Hawaii Discretionary Awards

Project Title: Family Professional Partnership/CSHCN

Grant Number: H84MC32515
Project Start Date: June 01, 2007
Project End Date: May 31, 2022
Organization: HILOPA'A FAMILY TO FAMILY, INC.
Address: PAUOA ROAD HONOLULU HI 96813
Project Director: Leolinda L Parlin
Phone Number: (808) 282-6348
Email: leo@hilopaa.org

Project Description

Families and their professional partners enter and exist in the world of special health care needs in varies states and stages which runs the gamut from just being able to understand their child’s diagnosis to wanting to take a leadership role in enhancing the system of care for all. There is not a established pathway or an assessment process to guide families in their leadership development.

Project Title: MCHB State Systems Development Initiative

Grant Number: H18MC00012
Project Start Date: October 01, 1993
Project End Date: November 30, 2022
Organization: STATE OF HAWAII DEPARTMENT OF HEALTH
Address: Honolulu HI 96801
Project Director: Matthew J Shim
Phone Number: (808) 586-4122
Email: matthew.shim@doh.hawaii.gov

Project Description

To build and expand State MCH data capacity to assure sufficient data to inform policy and program planning decision making in MCH programs.

Project Title: Maternal, Infant and Early Childhood Home Visiting Grant Program

Grant Number: X10MC33576
Project Start Date: September 30, 2019
Project End Date: September 29, 2021
Organization: Health, State Hawaii Department Of
Address: 741 Sunset Ave Ste A Honolulu HI 96816
Project Director: Matthew Shim
Phone Number: (808) 586-4122
Email: matthew.shim@doh.hawaii.gov

Project Description

The Maternal, Infant, and Early Childhood Home Visiting (MIECHV) Program supports the delivery of coordinated and comprehensive high-quality and voluntary early childhood home visiting services to eligible families living in at-risk communities. The Health Resources and Services Administration (HRSA), which administers this program in partnership with the Administration for Children and Families, funds states, territories, and tribal entities to develop and implement evidence-based programs that best meet the needs of their communities.

Project Title: Universal Newborn Hearing and Screening

Grant Number: H61MC00038
Project Start Date: April 01, 2000
Project End Date: March 31, 2020
Organization: STATE OF HAWAII DEPARTMENT OF HEALTH
Address: Punchbowl St Honolulu HI 96813
Project Director: Sylvia Mann
Phone Number: (808) 733-9063
Email: sylvia@hawaiigenetics.org

Project Description

The purpose of the Hawaii Baby Hearing Evaluation and Access to Resources and Services (HEARS) Project is to develop statewide systems of care that ensure deaf and hard of hearing (D/HH) children are identified through newborn hearing screening and receive timely evaluation, diagnosis and appropriate intervention that optimize their language, literacy and social-emotional development.

Project Title: Newborn Screening State Evaluation Program

Grant Number: E16MC33249
Project Start Date: September 01, 2019
Project End Date: August 31, 2021
Organization: HEALTH, HAWAII DEPARTMENT OF
Address: 1250 Punchbowl St Honolulu HI 96813
Project Director: Sylvia Mann
Phone Number: (808) 733-9063
Email: sylvia@hawaiigenetics.org

Project Description

The purpose of this program is to evaluate the effectiveness of newborn screening programs in reducing the morbidity and mortality caused by heritable disorders in newborns and children by assessing the timeliness of screening, follow up, and referral to counseling or health care services. The program will support state newborn screening programs in the implementation of a demonstration program to use newborn screening quality indicator information to evaluate the effectiveness of their state newborn screening system.

Project Title: Regional Genetics Networks

Grant Number: UH7MC30774
Project Start Date: June 01, 2017
Project End Date: May 31, 2020
Organization: HEALTH, HAWAII DEPARTMENT OF
Address: Sunset Ave Honolulu HI 96816
Project Director: Sylvia Mann
Phone Number: (808) 733-9063
Email: sylvia@hawaiigenetics.org

Project Description

There is a shortage of genetics providers and most genetic providers work in urban centers. Medically underserved (living rural areas, low socioeconomic status, ethnic minorities) families have difficulty accessing primary care services so accessing genetic services is even more difficult.

Project Title: Leadership Education in Neurodevelopmental and Related Disorders Training Program

Grant Number: T73MC00014
Project Start Date: July 01, 1994
Project End Date: June 30, 2021
Organization: UNIVERSITY OF HAWAII AT MANOA
Address: Dole St Honolulu HI 96822
Project Director: Louise K Iwaishi
Phone Number: (808) 369-1217
Email: louisei@kapiolani.org

Project Description

The HI MCH LEND Program will address under-utilization/identification of screening of CYSHCN, inadequate preparation for transition, diminished access to neighbor island care workforce development through training, continuing education, technical assistance, and facilitation for systems change.

Project Title: Universal Newborn Hearing and Screening

Grant Number: H61MC22748
Project Start Date: September 01, 2011
Project End Date: March 31, 2020
Organization: UNIVERSITY OF HAWAII
Address: Dole St Honolulu HI 96822
Project Director: Jean Anderson
Phone Number: (684) 252-7455
Email: jeanaa@hawaii.edu

Project Description

CDS-UH will manage the newborn hearing screening program at the request of the AS Department of Health to continually improve the quality to better meet the 1-3-6 objectives, expand learning communities and create family-to-family support services.

Project Title: Universal Newborn Hearing and Screening

Grant Number: H61MC24884
Project Start Date: September 01, 2012
Project End Date: March 31, 2020
Organization: UNIVERSITY OF HAWAII SYSTEMS
Address: Office Of Research Services 2530 Dole Street Sakamaki Honolulu HI 96822
Project Director: Raymond M Miner
Phone Number: (703) 203-5343
Email: rmminer@hawaii.edu

Project Description

HRSA’s contributions have been enormous in changing the landscape of opportunities and re-sources, not only for deaf infants, but for older children and adults with hearing loss and for children born with other special needs. The purpose of the project remains: to create a universal newborn hearing screening and intervention program that as successfully as possible within the challenges and constraints of the RMI, achieves the national goals of screening within one month, diagnosis within three months, and early intervention services by six months of age.

Project Title: EMSC Partnership Grants

Grant Number: H33MC31620
Project Start Date: April 01, 2018
Project End Date: March 31, 2022
Organization: HEALTH, HAWAII DEPARTMENT OF
Address: 1250 Punchbowl Street, Honolulu HI 96813
Project Director: Sarah Y Park
Phone Number: (808) 587-6845
Email: sarah.park@doh.hawaii.gov

Project Description

Hawaii is an isolated archipelago in the middle of the Pacific Ocean. With ocean separating each of our counties and the islands comprising them, we rely heavily on air medical transportation. Additionally, subspecialty care is centralized on the island of Oahu, including pediatric care. Therefore, air medical interfacility transfers for neighbor island patients, especially pediatric patients, are the norm and contribute to considerable distances and cost for families and health payers. Our geographical challenges and small population contribute to limitations in general healthcare access, resource, and numbers of providers.

Project Title: CISS -Local/State

Grant Number: H25MC26229
Project Start Date: August 01, 2013
Project End Date: July 31, 2021
Organization: HEALTH, HAWAII DEPARTMENT OF
Address: PO Box 3378 Honolulu HI 96801
Project Director: Matthew Shim
Phone Number: (808) 586-4122
Email: matthew.shim@doh.hawaii.gov

Project Description

Ensure children's developmental health is increased by 25% and show an increase in family well-being.

Date Last Reviewed:  November 2020