Massachusetts Discretionary Awards

Project Title: Maternal and Child Health Public Health Training Program

Grant Number: T76MC00017
Project Start Date: July 01, 1998
Project End Date: May 31, 2020
Organization: TRUSTEES OF BOSTON UNIVERSITY
Address: Albany St Boston MA 02118
Project Director: Lois McCloskey DrPH
Phone Number: (617) 638-5882
Email: loism@bu.edu

Project Description

The BU Center of Excellence in MCH seeks to ensure the health of women, children, and families through leadership training, research dissemination, and CE/TA with our practice partners. We emphasize systems thinking, increasing diversity in MCH workforce, and interprofessional education.

Project Title: MCHB State Systems Development Initiative

Grant Number: H18MC00024
Project Start Date: October 01, 1993
Project End Date: November 30, 2022
Organization: MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH
Address: Washington St Boston MA 02108
Project Director: Hafsatou Diop
Phone Number: (617) 624-5764
Email: hafsatou.diop@state.ma.us

Project Description

The goals of the Massachusetts (MA) SSDI program are to (1) Build and expand MA MCH data capacity to support the Title V MCH Block Grant Program activities by contributing data to support decision making in MCH programs; (2) Advance the development and utilization of linked datasets; and (3) Develop surveillance systems to address neonatal abstinence syndrome (NAS). Like the rest of the country, MA has been affected by the opioid epidemic with substantial overdose death in the state. MA experienced a 475% increase in opioid-related deaths between 2000 (6/100,000) and 2018 (28.5%/100,000). Between 2012 and 2016, the opioid death rate tripled from 11.1 per 100,000 to 30.5 per 100,000. Data from 2018 indicate that approximately 15% of all women died of an opioid overdose. The incidence of NAS in MA is estimated to be up to 5 times higher than the national average; NAS incidence was 20 times higher than the national average in some MA hospitals.

Project Title: Awareness and Access to Care for Children and Youth with Epilepsy

Grant Number: H98MC30371
Project Start Date: September 01, 2016
Project End Date: August 31, 2023
Organization: BOSTON MEDICAL CENTER CORPORATION
Address: Boston Medical Ctr Pl Boston MA 02118
Project Director: Laurie M Douglass
Phone Number: (617) 414-4501
Email: laurie.douglass@bmc.org

Project Description

Children and youth with epilepsy (CYE) who face barriers to specialty care have both a higher burden of intractable seizures and a higher risk of not being diagnosed. Geography, high costs, health information silos and limited support structures for transitioning youth can exacerbate the negative effects of disparities.

Project Title: Healthy Start Initiative-Eliminating Racial/Ethnic Disparities

Grant Number: H49MC00128
Project Start Date: July 01, 2001
Project End Date: March 31, 2024
Organization: BOSTON PUBLIC HEALTH COMMISSION
Address: Massachusetts Ave Boston MA 02118
Project Director: Heavenly Mitchell
Phone Number: (617) 534-4668
Email: hmitchell@bphc.org

Project Description

The Black infant mortality rate in Boston MA is 8.2/1,000 and rises to 10.3/1,000 in the 4 contiguous neighborhoods where the majority of Black residents live. This is more than 4 times the citywide White infant mortality rate of 1.9/1,000.

Project Title: Developmental-Behavioral Pediatrics Training Program

Grant Number: T77MC00011
Project Start Date: July 01, 1991
Project End Date: June 30, 2023
Organization: CHILDREN'S HOSPITAL
Address: LONGWOOD AVENUE BOSTON MA 02115
Project Director: Leonard A Rappaport
Phone Number: (617) 355-7030
Email: Leonard.Rappaport@childrens.harvard.edu

Project Description

The goal of this project is the training of pediatric fellows, staff and community pediatricians in Behavioral Pediatrics.

Project Title: Providing Support for the Collabortive Improvement and Innovation Network (CoIIN) to Reduce Infant Mortality

Grant Number: UF3MC26524
Project Start Date: September 30, 2013
Project End Date: September 29, 2020
Organization: NATIONAL INSTITUTE FOR CHILDREN'S HEALTH QUALITY, INC.
Address: Winter St Boston MA 02108
Project Director: Emma Smizik
Phone Number: (916) 692-8653
Email: esmizik@nichq.org

Project Description

To address this significant public health and equity issue, the National Institute for Children’s Health Quality (NICHQ) proposes to serve as the backbone organization for an Infant Mortality Collaborative Improvement and Innovation Network (IM CoIIN) Team comprised of four states — Arkansas (AR), Mississippi (MS), New York (NY) and Tennessee (TN) — that will work together to decrease SUID rates and decrease racial disparities in sleep-related deaths in these states.

