The parents of 7.2 percent of all CSHCN report that they did not receive at least one family support service that they needed. The service most commonly needed but not received was family counseling services, which was needed but not received by the families of 3.7 percent of CSHCN, followed by respite care (3.3 percent) and genetic counseling (1.9 percent). Thus, half of children whose families reported a need for respite care did not receive it.

While these overall proportions are small, families of low-income and uninsured CSHCN were most likely to report unmet need for family support services. Of uninsured children, the families of 18.1 percent did not receive at least one support service that they needed, as did the families of 8.9 percent of children in poverty. In addition, the families of children whose conditions have a greater impact on their daily lives are more likely to report unmet need for family support services. Of children whose daily activities are consistently affected, the families of 18.1 percent did not receive all of the family support services they needed.

Back to top