs are organized so families can use them easily 88.6 89.1
Youth with special health care needs receive the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence 46.2 41.2

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