Project Title: Maternal and Child Health Public Health Training Program

Grant Number: T76MC00001
Project Start Date: June 01, 2013
Project End Date: May 31, 2020
Organization: HARVARD UNIVERSITY, SCHOOL OF PUBLIC HEALTH
Address: Huntington Ave Boston MA 02115
Project Director: Henning Tiemeier
Phone Number: (617) 432-1081
Email: tiemeier@hsph.harvard.edu

Project Description

The poor performance of the US in international rankings of MCH argues for expanding the MCH workforce.The purpose of this project is to educate graduate students, provide technical assistance and continuing education for existing MCH professionals and develop the knowledge base of MCH.

Project Title: Autism Intervention Research Networks

Grant Number: UA3MC25735
Project Start Date: July 01, 2013
Project End Date: June 30, 2021
Organization: UNIVERSITY OF MASSACHUSETTS
Address: Lake Ave N Worcester MA 01655
Project Director: Linda G Bandini
Phone Number: (774) 455-6520
Email: Linda.Bandini@umassmed.edu

Project Description

Obesity and its strong association with chronic disease may limit life expectancy in the US. If the current obesity epidemic does not abate, children today face a shorter life span than their parents' generation. Concomitantly, the prevalence of ASD is rising and is at the forefront of developmental conditions that demand research attention. The health disparities experienced by people with disabilities are well documented and are highlighted in Healthy People 2020 guidelines. A growing body of research is documenting that children and adults with ASD/DD are at increased risk of obesity. Although considerable research exists on obesity in children generally research is limited children with ASD/DD. Furthermore, for children with ASD/DD who are also disadvantaged by poverty, immigrant status, or are from racial/ethnic minorities, the risk of obesity is likely greater.

Project Title: Maternal and Child Health Field-Initiated Research Program

Grant Number: R40MC32753
Project Start Date: July 01, 2019
Project End Date: June 30, 2022
Organization: Massachusetts General Hospital, The
Address: 55 Fruit St Boston MA 02114
Project Director: Elsie M Taveras
Phone Number: (617) 726-8555
Email: etaveras@partners.org

Project Description

Obesity represents a major threat to public health and places a significant burden on morbidity, quality of life, and health care costs. Despite evidence of recent progress, overall rates of obesity remain at historically high levels and racial/ethnic and socioeconomic disparities appear to be increasing. In the US, non-Hispanic black and Hispanic men and women of typical child-bearing age (20-39 years) and their children have higher obesity rates than non- Hispanic whites. Evidence suggests that these disparities in obesity prevalence emerge in early life and are determined by factors operating in pregnancy, infancy, and early childhood, e.g. the “first 1000 days” – conception though 24 months of age. Substantial evidence also suggests that obesity interventions may produce the largest magnitude of effect if they support changes at the individual, family, and systems-level and are begun in the earliest stages of life.

Project Title: Maternal and Child Health Field-Initiated Research Program

Grant Number: R40MC31763
Project Start Date: July 01, 2018
Project End Date: June 30, 2021
Organization: BRIGHAM AND WOMEN'S HOSPITAL, INC., THE
Address: 75 Francis St., Boston MA 02115
Project Director: Lise C Johnson
Phone Number: (617) 732-5952
Email: ljohnson11@partners.org

Project Description

No problems to report. As previously noted, with the recently revised NOA lifting the restrictions on the study, we will begin charging effort and expenses accordingly, including retroactively where appropriate, all of which will be reflected in the next progress report. The total estimated costs to date are approximately $10,000.

Project Title: Children's Safety Network

Grant Number: U49MC28422
Project Start Date: June 01, 2015
Project End Date: May 31, 2023
Organization: EDUCATION DEVELOPMENT CENTER, INC.
Address: Foundry Ave Waltham MA 02453
Project Director: Jennifer Leonardo
Phone Number: (617) 969-7100 Extn-7100
Email: jleonardo@edc.org

Project Description

Despite significant progress in reducing injury mortality and morbidity, more children and adolescents ages 0-19 die from injuries and violence than from all diseases combined. In 2016, 14,000 children and adolescents ages 0-19 died of an injury. Another 227,000 were hospitalized and 8.7 million visited the emergency department for treatment of a non-fatal injury. CSN provides training and technical assistance to state and jurisdiction health departments through a Child Safety Learning Collaborative and state technical assistance webinars. CSN also coordinates the Children's Safety Now Alliance, a national alliance of child safety experts committed to raising public awareness of child safety issues and providing state of the art resources and technical assistance to state and jurisdiction health departments. Further, CSN holds webinars and produces and disseminates a variety of resources on priority child safety issues. Resources can be accessed at www.ChildrensSafetyNetwork.org.

Project Title: Supporting Healthy Start Performance Project

Grant Number: UF5MC32750
Project Start Date: June 01, 2019
Project End Date: May 31, 2024
Organization: National Institute For Children's Health Quality, Inc.
Address: 30 Winter St Fl 6 Boston MA 02108
Project Director: Kenn Harris
Phone Number: (617) 391-2700
Email: kharris@nichq.org

Project Description

Healthy Start grantees represent 101 distinct communities exhibiting higher than average infant mortality rates. They deliver a core set of evidence-based services from pregnancy through the first 18 months of a child's life that are proven to improve infant and perinatal outcomes and reduce disparities and tailored to their communities. It is vital that these programs have access to information, resources, training, and support to maintain high quality performance. NICHQ, NHSA, and a cadre of expert faculty will collaborate with HRSA MCHB and the Division of Healthy Start to ensure that each HS grantee receives the support necessary to deliver high quality services, achieve systems change, and improve birth outcomes in communities across the country.

Project Title: CISS -Local/State

Grant Number: H25MC00262
Project Start Date: July 01, 2003
Project End Date: July 31, 2021
Organization: MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH
Address: Washington Street Boston MA 02108
Project Director: Kate Roper
Phone Number: (617) 624-5919
Email: Kate.roper@massmail.state.ma.us

Project Description

In multiple communities in Massachusetts, including Chelsea and Springfield, children birth -five and their families consistently experience inequities in health and developmental outcomes compared to the state as a whole. While the state has strong systems in place to support child and family well-being, there remain significant gaps and opportunities, particularly for children who live in communities that have been marginalized and who experience two-generation toxic stress risk factors, such as behavioral health, child welfare involvement, and parental substance use and depression. Furthermore, early childhood and family well-being data collection is fragmented across state agencies and programs. State early childhood systems lack common measures and shared aims, providing challenges to measuring population-level child developmental status and designing aligned programming.

Project Title: Healthy Tomorrows Partnership for Children Program

Grant Number: H17MC31605
Project Start Date: March 01, 2018
Project End Date: February 28, 2023
Organization: CHILDREN'S HOSPITAL CORPORATION, THE
Address: Longwood Avenue, Boston MA 02115
Project Director: Elizabeth R. Woods
Phone Number: (617) 355-6495
Email: elizabeth.woods@childrens.harvard.edu

Project Description

The Boston Children's Hospital (Children's) Community Asthma Initiative (CAI) provides nurse-supervised Community Health Worker (CHW) asthma education, case management, home visiting and environmental assessment in a culturally competent and linguistically appropriate manner for low-income children in Boston. CAI has demonstrated remarkable reductions in children with any (>1) emergency department visits (55%) and hospitalizations (82%) with an adjusted return on investment of 1.37 at three years, according to claims data. CAI proposes the current project to focus on replicating the CAI model in new communities in Massachusetts (MA). CAI is mentoring Pediatric Physicians' Organization at Children's (PPOC) primary care sites in the South Coast, Northern and Western MA to develop a primary care asthma home visiting and case management program that provides culturally competent care, and access to services in the medical home.

