Maryland Discretionary Awards

Project Title: Healthy Start Initiative-Eliminating Racial/Ethnic Disparities

Grant Number: H49MC07929
Project Start Date: April 01, 2007
Project End Date: March 31, 2024
Organization: BALTIMORE CITY HEALTHY START, INC.
Address: N Charles St Baltimore MD 21218
Project Director: Lashelle Stewart
Phone Number: (410) 675-2125
Email: lstewart@baltimorehealthystart.org

Project Description

Baltimore Healthy Start provides high quality family services to pregnant and post partum women, significant other and children up to 18 months of age residing in target areas of Baltimore where adverse birth outcomes are higher than city-wide birth outcomes, influenced by broader contributing socio-economic factors.

Project Title: Pediatric Mental Health Care Access Program

Grant Number: U4CMC32913
Project Start Date: July 01, 2019
Project End Date: June 30, 2023
Organization: HEALTH, MARYLAND DEPARTMENT OF
Address: 201 W Preston St Fl 3 Baltimore MD 21201
Project Director: Steven Whitefield
Phone Number: (410) 402-8452
Email: steven.whitefield@maryland.gov

Project Description

There is a well-documented gap between the need for and the availability of child and adolescent behavioral health services, particularly in rural or remote communities. In Maryland, there is a significant misdistribution of behavioral health providers, particularly child psychiatrists. While a handful of select counties have a relatively high density of child psychiatrists, nine counties have only one or two, and six have none at all. The overwhelming majority of the latter counties are located in the Southern, Western, and Eastern Shore regions of the state, at a prohibitive distance from better-resourced counties as well as the major academic medical centers concentrated in Baltimore and Washington, D.C. In 2012, Maryland Behavioral Health Integration in Pediatric Primary Care (BHIPP) was established to build pediatric primary care providers' (PCPs) capacity to address the behavioral health concerns of their child and adolescent patients.

Project Title: Heritable Disorders

Grant Number: U22MC24078
Project Start Date: June 01, 2012
Project End Date: June 30, 2023
Organization: Association of Public Health Laboratories
Address: Georgia Ave Silver Spring MD 20910
Project Director: Jelili Ojodu
Phone Number: (240) 485-2772
Email: jelili.ojodu@aphl.org

Project Description

Newborn screening occurs across the United States in disparate ways with varying levels of quality practices.

Project Title: National Coordinating Center (NCC) for the Regional Genetic Networks

Grant Number: UH9MC30770
Project Start Date: June 01, 2017
Project End Date: May 31, 2020
Organization: ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE
Address: Wisconsin Ave Bethesda MD 20814
Project Director: Michael S Watson
Phone Number: (301) 718-9603
Email: mwatson@acmg.net

Project Description

Access to genetics services and reaching medically underserved communities are challenges exacerbated by genetics workforce deficiencies and rising genetic services demand by the general and CSHCN populations. Ongoing gaps in genetics knowledge and lack of awareness of existing educational resources by primary care providers, accompanied by a lag in utilization by genetics professionals of new technologies (telemedicine) as a mechanism for facilitating access and reducing genetics appointment wait times, serve as ongoing barriers to genetics services.

Project Title: Universal Newborn Hearing and Screening

Grant Number: H61MC00081
Project Start Date: September 01, 2001
Project End Date: March 31, 2020
Organization: MARYLAND DEPT OF HEALTH & MENTAL HYGIENE
Address: W Preston St Baltimore MD 21201
Project Director: COURTNEY LEWIS
Phone Number: (410) 767-5596
Email: courtney.lewis@maryland.gov

Project Description

There is a knowledge gap among physicians and early intervention providers that contributes to delays in determining hearing status by 3 months of age and early intervention (EI) enrollment by 6 months of age. A system of care has been developed to raise awareness of EHDI processes in Maryland which will, in turn, help ensure babies receive appropriate and timely services, including: screening, diagnostic evaluation, and referral to and enrollment in EI services for babies identified as deaf or hard of hearing.

Project Title: Healthy Tomorrows Partnership for Children Program

Grant Number: H17MC30730
Project Start Date: March 01, 2017
Project End Date: February 28, 2022
Organization: PRIMARY CARE COALITION OF MONTGOMERY COUNTY, MARYLAND, INC., THE
Address: Georgia Ave Fl 10 Silver Spring MD 20910
Project Director: MarisolOrtiz
Phone Number: (301) 628-3442
Email: marisol_ortiz@primarycarecoalition.org

Project Description

Care for Kids (CFK) provides affordable primary health care for children who lack health insurance. Children most likely to rely on CFK for access to health care come from immigrant families and from racial or ethnic minority groups. Enrollment in CFK nearly doubled between 2013 and 2016, and the influx of unaccompanied children fleeing violence in their home countries of Central America is one of the factors driving this increase. Many of these recent arrivals have been detained at the border by Customs and Border Protection and placed by the Office of Refugee Resettlement. Many present with myriad physical and behavioral health issues, and they need more than medical care. County funding had not supported behavioral health care for CFK children prior to this project; however, many of the same clinics serving CFK children already had integrated behavioral health services available to Medicaid patients.

