Pennsylvania Discretionary Awards

Project Title: MCHB State Systems Development Initiative

Grant Number: H18MC07833
Project Start Date: November 01, 2006
Project End Date: November 30, 2022
Organization: Commonwealth of Pennsylvania
Address: Commonwealth Ave. & Forster St, 7th Floor East, Health & Welfare Building Harrisburg PA 17120
Project Director: Erin E McCarty
Phone Number: (717) 547-3391
Email: erimccarty@pa.gov

Project Description

The primary purposes of the State Systems Development Initiative (SSDI) are to develop, enhance, and expand state maternal and child health (MCH) data capacity for its needs assessment and performance measure reporting in the Title V MCH Services Block Grant program. The Pennsylvania Department of Health's (PA DOH) Bureau of Family Health (BFH) recognizes the need for improved availability, timeliness, and quality of MCH data, as utilization of these data is central to reporting on program assessment, planning, implementation, and evaluation efforts. This project enables the BFH to enhance its data capacity by increasing access to and building capabilities for data collection, data analysis, data systems, and linked information systems. The outcomes of this project will allow for better evaluation and measurement of Title V MCH Services Block Grant program goals and objectives, identification of health trends, and improved program planning and management of health care services.

Project Title: Healthy Start Initiative-Eliminating Racial/Ethnic Disparities

Grant Number: H49MC30725
Project Start Date: July 01, 2001
Project End Date: March 31, 2024
Organization: The Foundation for Delaware County
Address: E State St Media PA 19063
Project Director: Joanne Craig
Phone Number: (610) 497-7344
Email: jcraig@delcofoundation.org

Project Description

Reduce the disparity in the infant mortality and morbidity rates for Black babies born in Chester, Pennsylvania and the surrounding community.

Project Title: Healthy Start Initiative-Eliminating Racial/Ethnic Disparities

Grant Number: H49MC04495
Project Start Date: May 01, 2005
Project End Date: March 31, 2024
Organization: HEALTHY START, INC
Address: N Lexington Ave Pittsburgh PA 15208
Project Director: Jada Shirriel
Phone Number: (412) 723-1373
Email: jshirriel@hsipgh.org

Project Description

To improve maternal and child health and reduce infant mortality and poor birth outcomes in Allegheny County.

Project Title: Hemophilia Treatment Centers (SPRANS)

Grant Number: H30MC24050
Project Start Date: June 01, 2012
Project End Date: May 31, 2022
Organization: The Children's Hospital of Philadelphia
Address: Research Institute 3615 Civic Center Boulevard Philadelphia PA 19104
Project Director: Regina Butler
Phone Number: (215) 590-2198
Email: butler@email.chop.edu

Project Description

Hemophilia is a rare genetic disease and a lifelong chronic condition that impacts all aspects of a patient's life. The care for those with hemophilia requires sophisticated medical analysis to provide the appropriate diagnosis, treatment and management.

Project Title: Maternal, Infant and Early Childhood Home Visiting Grant Program

Grant Number: X10MC33605
Project Start Date: September 30, 2019
Project End Date: September 29, 2021
Organization: HUMAN SERVICES, PENNSYLVANIA DEPARTMENT OF
Address: 625 FORSTER STREET PO BOX 2675 HARRISBURG PA 17105
Project Director: Andrew M Dietz
Phone Number: (717) 772-2098
Email: anddietz@pa.gov

Project Description

The Maternal, Infant, and Early Childhood Home Visiting (MIECHV) Program supports the delivery of coordinated and comprehensive high-quality and voluntary early childhood home visiting services to eligible families living in at-risk communities. The Health Resources and Services Administration (HRSA), which administers this program in partnership with the Administration for Children and Families, funds states, territories, and tribal entities to develop and implement evidence-based programs that best meet the needs of their communities.

Project Title: EMSC Partnership Grants

Grant Number: H33MC06717
Project Start Date: March 01, 2006
Project End Date: March 31, 2022
Organization: PENNSYLVANIA DEPARTMENT OF HEALTH
Address: Harrisburg PA 17108
Project Director: Jay P Taylor
Phone Number: (717) 839-8817
Email: jaytaylo@pa.gov

Project Description

Pennsylvania (PA) has an estimated 2.4 million children, who at any time, may rely on the state’s Emergency Medical Service (EMS) system. In 2018, 83,512 EMS calls involved children who were transported and/or treated within the PA Emergency Medical Services (EMS) system. Children present EMS providers with a unique set of challenges when it comes to the provision of emergency medical care which requires specialized training and pediatric specific equipment.

