The goal of the Family-to-Family Health Information Center (F2F HIC) Program is to promote optimal health for children (and youth) with special health care needs (CSHCN) and facilitate their access to an effective health delivery system by meeting the health information and support needs of families and the professionals who serve them. The F2F HIC Program also assists in assuring that families of CSHCN will partner in decision making at all levels (i.e. individual, peer, community, or systems).
These statewide, family-staffed centers
F2F HICs are uniquely able to help families with CSHCN because they are staffed by family members who have firsthand experience navigating the maze of health care services and programs for CSHCN.
F2F HIC staff understand the issues families face and help families make informed decisions. Each F2F HIC is unique, reflecting the needs and character of the community and State that it serves. Some F2F HICs are independent nonprofits; others are part of collaborative nonprofit organizations or agencies. All F2F HICs have a strong commitment to and expertise about CSHCN.
All F2F HICs provide:
National Center for Family/Professional Partnerships provides technical assistance to community leaders, partners with key stakeholders and documents the support that Family-to-Family Health Information Centers provide to families and professionals in every State.
Learn more about this National Center here.
"You have given me hope and I feel like I can deal with this now, one day at a time. You have helped me so much. I can’t describe what a difference you have made for both me and my mother.
We have now talked about my child’s disability and have accepted that my daughter does have special needs. We didn’t talk about it before. Thank you for talking with my mother and talking to me.
We are ready now to start learning more about what we can do to help my daughter. I felt so isolated until I talked to you. Thank you. Thank you. Thank you."
"A family contacted us who had two children with severe disabilities covered by private health insurance and Medicaid.
The private health insurance company began requiring their enrollees to use an out-of-state mail order pharmacy.
Because the out-of-state pharmacy was not a Louisiana Medicaid provider, the family was cut off of using their Louisiana Medicaid as a secondary insurer, resulting in $500 per month in additional costs.
We worked with the Louisiana Medicaid Director so that this family could submit the balance of the costs and receive their benefits."