Grant Status: Active
Grant Title: Interdisciplinary Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND)
Amy Costanza-Smith, PhD
Professor of Pediatrics
Oregon Health & Science University
Oregon Health & Sciences University
3181 SW Sam Jackson Park Road
Portland, OR 97239-3098
Phone: (503) 418-1550
FAX: (503) 494-6868
Meeting all the needs of and resolving the disparities plaguing children with autism and other neurodevelopmental disabilities requires interdisciplinary training of strong and creative leaders who possess the knowledge, skills, vision and values necessary to effect change.
Goal 1: Improve the health status of children with neurodevelopmental and related disabilities through leadership training of individuals from a broad range of professional disciplines. Objective 1: Maintain and promote the professional development of a central core of highly qualified and increasingly culturally diverse faculty in thirteen core disciplines who will plan, implement and evaluate the training program. Objective 2: Recruit from the core disciplines, at least 26 long-term graduate trainees who demonstrate leadership potential and cultural diversity, approximately 18 of whom will receive stipends from this grant. Objective 3: Increase each trainee's knowledge, skills and leadership capacity in the essential value systems, clinical competence, health systems and public policy, as evidenced by behavioral observation, self-rating, and documented participation in training events. Goal 2: Improve the health status of children with neurodevelopmental and related disabilities through collaboration with Title V agencies, other UCEDDs, and other LEND programs. Objective 1: Collaborate with other UCEDDs, other LEND programs, and Title V Objective 2: Develop cooperative projects through the Pacific West LEND Consortium Objective 3: Collaborate with Oregon's Title V agency (OCCYSHN) in exemplary service provision Goal 3: Improve the health status of children with neurodevelopmental and related disabilities through continuing education, technical assistance and consultation to community organizations and providers. Objective 1: Collaborate with Title V, OHSU entities, and other LEND programs to develop learning opportunities in a variety of formats for professionals, families, and persons with disabilities Objective 2: Provide continuing education experiences for direct-service professionals and families on topics such as ASD, cultural competence, genetics and prevention, nutrition, early identification, behavioral and educational techniques, adolescent transition, wellness promotion, and others. Objective 3: Participate in community assessment and clinical service via collaborations with Title V community-based clinics (CCN), with annual school district preschool screening (Tillamook), and with rural medical homes Goal 4: Influence policy and advance practice through participation of trainees and faculty in the process of refining systems of health care delivery and eliminating inequities in service provision. Objective 1: Implement and continue to expand parent and family involvement in LEND planning and training activities Objective 2: Develop a long-range recruitment plan focusing on multicultural populations Objective 3: Promote collaborative research and other scholarly endeavors in which all long-term trainees can actively participate Goal 5: Implement Healthy People 2020 objectives. Objective 1: Continue a special focus on autism spectrum disorders in order to achieve early screening, early and accurate diagnosis, and early intervention (MICH-29). Objective 2: Address barriers to healthcare related to participation of children with disabilities (DH-9) and the acquisition of assistive devices, other technologies and services (DH-10) by teaching interdisciplinary approaches to the application and acquisition of appropriate assistive devices and technology Objective 3: Help ensure that the youngest children with disabilities (birth to two years) receive appropriate, early intervention services in their homes and in their local community (DH-20).
The Project is closely allied with Oregon Title V. Resources include a faculty of more than 60 and a large, diverse clinical program. Other resources include OHSU departments, nearby universities, community agencies, and national organizations. The core faculty represent 13 disciplines. The Project annually recruits long-term trainees with great potential for leadership from 12 disciplines (including family).
The Project provides training and technical assistance to Title V and maintains partnerships with the AUCD and many community agencies.
Evaluation stems from the objectives and measures numbers and types of trainees, clinical services, community education events, and long-range trainee outcomes.