Project Title: Severe Combined Immunodeficiency (SCID) Screening and Education

Grant Number: SC1MC31881
Project Start Date: August 01, 2018
Project End Date: July 31, 2020
Organization: Immune Deficiency Foundation Inc.
Address: 110 West Road SUITE 300 TOWSON MD 21204
Project Director: John G Boyle
Phone Number: (443) 632-2554
Email: jboyle@primaryimmune.org

Project Description

Newborn screening for SCID has been implemented in all 50 states as of December 2018. While this achievement allows for timely identification and diagnosis of SCID critical gaps still remain in access to resources, information, and education regarding this life-threatening condition. Particularly for families in rural and underserved areas, the need for resources is critical to ensuring all families and providers can adequately navigate a SCID diagnosis.

Project Title: Healthy Tomorrows Partnership for Children Program

Grant Number: H17MC31604
Project Start Date: March 01, 2018
Project End Date: February 28, 2023
Organization: SAN MAR CHILDREN'S HOME INC
Address: Mapleville Road Boonsboro MD 21713
Project Director: Keith Fanjoy
Phone Number: (301) 964-5557
Email: kfanjoy@sanmarhome.org

Project Description

Bester Elementary School attendance scores and health inequities equate to subsequent lower positive outcomes. The contributing factors to poor attendance, low academic achievement, and health conditions of the student population, and their families, are poverty and access to care. The students live in a community which exhibits unmet health needs and disparities. Hunger, physical and emotional abuse, minor and chronic illnesses and diseases are a portion of health related issues that can lead to poor school performance. Addressing these issues in a school based setting can have a positive effect on education and health outcomes.

Project Title: Improving Timeliness of Newborn Screening Diagnosis

Grant Number: UG8MC31893
Project Start Date: September 01, 2018
Project End Date: August 31, 2023
Organization: Association of Public Health Laboratories, Inc. (THE)
Address: 8515 Georgia Avenue, Suite 700, Silver Spring MD 20910
Project Director: Jelili Ojodu
Phone Number: (240) 485-2772
Email: jelili.ojodu@aphl.org

Project Description

The newborn screening system require continuous quality improvement resources to facilitate attainment of timeliness goals by state newborn screening programs as well as for setting and meeting goals for identification and follow-up on out-of-range results, communicating screening results, and confirming diagnosis.

Project Title: The Sickle Cell Disease Association of America, Newborn Screening Follow-up Program (SCDAA-SCDNBSFP)

Grant Number: U38MC28326
Project Start Date: June 01, 2015
Project End Date: May 31, 2021
Organization: SICKLE CELL DISEASE ASSOCIATION OF AMERICA, INC.
Address: Koppers St Ste 570 Halethorpe MD 21227
Project Director: Ashley R Clarke
Phone Number: (410) 528-1555
Email: aclark@sicklecelldisease.org

Project Description

Sickle cell disease (SCD), an inherited hemoglobin disorder, is characterized by acute and chronic complication that progress with increasing age and negatively impact quality of life. This leads to long-term morbidity and often is associated with high utilization of health care resources and reduced survival. It is estimated that approximately 100,000 persons in the US are living with SCD. The disease predominately affects African Americans. SCD occurs among 1 out of 400 African American births and among 1 out of 36,000 Hispanic American births. Approximately 1,000 babies are identified with SCD in the US through state newborn screening programs.

Project Title: Maternal and Child Health Field-Initiated Research Program

Grant Number: R40MC30762
Project Start Date: April 01, 2017
Project End Date: March 31, 2020
Organization: JOHNS HOPKINS UNIVERSITY, THE
Address: N Wolfe St Baltimore MD 21205
Project Director: Laura E Caulfield
Phone Number: (410) 955-2786
Email: lcaulfi1@jhu.edu

Project Description

The project is a study which seeks to evaluate the impact of Baby-Friendly Hospital (BFH) designation in the State of Maryland on hospital and infant feeding experiences of WIC participants. To do this we are using extant data collected by WIC on the infant feeding experiences of women in specific WIC local agencies in Maryland which are closely affiliated with hospitals that either did or did not become BFH designated in 2016; we are conducting telephone surveys of WIC participants at about 1 month postpartum to ask about their individual hospital experiences,and we are conducting a series of in-depth interviews with a small group of women to understand over time their infant feeding experiences. The results will be useful for understanding how Maryland's support for BFH designation impacts hospital experiences, particularly for those served by the WIC program.

