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H H S Department of Health and Human Services
Health Resources and Services Administration
Maternal and Child Health

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Combating Autism: Grant Programs

Hawaii Pediatric Association Research and Education Foundation

1319 Punahou Street, Room 742
Honolulu, Hawai'i 96826
Phone: (808) 282-6348
Fax: (808) 531-3595
leolinda@resqconsultants.com


Problem: The need in Hawai'i is to fortify (Ho'opa'a) the system of care for children/youth with Autism Spectrum Disorder (ASD) and other developmental disabilities (DD). Needs assessment by ASD Benefits and Coverage Task Force and other Hawai'i data showed needs in areas of family support, medical home, autism screening, insurance coverage, and information and training on evidence-based practices, community resources, and transition.

Goals and Objectives:
Goal 1: Strengthen Medical Home (MH) role in identifying/coordinating services for children/youth with ASD. Obj-1: Train 90 MH providers on use of M-CHAT, other screening tools, ASD referral algorithm. Obj-2: Support Hawai'i team in national and local ASD collaboratives. Obj-3: Convene Pediatric Council to address insurance coverage for ASD services. Goal 2: Develop framework for integrated service planning and quality monitoring for Medicaid funded program services. Obj-1: Develop training curriculum/materials for Medicaid coordinators. Obj-2: Develop ASD guide on transition to adult life to supplement DD/MR service planning. Obj-3: Develop quality monitoring tools for Early Intervention (EI) Intensive Behavioral Support services. Goal 3: Expand Family to Family Health Information Center (F2FHIC) to include specialized parent support, with culturally/linguistically appropriate materials. Obj-1: Staff F2FHIC with parents of children with ASD, with statewide access. Obj-2: Develop ASD materials in 9 languages. Goal 4: Provide families/professionals access to information on evidence-based best practices for ASD. Obj-1: Annual ASD conference; Autism Awareness Month activities. Obj-2: ASD resource directory; train 450 families/professionals.

Methodology:
Activities–MH training on ASD screening and referral; participation in national and local ASD collaborative; addressing insurance issues; training for Medicaid service/care coordinators; ASD transition guide; EI quality monitoring tools for ASD services; expanded parent support and materials; ASD conferences; public awareness; ASD resource directory and training. Activities are designed to be integrated into the larger system of care, and focus on technical assistance, capacity building, and infrastructure-building through policy and guidelines.

Coordination: Project planning team–Family Voices, F2FHIC, Dept. Health (Title V/CSHCN), AAP-Hawaii Chapter, MCH LEND. Partners include Departments of Health, Education, Human Services; primary/specialty care providers; parent, consumer, community organizations; health plans; advocates. Various partners will be involved for the different goals/activities, depending on specific skills, resources, and phase of planning, evaluation, and implementation.

Evaluation: Methods - quantitative and qualitative measurement indicators of effectiveness, outcomes, impact; measurement of deliverables and milestones against the workplan; pre- and post-training assessments; and F2FHIC indicators.

KEY WORDS: autism spectrum disorders, developmental disabilities, family professional collaboration, family support, medical home, screening, service coordination.

ANNOTATION: The need in Hawai'i is to strengthen the system of care for children/youth with ASD/DD and address needs identified by ASD Benefits and Coverage Task Force. Project goals focus on medical home, integrated service planning, family support, and community-based training. Activities include MH training on ASD screening/referral; participation in ASD collaboratives; addressing insurance issues; ASD transition guide; expanded F2FHIC with specialized ASD support; ASD conferences, public awareness, and resource directory/training.