Project Title: Early Childhood Comprehensive Systems

Grant Number: UH3MC30335
Project Start Date: August 01, 2016
Project End Date: July 31, 2021
Organization: NATIONAL INSTITUTE FOR CHILDREN'S HEALTH QUALITY, INC.
Address: 30 Winter Street, 6th Floor, Boston MA 02108
Project Director: Colleen Murphy
Phone Number: (801) 390-7217
Email: cmurphy@nichq.org

Project Description

Ensuring that all young children in the U.S. are screened for developmental, behavioral and social delays remains a challenge. Adequate early childhood (EC) systems have not been developed and mechanisms for ensuring continuous quality improvement (CQI) in existing systems have not been established. Goals and Objectives: The purpose of this project is to support Early Childhood Comprehensive Systems (ECCS) Community Teams in 15 states through a Collaborative Improvement and Innovation Network (CoIIN) to improve early childhood screening and family well-being outcomes using a set of core measures. This support will promote the advancement of strategies to accelerate school readiness in place-based communities via the following goals: 1) strengthen leadership in CQI and innovation; (2) strengthen knowledge and skill level in using the collective impact framework; (3) assist with the development of two-generation approaches (parent-child dyad) to drive integration of early childhood services vertically and horizontally; (4) develop and adopt core sets of EC indicators; and (5) create innovative EC systems change ideas, development of spread strategies and adoption of new EC policies for sustaining systems at the state/territory, county and community levels.

Project Title: Training CED/COR Pediatric and Child Psychiatry

Grant Number: T20MC30801
Project Start Date: July 01, 2017
Project End Date: June 30, 2022
Organization: CHILDREN'S HOSPITAL CORPORATION, THE
Address: OFFICE OF SPONSORED PROGRAMS 300 LONGWOOD AVENUE BOSTON MA 02115
Project Director: Alison Schonwald
Phone Number: (617) 355-4997
Email: alison.schonwald@childrens.harvard.edu

Project Description

While one in five US children experiences a mental health disorder, and one in six a developmental disability, primary care providers report insufficient training and support to manage the children in need. Subspecialist developmental behavioral pediatricians and psychiatrists cannot meet the demand for direct care. In response, this project will support the care provided to 25% of Massachusetts children by providing ongoing case-based training to clinicians on the front lines. Our model highlights best practices that are preventive and evidence-based, collaborative and well-coordinated.

Project Title: Maternal, Infant and Early Childhood Home Visiting Grant Program

Grant Number: X10MC33586
Project Start Date: September 30, 2019
Project End Date: September 29, 2021
Organization: PUBLIC HEALTH, MASSACHUSETTS DEPT OF
Address: WASHINGTON ST BOSTON MA 02108
Project Director: Karin Downs
Phone Number: (617) 624-5967
Email: karin.downs@state.ma.us

Project Description

The Maternal, Infant, and Early Childhood Home Visiting (MIECHV) Program supports the delivery of coordinated and comprehensive high-quality and voluntary early childhood home visiting services to eligible families living in at-risk communities. The Health Resources and Services Administration (HRSA), which administers this program in partnership with the Administration for Children and Families, funds states, territories, and tribal entities to develop and implement evidence-based programs that best meet the needs of their communities.

Project Title: Leadership Education in Neurodevelopmental and Related Disorders Training Program

Grant Number: T73MC00020
Project Start Date: July 01, 1990
Project End Date: June 30, 2021
Organization: CHILDREN'S HOSPITAL
Address: Longwood Ave Boston MA 02115
Project Director: David T Helm
Phone Number: (857) 218-4327
Email: david.helm@childrens.harvard.edu

Project Description

There is a shortage of trained personnel to meet the needs of an increasing number of children diagnosed with autism spectrum disorder and related developmental disabilities. This project will train an interdisciplinary cadre of professionals, family members and self advocates to help meet this need.

Project Title: Autism Intervention Research Networks

Grant Number: UA3MC11054
Project Start Date: September 01, 2008
Project End Date: August 31, 2020
Organization: The General Hospital Corporation
Address: Staniford St Boston MA 02114
Project Director: Karen A Kuhlthau
Phone Number: (617) 724-2842
Email: kkuhlthau@partners.org

Project Description

Autism Intervention Research Network on Physical Health

Project Title: Developmental-Behavioral Pediatrics Training Program

Grant Number: T77MC31741
Project Start Date: July 01, 2018
Project End Date: June 30, 2023
Organization: TUFTS MEDICAL CENTER, INC.
Address: 800 Washington Street, Boston MA 02111
Project Director: Karen J Miller
Phone Number: (617) 549-2132
Email: kmiller7@tuftsmedicalcenter.org

Project Description

Approximately 25% to 30% of all complaints to a general pediatrician are developmental or behavioral in origin. Many pediatricians indicate low comfort level in addressing such issues within clinical practice. In addition, the increasing identification of developmental and behavioral disorders in children has led to high demand for properly trained DBPs. DBP is the pediatric subspecialty in greatest demand and with least supply, with too few DBPs meeting patients’ needs. Currently, DBPs in academic training centers are on average 50 years old, reflecting the need for DBP training sites to “feed the pipeline” of the next generation of DBP providers. DBP training programs need to address the culturally diverse needs of patients and families, promote and support screening and early diagnosis of developmental disorders, support care coordination in the medical home, address emerging issues such as transitions and physical health.

