The National Center for Family Professional Partnerships is a cooperative agreement funded as part of the Family-Professional Partnerships Program administered by the Integrated Services Branch, Division of Services for Children with Special Health Needs, which is part of the Maternal and Child Health Bureau. For more information, call (301) 443-2170.
The National Center for Family Professional Partnerships (NCFPP) provides leadership on implementing the core component of a system of care for Children and Youth with Special Health Care Needs (CYSHCN), that: Families will partner in decision-making at all levels and will be satisfied with the services they receive. The goals of this center focus on:
This center provides a mechanism to link families of children with special health care needs to a broad national network of State Title V, Medicaid and Education programs, family and professional organizations, Family Voices State Affiliate Organizations and ACA funded Family to Family Health Information and Education Centers (F2F HICs). These programs receive technical assistance, information and tools on family decision making, including direct health care and health care policies. Collaboration has involved quality measurement activities with AHRQ on quality indicators on family/patient centered care, the Data Resource Center (National Survey for CSHCN), and the BPHC’s Office of Quality and Data on better integrating/documenting CSHCN and their families in FQHCs.
Family Voices Tools and Reports
The Family-Centered Care Self-Assessment Tools are designed as an opportunity for health care practices and families to assess current areas of strength and identify areas for growth, plan future efforts, and track progress toward family-centered care. This packet includes a Family Tool, a Provider Tool, and a Users Guide.
Growing Your Capacity to Engage Diverse Communities is a booklet about building relationships with community liaisons and cultural brokers to reach families of CYSHCN, particularly members of underserved groups.
Promoting Health and Wellness for Children with Special Health Care Needs is a booklet for families on guidelines, tips and resources on healthy eating, physical activity, and screen time.
An F2F HIC annual conference produced the notebook, Family-to-Family Health Information Centers Grantees Meeting: Sharing Activities, Ideas and Resources was created, with information solicited from each F2F about an important activity in their state, charts depicting information on initiatives, methods, partnerships, and funding of
F2F HICs and links to other national centers and other resources: