Abstract FY 2009
Project Title: Utah ASD Systems Development Type of Service: Infrastructure Building
Applicant: Utah Dept. of Health, Bureau of CSHCN Contact/Email
1. Problem & Need: Outcomes for Utah children with ASD/DD require an improved system of
services. Data indicate the need to: 1) increase the number of trained primary & subspecialty
providers; 2) improve the early & appropriate diagnosis by medical & dental providers; and 3)
improve family & provider access to information about diagnosis, treatment & resources.
Goal 1 Yr 1: Improve identification and health care of children with ASD/DD by training family/pediatric Medical Homes, dentists, & other providers on screening, intervention and community resources. 1.1 Yr 2: Provide Learning Collaborative for 12 family/pediatric practices on Medical Home improvement model for ASD/DD screening, referral, and care. 1.2 Yr 2: Provide in-office/peer mentored Learning Collaborative model for 8 family/pediatric practices on Medical Home improvement model for ASD/DD
screening, referral, and care. 1.3 Yr 2: Offer Learning Collaborative for 6 dental practices in the concept of Medical Home (adapted as Dental Home), recognition of the special needs of children with ASD/DD, adapting office procedures to accommodate the special needs. 1.4 Yr 3: Use distancelearning to offer a "Learning Collaborative" on Medical Home improvement model for ASD/DD screening, referral, and care for up to 12 family/pediatric practices.
Goal 2: Use Utah's MedHome Portal to expand ASD/DD evidence-based information available to families and providers. 2.1 Expand MedHome Portal's ASD/DD-related content and resource information. 2.2 Expand the use of the ASD/DD-related components of MedHome Portal.
Goal 3: Improve community providers' capacity for early recognition of signs of ASD to improve referral, diagnosis, treatment. 3.1 Pilot an Early Intervention Child Find model using CDC's Act Early / Know the Signs to increase early screening and diagnosis. 3.2 With the State Office of Education, provide Act Early / Know the Signs training to preschool special educators.
Goal 4: Expand Utah Family Voices' capacity to provide families with support coordination. 4.1 Conduct ABC (ASD) New Family Training to 200 new families. 4.2 Train 5 Family Navigators through UFV to assist 75 families. 4.3 Conduct an annual ASD parent leadership & transition training conference for families, in years 1 & 2.
Primary Healthy People 2010 objectives:
16-22: Access to a culturally competent family-centered medical home which coordinates care
with pediatric subspecialties and community-based services; 16-23: Community services
organized for easy use by families.
5. Coordination: Utah Bureau of CSHCN, Utah State University Center for Excellence in
Developmental Disabilities, and Utah Pediatric Partnership to Improve Healthcare Quality will
coordinate with key community advocates, parents and providers for individuals with ASD.
6. Evaluation: A key constituent advisory board will guide a participatory action research
process. Continuous data collection/evaluation will be used to refine and improve the project.
Surveys and focus groups will assess provider, family, and educator satisfaction.
KEY WORDS: Autism Spectrum Disorder; Children with Special Health Care Needs;
Developmental Disabilities; Early and Continuous Screening; Medical Home; Families.
ANNOTATION: Improve early identification/diagnosis of Utah children with ASD by Medical
Homes, Family Partners, Early Intervention & preschool special educators with training & access
to appropriate screening, diagnosis and treatment information. Utah's MedHome Portal , Learning Collaboratives and Learn the Signs/Act Early will be used.