Project Title: Leadership Education in Neurodevelopmental and Related Disorders Training Program

Grant Number: T73MC00056
Project Start Date: July 01, 2002
Project End Date: June 30, 2021
Organization: UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
Address: Lake Ave N WORCESTER MA 01655
Project Director: Carol Curtin
Phone Number: (774) 455-6527
Email: carol.curtin@umassmed.edu

Project Description

Children and youth with ASD/DD experience myriad health and social disparities that are in part due to an inadequately trained workforce and poorly coordinated systems of care. We train leaders to create and deliver integrated, culturally competent, person- and family-centered policies and systems of care.

Project Title: Maternal and Child Health Field-Initiated Research Program

Grant Number: R40MC30763
Project Start Date: April 01, 2017
Project End Date: March 31, 2020
Organization: BASSUK CENTER ON HOMELESS AND VULNERABLE CHILDREN & YOUTH, INC., THE
Address: Reservoir St Ste 200 Needham MA 02494
Project Director: Ellen L Bassuk
Phone Number: (781) 247-1770
Email: ebassuk@bassukcenter.org

Project Description

To promote healthy eating and regular exercise for children who are experiencing homelessness, this project implements and evaluates OrganWise Families, an innovative intervention to reduce obesity in 3 to 5-year-old children

Project Title: Health Care Delivery System Innovations for Children with Medical Complexity

Grant Number: UJ6MC32737
Project Start Date: December 01, 2018
Project End Date: July 31, 2021
Organization: Trustees Of Boston University
Address: 881 Commonwealth Ave Boston MA 02215
Project Director: Margaret Comeau
Phone Number: (617) 426-4447 Extn-33
Email: mcomeau@bu.edu

Project Description

The current system of care for children with medical complexity (CMC) is fragmented and inefficient, resulting in poor health outcomes for CMC and unnecessary burdens placed on their families and health care providers. This project's goals are to improve the quality of life for CMC, the well-being of their families, and the cost-effectiveness of their care, through development and implementation of innovative care and payment models using a ten-state Collaborative Improvement and Innovation Network (CoIIN) approach.

Project Title: Training CED/COR Pediatric and Child Psychiatry

Grant Number: T20MC30800
Project Start Date: July 01, 2017
Project End Date: June 30, 2022
Organization: BOSTON MEDICAL CENTER CORPORATION
Address: ONE BOSTON MEDICAL CENTER PLACE BOSTON MA 02118
Project Director: Michelle Durham
Phone Number: (617) 638-8543
Email: michelle.durham@bmc.org

Project Description

The primary aim of this proposal is to bolster confidence, knowledge and skills of pediatric primary care clinicians in the Dorchester and Roxbury areas of Greater Boston so they are better equipped to address the mental health needs of their patients. Our work will aim to ensure that pediatric primary care clinicians are trained to identify, assess, diagnose, and treat those mental health disorders most commonly occurring in childhood and adolescence.

Project Title: Maternal and Child Health Field-Initiated Research Program

Grant Number: R40MC31764
Project Start Date: July 01, 2018
Project End Date: June 30, 2021
Organization: Trustees Of Boston University
Address: 881 Commonwealth Avenue, Boston MA 02215
Project Director: Ruth Paris
Phone Number: (617) 353-7717
Email: rparis@bu.edu

Project Description

Increasing rates of substance-exposed newborn births in Massachusetts (2004-2013) were five times the US average. In utero opioid exposure rose 11% from 2015-2017 according to Massachusetts Department of Children and Families. To address this increase, the study will adapt and test an evidence-informed intervention to mitigate the negative effects of maternal opioid misuse, trauma, and child maltreatment, improve parent-child relationships, and promote optimal parenting and parenting capacities.