Project Title: Developmental-Behavioral Pediatrics Training Program

Grant Number: T77MC00012
Project Start Date: July 01, 1997
Project End Date: June 30, 2023
Organization: THE CHILDREN'S HOSPITAL OF PHILADELPHIA
Address: Civic Center Blvd Philadelphia PA 19104
Project Director: Nathan J Blum
Phone Number: (215) 590-7681
Email: blum@email.chop.edu

Project Description

Developmental and behavioral problems including autism spectrum disorders and other developmental disabilities (ASD/DD) are the most prevalent chronic conditions limiting children’s functioning. There is a national shortage of health care providers trained to screen for, diagnose or rule out, and provide evidence-based treatments for these conditions. We aim to improve the developmental and behavioral health of children and families; improve access to developmental-behavioral pediatric (DBP) care for children with ASD/DD and underserved populations; and train future leaders in DBP care.

Project Title: Awareness and Access to Care for Children and Youth with Epilepsy

Grant Number: H98MC33238
Project Start Date: September 01, 2019
Project End Date: August 31, 2023
Organization: Children's Hospital of Philadelphia, The
Address: 2716 South St Philadelphia PA 19146
Project Director: Robert DeNight
Phone Number: (267) 426-0122
Email: stokes@email.chop.edu

Project Description

Epilepsy is the fourth most common neurological condition in the United States and results in affected individuals having seizures (Cranford, 2017). Oftentimes, it is associated with psychiatric and intellectual comorbidities. There are 65 million people with epilepsy around the world, and 3.4 million of these live in the United States (Wagner et al., 2013). As the population continues to grow, so too will the number of people with epilepsy, and correspondingly, the number of children and youth with epilepsy (CYE). Of the 3.4 million people who have epilepsy in the United States, 470,000 are children (Zack and Kobau, 2017). Children and youth with epilepsy (CYE) represent a distinct subset of the pediatric population with a chronic medical condition. CHOP has a large percentage of patients with neurologic complex conditions such as epilepsy.

Project Title: MCH Autism Longitudinal Data Project

Grant Number: UJ2MC31073
Project Start Date: September 01, 2017
Project End Date: August 31, 2022
Organization: DREXEL UNIVERSITY
Address: OFFICE OF RESEARCH 1505 RACE STREET 10TH FLOOR PHILADELPHIA PA 19102
Project Director: Paul Shattuck
Phone Number: (215) 571-3430
Email: pts33@drexel.edu

Project Description

Outcomes for transition age youth (TAY) with autism are poor across multiple domains including work, postsecondary education access, social inclusion, health and mental health. About 50,000 youth on the autism spectrum turn 18 years old each year. It is imperative to understand the needs of TAY on the autism spectrum so that we may develop and implement appropriate policies and practices to support their optimal transition to adulthood.

Project Title: Autism Intervention Research Networks

Grant Number: UA3MC20218
Project Start Date: September 01, 2010
Project End Date: August 31, 2021
Organization: The Children's Hospital of Philadelphia
Address: Research Institute 3615 Civic Center Boulevard Philadelphia PA 19104
Project Director: Nathan Blum, MD
Phone Number: (215) 590-7466
Email: blum@email.chop.edu

Project Description

Developmental-behavioral pediatricians (DBPs) assess and manage many of the most common chronic health conditions affecting children. Multisite research on Autism Spectrum Disorders and other developmental disabilities (ASD/DD) is needed to improve access to care, quality of care, and health outcomes for children and youth with these conditions.

Project Title: Leadership Education in Neurodevelopmental and Related Disorders Training Program

Grant Number: T73MC00051
Project Start Date: July 01, 1999
Project End Date: June 30, 2021
Organization: THE CHILDREN'S HOSPITAL OF PHILADELPHIA
Address: Civic Center Blvd Philadelphia PA 19104
Project Director: Nathan Blum, MD
Phone Number: (215) 590-7466
Email: blum@email.chop.edu

Project Description

Children with autism spectrum disorders and other neurodevelopmental disabilities (ASD/NDD) have difficulty accessing high quality, interdisciplinary, family-centered and culturally competent care. These problems are exacerbated for families living in poverty and minorities. More individuals trained to provide this care are needed.

Project Title: Healthy Tomorrows Partnership for Children Program

Grant Number: H17MC32709
Project Start Date: March 01, 2019
Project End Date: February 29, 2024
Organization: Kids Smiles, Inc.
Address: 3751 Island Ave Philadelphia PA 19153
Project Director: Erika Sands
Phone Number: (215) 365-1033
Email: esands@kidssmiles.org

Project Description

The project will bring critical oral health services to children in West Philadelphia's Promise Zone. The Promise Zone demonstrates uneven outcomes and health inequalities for large segments of the population such as those who are poor and individuals of color. Key socio-cultural factors contributing to disparate minority health conditions identified in research that are reflected in the health status of West Philadelphia Promise Zone residents include unstable housing, low-income, unsafe neighborhoods, and substandard education. Oral health data indicates children experience lack of access to oral health services as a result of poverty and lack of providers that accept Medicaid, barriers to services as a result of distrust of the health care system, and lack of oral health knowledge.