Project Title: MCH Autism Longitudinal Data Project

Grant Number: UJ2MC31074
Project Start Date: September 01, 2017
Project End Date: August 31, 2022
Organization: JOHNS HOPKINS UNIVERSITY, THE
Address: 615 N. Wolfe Street, Baltimore MD 21205
Project Director: Xiaobin Wang
Phone Number: (410) 955-5824
Email: xwang82@jhu.edu

Project Description

According to the latest CDC report, Autism Spectrum Disorder (ASD) continues to rise and now affects 1 in 59 U.S. children. Early identification and prevention are key to reducing the population burden of ASD. Growing evidence supports fetal or even preconception origins of ASD, yet existing findings are mostly derived from case-control or retrospective studies. No adequately powered birth cohort studies have prospectively ascertained early life risk factors and biomarkers for ASD in US minorities. This project aims to address the areas of interest outlined by HRSA-17-014 (Autism Longitudinal Data Project): “Genomic, metabolic, and inflammatory markers for screening”; “minority population”; and “maternal and perinatal origins”. We will leverage the exceptional resources of the Boston Birth Cohort (BBC) to accomplish the following aims in a time and cost-efficient fashion.

Project Title: Maternal and Child Health Public Health Training Program

Grant Number: T76MC00003
Project Start Date: June 01, 2013
Project End Date: May 31, 2020
Organization: THE JOHNS HOPKINS UNIVERSITY
Address: N Charles St Baltimore MD 21218
Project Director: Donna M Strobino
Phone Number: (410) 502-5451
Email: dstrobi1@jhu.edu

Project Description

The Center of Excellence (COE) in MCH at JHBSPH identified the need to enhance skills of the MCH workforce for assessment, planning and evaluation of health services for MCH populations; to translate knowledge into action at state and local levels; and for doctoral-prepared leaders in education and research. Its goal is to improve the health of women, children and families. The COE educates professionals through a broad and challenging curriculum for masters, doctoral and postdoctoral students that includes a life course perspective, the science and research base of MCH; a systems approach to MCH concerns; the social and environmental context of MCH; critical thinking, analytic and leadership skills, the science and application of demography; diversity and its impact on health; and the importance of family for MCH populations. It involves active research of faculty and students and continuing education, TA, consultation and translation activities for MCH programs by COE faculty.

Project Title: Maternal, Infant and Early Childhood Home Visiting Grant Program

Grant Number: X10MC33585
Project Start Date: September 30, 2019
Project End Date: September 29, 2021
Organization: HEALTH, MARYLAND DEPARTMENT OF
Address: 201 W Preston St Fl 3 Baltimore MD 21201
Project Director: Mary LaCasse
Phone Number: (410) 767-6753
Email: mary.lacasse@maryland.gov

Project Description

The Maternal, Infant, and Early Childhood Home Visiting (MIECHV) Program supports the delivery of coordinated and comprehensive high-quality and voluntary early childhood home visiting services to eligible families living in at-risk communities. The Health Resources and Services Administration (HRSA), which administers this program in partnership with the Administration for Children and Families, funds states, territories, and tribal entities to develop and implement evidence-based programs that best meet the needs of their communities.

Project Title: Autism CARES Act National Interdisciplinary Training Resource Center

Grant Number: UA5MC11068
Project Start Date: September 01, 2008
Project End Date: August 31, 2022
Organization: Association of University Centers on Disabilities
Address: Wayne Ave Silver Spring MD 20910
Project Director: Dawn Rudolph
Phone Number: (240) 821-9387
Email: drudolph@aucd.org

Project Description

Addressing the complex and varied needs of and improving outcomes for children with ASD/DD will require technical assistance and support of training programs and trainees; collaboration and coordination with key organizations at the federal, state, and local levels; and strong partnerships with autistic people and their family members.

Project Title: Family Professional Partnership/CSHCN

Grant Number: H84MC07946
Project Start Date: June 01, 2007
Project End Date: May 31, 2022
Organization: THE PARENTS' PLACE OF MARYLAND
Address: Cromwell Park Drive Glen Burnie MD 21061
Project Director: Rene Averitt-Sanzone
Phone Number: (410) 768-9100
Email: rene@ppmd.org

Project Description

To promote optimal health for Maryland CYSHCN and their families and facilitate access to a cost effective, quality health delivery system by (1) providing information, education, technical assistance, and peer support to families of CYSHCN and professionals who serve CYSHCN and their families and (2) assuring that families of Maryland CYSHCN partner in decision making at all levels.