Project Title: Universal Newborn Hearing and Screening

Grant Number: H61MC00002
Project Start Date: April 01, 2000
Project End Date: March 31, 2020
Organization: MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH
Address: Washington St Boston MA 02108
Project Director: Sarah Stone
Phone Number: (617) 624-5912
Email: sarah.stone@state.ma.us

Project Description

Late identification of hearing loss and lack of access to appropriate and timely services can have life-long negative consequences for infants who are deaf or hard of hearing. Appropriate intervention to ensure optimal development of language, literacy and social-emotional development is needed.

Project Title: Developmental-Behavioral Pediatrics Training Program

Grant Number: T77MC31739
Project Start Date: July 01, 2018
Project End Date: June 30, 2023
Organization: BOSTON MEDICAL CENTER CORPORATION
Address: One Boston Medical Center Place, Boston MA 02118
Project Director: Marilyn Augustyn
Phone Number: (617) 414-7418
Email: augustyn@bu.edu

Project Description

In collaboration with families and their communities, our DBP Fellows and faculty have leveraged MCHB support over the years to create many training, programmatic, and research initiatives with local, national, and international impact. We continue to refine our approach and develop new strategies to foster DBP leaders nationally and pediatric leaders locally. We will use renewed support from MCHB to address the need for the training of mission-driven professionals as well as for innovative and sustainable DBP interventions designed to address disparities in low-income and culturally diverse populations. Our lifespan approach acknowledges the impact of developmental challenges, chronic toxic stress and other social determinants on each child’s social, emotional and cognitive development, school success, and long-term outcomes including health and employability. With early diagnosis and treatment, the life trajectory of vulnerable children with ASD or DD can be optimized.

Project Title: Safe Infant Sleep Systems Integration (SISSI) Program

Grant Number: UF7MC30768
Project Start Date: July 01, 2017
Project End Date: June 30, 2022
Organization: NATIONAL INSTITUTE FOR CHILDREN'S HEALTH QUALITY, INC.
Address: Winter St Fl 6 Boston MA 02108
Project Director: Pat Heinrich
Phone Number: (617) 391-2700
Email: pheinrich@nichq.org

Project Description

The rate of SIDS continues to decline, while the rate of SUID has remained relatively unchanged. The lack of progress in reducing rates of SUID is mainly the result of steady increases in accidental suffocation and strangulation in bed. While SUID is a public health issue across population groups, significant disparities in SUID rates exist across race, ethnicity, and geography. Data for 2010-2013 combined reveal that American Indian/Alaska Native and non-Hispanic black populations suffer disproportionately from SUID in the United States (rates of 190.5 and 171.8 infant deaths per 100,000 live births, respectively). Additionally, rates of SUID vary substantially by geographic region of the U.S.

Project Title: Family Professional Partnership/CSHCN

Grant Number: H84MC08005
Project Start Date: June 01, 2007
Project End Date: May 31, 2022
Organization: Federation for Children with Special Needs
Address: 529 MAIN ST STE 1M3 BOSTON MA 02129
Project Director: Patricia Nemia
Phone Number: (617) 236-7210 Extn-301
Email: pnemia@fcsn.org

Project Description

MA families raising CYSHN need information about important, varied services, support to navigate complex and diverse health care, health financing, and community systems and education to understand their role as partners in informed decision-making about their child’s health. They need support building meaningful partnerships in family-centered care that is consistent with culture, traditions and values. During Covid-19 all MA families of CYSHN need accurate and relevant information, education and support to navigate the ongoing changes in health care access and delivery. The 2018 NSCH cites only 49.1% CYSHN received care in medical home, and 17.9% received transition to adult healthcare services. A 2018 MADPH survey of CYSHN families identified a need for assistance navigating MassHealth. MADPH reports ongoing racial and ethnic health care inequities. MA F2F educates and empowers families in all MA communities to become independent in navigation of health systems for their child.