Project Title: Thalassemia

Grant Number: U1AMC28549
Project Start Date: June 01, 2015
Project End Date: May 31, 2021
Organization: CHILDREN'S HOSPITAL OF PHILADELPHIA, THE
Address: Civic Center Blvd Philadelphia PA 19104
Project Director: Janet L Kwiatkowski
Phone Number: (215) 590-5286
Email: kwiatkowski@email.chop.edu

Project Description

Currently, few thalassemia treatment centers (TTCs) exist in the United States and patients often travel great distances to receive specialized thalassemia care in these TTCs. This is a barrier to care for affected patients, costly, and not conducive to emergency care. Some patients remain unserved and may not receive comprehensive care because they are unaware of such services or have financial or geographic barriers to care access. Lack of appropriate comprehensive care leads to suboptimal outcomes. Therefore, improved access to care for these underserved individuals is critical. The establishment of a regional, and ultimately, national, collaboration would allow all individuals with thalassemia to receive the same high quality comprehensive care, but locally.

Project Title: Maternal and Child Health Field-Initiated Research Program

Grant Number: R40MC31765
Project Start Date: July 01, 2018
Project End Date: June 30, 2021
Organization: PENNSYLVANIA STATE UNIVERSITY, THE
Address: 500 University Drive,P.O. Box 850 Hershey PA 17033
Project Director: Deepa Sekhar
Phone Number: (717) 531-8006
Email: dsekhar@pennstatehealth.psu.edu

Project Description

The prevalence of annual major depressive disorder (MDD) episodes among US adolescents rose from 8.3% in 2008 to 12.5% in 2015. Close to 30% of adolescents with MDD reported suicidality in the prior year, with more than one in ten making a suicide attempt. We propose that schools may provide an effective setting to conduct universal MDD screening. While over half of US adolescents do not have annual preventive health visits, regardless of race, ethnicity or socioeconomic status most attend school. The regular contact with schools compared to contact with the medical setting has been used to advocate for many school-based universal health screenings that impact academic success (e.g. vision, hearing). However, while current school screenings address multiple physical health domains, none address mental health.

Project Title: Leadership Education in Neurodevelopmental and Related Disorders Training Program

Grant Number: T73MC00036
Project Start Date: July 01, 1995
Project End Date: June 30, 2021
Organization: UNIVERSITY OF PITTSBURGH
Address: University Pl Pittsburgh PA 15213
Project Director: Miya R Asato
Phone Number: (412) 692-6106
Email: mra5@pitt.edu

Project Description

The prevalence of individuals with neurodevelopmental disabilities is increasing, necessitating the need for early screening, diagnosis and treatment. We aim to train leaders with increased clinical capacity utilizing didactics, supervised clinical experiences, and community partnerships.

Project Title: Healthy Start Initiative-Eliminating Racial/Ethnic Disparities

Grant Number: H49MC00135
Project Start Date: July 01, 2001
Project End Date: March 31, 2024
Organization: PHILADELPHIA PUBLIC HEALTH DEPARTMENT
Address: Market St Philadelphia PA 19107
Project Director: Tracey A. Morris
Phone Number: (215) 685-5249
Email: Tracey.Morris@phila.gov

Project Description

The Healthy Start program aims to reduce racial and ethnic disparities in infant mortality and adverse perinatal outcomes. Healthy Start uses community based approaches to service delivery and facilitates comprehensive health and social services for families. Extreme poverty, discrimination, poor educational opportunities and other inequities plague many Philadelphia neighborhoods. These social determinants drive the disparities in infant and maternal outcomes. Healthy Start recognizes that the poor and disparate outcomes cannot be eliminated unless the social determinants of health are addressed. PDPH HS works with others in the community, using a collective impact model to address these determinants and support community change.

Project Title: Healthy Start Initiative-Eliminating Racial/Ethnic Disparities

Grant Number: H49MC27829
Project Start Date: September 01, 2014
Project End Date: March 31, 2024
Organization: MATERNITY CARE COALITION
Address: Hamilton St Ste 205 Philadelphia PA 19130
Project Director: Kathrin Brellochs
Phone Number: (215) 989-3546
Email: kbrellochs@maternitycarecoalition.org

Project Description

In response to Philadelphia’s persistent poor health outcomes, MCC’s Healthy Start program provides case management for pregnant women, new mothers, children up to 18 months, fathers, and male partners. The goal is to improve perinatal health outcomes and reduce disparities in select low-income communities in Philadelphia.