Project Title: Home Visiting Research and Development Platform

Grant Number: UD5MC30792
Project Start Date: July 01, 2017
Project End Date: June 30, 2022
Organization: JOHNS HOPKINS UNIVERSITY, THE
Address: 3910 KESWICK ROAD N4327-B Baltimore MD 21211
Project Director: Anne Duggan
Phone Number: (410) 614-5280
Email: aduggan@jhu.edu

Project Description

Early home visiting is a strategy to support positive parenting. Services are targeted to pregnant women and families with young children. Home visiting builds on family strengths to overcome parenting challenges. Many models of home visiting have been designated as evidence-based. The US began comprehensive investment in the scale up of evidence-based home visiting in 2010 and recently committed to continued investment through 2022. Today, every state and territory in the US has home visiting through a mix of multiple federal, state and philanthropic funding streams. Home visiting, like primary care and center-based services, has modest overall impacts on family functioning, parenting, and child well-being.We need a research and development (R&D) platform to strengthen and broaden impacts for home visiting. HARC was created to fill that role.

Project Title: MCHB State Systems Development Initiative

Grant Number: H18MC00023
Project Start Date: October 01, 1993
Project End Date: November 30, 2022
Organization: MARYLAND STATE DEPARTMENT OF HEALTH & MENTAL HYGIENE
Address: N Calvert St Baltimore MD 21202
Project Director: COURTNEY LEWIS
Phone Number: (410) 767-5596
Email: courtney.lewis@maryland.gov

Project Description

The Maryland State Systems Development Initiative (SSDI) Program seeks to enhance and maintain a strong MCH data infrastructure to support Title V needs assessment, planning, implementation, evaluation and data driven decision-making. The intent is to align with the SSDI Performance Measure structure and goals, supporting essential State MCH data efforts to improve performance measurement, accountability and quality. This program will address the needs for increased state MCH epidemiology capacity for both state and Title V needs, improved systematic MCH data coordination, linking, sharing, and use of data for translation to policy and program development. The program will also continue technical assistance for MCH and Children and Youth with Special Health Care Needs (CYSHCN) program staff in local health agencies to improve MCH infrastructure and monitoring and evaluation of MCH programs and activities at the state and jurisdiction level.

Project Title: State Maternal Health Innovation Program

Grant Number: U7AMC33717
Project Start Date: September 30, 2019
Project End Date: September 29, 2024
Organization: Johns Hopkins University, The
Address: Johns Hopkins University Research Administration Baltimore MD 21218
Project Director: Andreea Creanga
Phone Number: (443) 287-1864
Email: acreanga@jhu.edu

Project Description

The State Maternal Health Innovation Program will assist states in addressing disparities in maternal health and improving maternal health outcomes, with an emphasis on preventing and reducing maternal mortality and severe maternal morbidity.

Project Title: National Maternal and Child Health Data Resource

Grant Number: U59MC27866
Project Start Date: July 01, 2014
Project End Date: April 30, 2023
Organization: JOHNS HOPKINS UNIVERSITY, THE
Address: 3400 N CHARLES ST W400 W400 BALTIMORE MD 21218
Project Director: Christina Bethell
Phone Number: (443) 287-5092
Email: cbethell@jhu.edu

Project Description

National and state level children’s health data are needed by policymakers, stakeholders, and Title V funded agencies in order to assess and monitor progress on important quality of health measures. However, such data is cumbersome and costly for individuals to access. The Data Resource Center for Child and Adolescent Health — an easy-to-use, free, and comprehensive resource—offers readily available national, state, and regional level data in a point and click format on its website as well as downloadable codebooks and data sets for additional analysis.