Project Title: Autism Secondary Data Analysis Research (SDAR) Program

Grant Number: R41MC33090
Project Start Date: September 01, 2019
Project End Date: August 31, 2020
Organization: Northeastern University
Address: 360 Huntington Ave # 544-177 Boston MA 02115
Project Director: Ralf Schlosser
Phone Number: (617) 373-3785
Email: ralf.schlosser@gmail.com

Project Description

This project responds to the HRSA-19-090 R41 Autism Secondary Data Analysis Research Program. Individuals with Autism Spectrum Disorder (ASD) and individuals with other Developmental Disabilities (DD) who are minimally verbal are an under-researched and underserved subpopulation of ASD/DD. Increasingly, the use of augmentative and alternative communication (AAC) interventions have been found effective in improving the communicative competence and language skills of these populations. Despite these advances, the AAC field continues to face fears from a variety of stakeholder groups that the adoption or the continued use of AAC modalities may hinder speech production in these two subpopulations. If left unanswered, these fears may lead families to postpone, or worse, reject AAC modalities altogether leaving their children less likely to reach their full communicative potential. Using systematic review and meta-analyses methodology, the overall goal of this project is to synthesize the intervention literature on the effects of AAC intervention on natural speech production in individuals with (a) ASD and (b) other developmental disabilities (DD). The deliverables will yield two rigorous, transparent and up-to-date systematic reviews/metaanalyses. Additionally, we will prepare five additional peer-reviewed submission on a range of methodological issues. Finally, the applicants will prepare a variety of news releases and layperson summaries for dissemination to appropriate organizations and publications to facilitate the transfer of knowledge to end users.

Project Title: Leadership Education in Adolescent Health (LEAH)

Grant Number: T71MC00009
Project Start Date: September 01, 1992
Project End Date: June 30, 2022
Organization: CHILDREN'S HOSPITAL
Address: LONGWOOD AVENUE BOSTON MA 02115
Project Director: S. Jean Emans
Phone Number: (617) 355-7170
Email: jean.emans@childrens.harvard.edu

Project Description

Youth are America’s promise. Investing in youth means valuing their contributions and promoting positive youth development so that each teen can become a healthy, productive, and caring adult. To realize this goal requires an infrastructure of trained health leaders uniquely qualified to partner with public health agencies, schools, community organizations, and providers to improve adolescent and young adult health (AYAH) with a comprehensive systems approach. LEAH programs must have faculty with the expertise and track record to train future leaders and impact clinical care and AYAH outcomes. Improving AYAH requires health professionals who can partner with Title V and others to achieve Healthy People (HP) Objectives.

Project Title: Building Systems of Services for Children and Youth with Special Health Care Needs

Grant Number: U1TMC31757
Project Start Date: July 01, 2018
Project End Date: June 30, 2023
Organization: Trustees Of Boston University
Address: Commonwealth Avenue Boston MA 02215
Project Director: Margaret Comeau
Phone Number: (302) 329-9261
Email: mcomeau@bu.edu

Project Description

Data from the National Survey of Children’s Health (NS-CH) show that only 3.8% of CYSHCN were uninsured in 2016 (Data Resource Center, 2017). Unfortunately, however, inadequate health insurance and inequities in health care coverage are still prevalent (Ghandour et al., 2015). Hispanic, non-white, older CYSHCN, and those with greater functional limitations are more likely to be uninsured than other CYSHCN. Hispanic CYSHCN whose primary language at home is Spanish are more likely to be uninsured than those whose primary language at home is English. Lack of health insurance is greater among CYSHCN in families whose household income is below 199% of the Federal poverty level. Furthermore, in 2016, 29.6% of families whose CYSHCN had insurance reported the insurance was inadequate and 15.8% of families reported having problems paying for their child’s care (Data Resource Center, 2017).

Project Title: EMSC Partnership Grants

Grant Number: H33MC06721
Project Start Date: March 01, 2006
Project End Date: March 31, 2022
Organization: MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH
Address: Washington St Boston MA 02108
Project Director: Rebekah Thomas
Phone Number: (617) 624-5557
Email: Rebekah.Thomas@state.ma.us

Project Description

The Emergency Medical Services for Children program collaborates with local, state, and federal partners to ensure pediatric patients receive the best care anywhere in the state.

Project Title: Home Visiting Collaborative Improvement and Innovation Network

Grant Number: UF4MC26525
Project Start Date: September 01, 2013
Project End Date: August 31, 2022
Organization: EDUCATION DEVELOPMENT CENTER, INC.
Address: Foundry Ave Waltham MA 02453
Project Director: Mary Mackrain
Phone Number: (248) 594-3250
Email: mmackrain@edc.org

Project Description

Improved outcomes for MIECHV in benchmarks critical to maternal and child health.

Date Last Reviewed:  November 2020