Project Title: Healthy Start Initiative-Eliminating Racial/Ethnic Disparities

Grant Number: H49MC28142
Project Start Date: November 01, 2014
Project End Date: March 31, 2024
Organization: ALBERT EINSTEIN HEALTHCARE NETWORK
Address: Old York Rd Philadelphia PA 19141
Project Director: Judith Faust
Phone Number: (215) 456-8268
Email: FaustJ@einstein.edu

Project Description

Provide Centering Pregnancy and Centering Parenting (a group model of prenatal and well child care) to an inner city, predominantly minority population as a way to increase the social fabric and connections in the community and promote knowledge and self-confidence in our patients.

Project Title: Family Professional Partnership/CSHCN

Grant Number: H84MC07998
Project Start Date: June 01, 2007
Project End Date: May 31, 2022
Organization: Parent Education & Advocacy Leadership Center
Address: Penn Ave Pittsburgh PA 15222
Project Director: Jeannine H Brinkley
Phone Number: (412) 281-4404 Extn-208
Email: jbrinkley@pealcenter.org

Project Description

There is not a unified coordinated system to support CYSHCN and their families in PA. Instead, the system of services is comprised of multiple state and county entities. This system is fragmented and compartmentalized into eligibility-based programs so families must first determine which programs and services that they may qualify for and sometimes must complete multiple applications. We have a need is to identify, train and support families who are racial and ethnic minorities, language minorities, or low-income families and to educate state and regional agencies to recruit and include them on advisory groups. PA has over 1,500 children in residential placements that include nursing homes, privately operated residential facilities for both developmental disabilities and behavioral health, and residential schools. Isolation and segregation in school continues for children with disabilities and/or CYSHCN.

Project Title: Universal Newborn Hearing and Screening

Grant Number: H61MC24882
Project Start Date: September 01, 2012
Project End Date: March 31, 2020
Organization: Commonwealth of Pennsylvania
Address: Forster St Harrisburg PA 17120
Project Director: Kelly Holland
Phone Number: (717) 783-8143
Email: kholland@pa.gov

Project Description

Provide hearing screenings, appropriate referrals, education, and family support to all infants born in Pennsylvania.

Project Title: Leadership Education in Adolescent Health (LEAH)

Grant Number: T71MC30798
Project Start Date: July 01, 2017
Project End Date: June 30, 2022
Organization: CHILDREN'S HOSPITAL OF PHILADELPHIA, THE
Address: Research Institute,3615 Civic Center Blvd Philadelphia PA 19104
Project Director: Carol A Ford
Phone Number: (267) 426-3938
Email: fordc@email.chop.edu

Project Description

Adolescents and young adults (AYA) have difficulty accessing high-quality, interdisciplinary, youth-centered/family-involved and culturally competent care. These problems are exacerbated for young people living in poverty and minorities. We have not met Healthy People 2020 Goals for AYA. Many people between 10 and 26 years of age are not connected to high-quality evidence-based health care services, receiving recommended preventive health care, benefiting from the presence of evidence-based policies to improve their health, or benefiting from supportive environments enriched with youth development strategies to build resilience and strength. Multiple factors contribute to these unmet needs, and one critical factor is the national shortage of professionals trained to provide evidence-based services for AYA patients in youth-centered/family-involved, cost-effective, culturally and community-responsive ways.

Project Title: Maternal and Child Health Public Health Training Program

Grant Number: T76MC28437
Project Start Date: June 01, 2015
Project End Date: May 31, 2020
Organization: DREXEL UNIVERSITY
Address: Arch St Philadelphia PA 19104
Project Director: Renee Turchi
Phone Number: (267) 359-6051
Email: rmt28@drexel.edu

Project Description

As MCH populations increase, numbers of MCH professionals are declining. It is paramount to expand MCH training, especially for students of diverse backgrounds, to increase workforce capacity and diversity. Drexel SPH has a diverse student body, but lacks curricular infrastructure for MCH training.

Project Title: Healthy Start Initiative-Eliminating Racial/Ethnic Disparities

Grant Number: H49MC12904
Project Start Date: June 01, 2009
Project End Date: March 31, 2024
Organization: HAMILTON HEALTH CENTER, INC.
Address: Fulton St Harrisburg PA 17102
Project Director: Nichole Lehr
Phone Number: (717) 230-3964
Email: nlehr@hamiltonhealthcenter.com

Project Description

During the previous reporting year, Greater Harrisburg Healthy Start served a total of 653 participants. During the new project period GHHS has expanded its project area and will focus services on minority women of childbearing age with the goal of continuing 0% infant mortality rate and overall improvement in birth outcomes. GHHS will also expands it health education component, offering education sessions in different locations throughout Dauphin County.

Date Last Reviewed:  November 2020