Project Title: MCH Pipeline Training Program

Grant Number: T16MC29832
Project Start Date: June 01, 2016
Project End Date: May 31, 2021
Organization: KENNEDY KRIEGER CHILDREN'S HOSPITAL INC
Address: N Broadway Baltimore MD 21205
Project Director: Harolyn Belcher
Phone Number: (443) 923-5933
Email: belcher@kennedykrieger.org

Project Description

Historically disadvantaged populations (HDP) include underserved (and underrepresented in the maternal and child healthcare-MCH-field) racial and ethnic populations, especially African Americans, Hispanic/Latino Americans, American Indians, and certain Asian (e.g., Vietnamese, Hmong) populations and individuals who are economically disadvantaged or discriminated against due to sexuality, ability-status, and/or other characteristics. Notably, Black and Hispanic health care providers are more likely to serve in areas of need among underserved populations within underserved communities compared to their White peers.Yet Black, Hispanic/Latino, American Indian/Alaskan Natives and Pacific Islanders are underrepresented in the maternal and child healthcare workforce. Increased efforts to recruit, support, and retain students from HDP into the maternal and child health (MCH) workforce are of significant public health importance to reduce health disparities and promote health equity.

Project Title: Sickle Cell Treatment Demonstration Program

Grant Number: U1EMC27864
Project Start Date: September 01, 2014
Project End Date: August 31, 2021
Organization: JOHNS HOPKINS UNIVERSITY, THE
Address: School Of Medicine 733 N Broadway Baltimore MD 21205
Project Director: Rosalyn Stewart
Phone Number: (410) 955-3613
Email: rstewart@jhmi.edu

Project Description

Sickle cell disease is an inheritable condition that affects red blood cells. Affected individuals live with complications such as anemia, periodic pain episodes (at times severe), and damage to tissues and vital organs. Sickle cell disease can also often lead to increased infections and early death. Today, access to quality care for individuals with sickle cell disease is deficit. Access to comprehensive care for individuals with sickle cell is a challenge because there are relatively few clinicians with expertise and willingness to care for adults and children with sickle cell. The purpose of the program is to improve health outcomes in individuals with sickle cell disease, reduce morbidity and mortality caused by sickle cell disease, reduce the number of individuals with sickle cell receiving care only in emergency departments, and improve the quality of coordinated and comprehensive services to individuals with sickle cell and their families.

Project Title: Leadership Education in Neurodevelopmental and Related Disorders Training Program

Grant Number: T73MC17245
Project Start Date: July 03, 2009
Project End Date: June 30, 2021
Organization: Kennedy Krieger Institute, Inc.
Address: N Broadway Baltimore MD 21205
Project Director: Bruce K Shapiro
Phone Number: (443) 923-9136
Email: shapiro@kennedykrieger.org

Project Description

Children with Autism Spectrum Disorder and Related Developmental Disabilities (ASD/DD) have limited access to quality care. They report higher rates of unmet needs than the general population, more family stress, and less effective primary care.

Project Title: Training CED/COR Pediatric and Child Psychiatry

Grant Number: T20MC07464
Project Start Date: July 01, 2006
Project End Date: June 30, 2022
Organization: JOHNS HOPKINS UNIVERSITY
Address: NORTH WOLFE STREET BALTIMORE MD 21205
Project Director: Barbara Howard
Phone Number: (443) 618-9104
Email: bhoward@childhealthcare.org

Project Description

Estimates show that 20-25% of children <17 have a diagnosable mental health condition yet <50% of children in need of mental health support receive it. Between 66-95% of families referred to on-site mental health services in pediatricians’ offices follow through with those services whereas only 5-17% of families referred to off-site pediatric mental health services do. Yet in 2013, 65% of pediatricians surveyed indicated that they lacked training in recognizing and treating mental health problems. This program is an ongoing monthly group learning program with goals including improving PCPs’ skills in detection, sorting severity, primary care management and referral to community resources with co-monitoring of child behavioral and psychosocial problems. In addition, the practical aspects of integrated behavioral healthcare will be problem-solved by having PCPs and mental health specialists caring for the same child both participate in some of the sessions.

Project Title: EMSC Partnership Grants

Grant Number: H33MC06728
Project Start Date: March 01, 2006
Project End Date: March 31, 2022
Organization: MARYLAND INSTITUTE FOR EMSS
Address: W Pratt St Baltimore MD 21201
Project Director: Cynthia Wright-Johnson
Phone Number: (410) 706-1758
Email: cwright@miemss.org

Project Description

Maryland Emergency Medical Services for Children’s (EMSC) department will continued to establish new partnerships and increase collaboration with existing partners to implement system enhancements with EMSC initiatives that will move towards achieving targets for the federal EMSC PM 01 - 09. MIEMSS has the regulatory authority to implement, monitor and regulate a number of these EMSC PMS and has met or exceeded the target goals. Maryland also continues to work with partners in ENA, AAP, and ACEP to develop a categorization process and designation levels specific to regulations on Pediatric Emergency Departments (EMSC PM 04) beyond the highest level of Pediatric Specialty Center with Pediatric Consultation Base Station that already exists.

Date Last Reviewed:  November 2020