I recently had the privilege of connecting with many other MCH trainees and former trainees at this year’s Making Lifelong Connections (MLC) Meeting. I had the opportunity to attend the conference as a member of a team from the Trainee Ambassador Group that is working on a new trainee mentoring initiative. I must admit that I was not sure what to expect going in to the meeting, but after experiencing the event, I was inspired to comment on how meaningful it proved to be for me as a Developmental Pediatrician in training.
Prior to the MLC meeting, I did not have a full understanding of the different MCHB trainee programs or their various attributes. While at MLC, I had the chance to meet others in each of the training programs, to better understand our respective roles, and to consider how we can work together as an interdisciplinary force for maternal and child health. I heard about creative projects being completed by my colleagues, which led to the generation of new ideas that I could take back to my home program.
Getting the opportunity to consider issues alongside peers from different disciplines pushes one to think creatively and often introduces a new perspective. This can prove to be invaluable, and as one who practices medicine, I found that hearing from my colleagues outside of my specific discipline led me to consider approaches to problems or ideas that were "outside of the box." As I sat down at tables next to my peers, I discovered that, while our day to day schedules may look completely different, we were all working toward a common purpose, and this was extremely encouraging.
The strength of the MLC meeting is that it is a rare opportunity to bring trainees together in a way that generates meaningful ideas and important connections. I left the event not only with new friends and colleagues, but also with inspiration and energy after seeing such a diverse and committed group of trainees united behind a common purpose.
One's life journey is largely shaped by one’s life experiences, and for me, my passions and career interests are in the broader context of life with a younger sibling with autism spectrum disorder. Seeing him struggle with some aspects of functioning while uniquely excelling in other areas has taught me that in the setting of uncertainty, setbacks, or perceived weakness, one can always find hope, potential, a change worth making or a goal worth pursuing. Experiencing this journey with him and my family fuels my desire to pursue better understanding of neurodevelopmental disorders, to seek effective treatments for these disorders, and to support patients and families in the process of living with their diagnoses.
Growing up I loved mysteries – taking the clues and trying to bring them together to solve a puzzle – so the study of medicine was an obvious fit. My love of investigation coupled with a passion for serving children and families led to a career in Pediatrics and ultimately to my current MCHB training program which is a fellowship in Developmental and Behavioral Pediatrics at Boston Children’s Hospital. Within my MCHB funded training program, I have the opportunity to gain expertise in clinical diagnosis and management of developmental disorders while also formulating and investigating a research question relevant to the field. I am currently working to describe and characterize toddlers diagnosed with autism via the DSM-5 criteria and ultimately hope to follow these patients through school entry to determine their ability to access services and their functional outcomes.
I recently had the privilege of connecting with many other MCH trainees and former trainees at the 2017 Making Lifelong Connections Meeting. This experience afforded the opportunity for meaningful networking and exchange of ideas, and I left the conference excited about the connections I made and eager to further develop my ideas. In my experience as a Maternal Child Health Trainee thus far, I have been continually impressed and encouraged by the creativity and commitment I have witnessed in my interactions with other trainees. Among these peers, I sense a mutual drive to understand what we do not know or to take what we have learned and turn it into meaningful change, all with the common goal of bettering the health of children, mothers, and families. There are so many ways to serve and so many different career pathways that can lead to the successful promotion of the health of this population. The fact that the Maternal Child Health Bureau Training Programs bring together such a diverse group – both in life experiences and in educational background – united behind a common goal is a unique and valuable strength. I feel so honored to be a part of this team.
Five years ago, I was a health navigator in San Francisco’s emergency shelter system. I was fresh out of college, bright-eyed and eager to help families find some semblance of stability during a frequently harrowing period of their lives. But, I soon realized how little good intentions meant when systems of care could not meaningfully communicate or collaborate to meet the medical, socioemotional, and basic needs of developing children and families. I was trained to help families optimally reach available services, but I began to wonder: how can we structure available services to optimally reach families?
These days, I listen to families more often through data than casework, trying to answer this enormous question. The work is just as precious, and I take particular pride in being able to shepherd facets of people’s lived experience - from diagnosis codes to patient narratives - to shine a light on the needs of those at the margins. My time with LEND has allowed me to share tables and conversation with those who might use this light in their clinical decisions, their parenting, and their advocacy, which is a gift. And most importantly, I’ve been able to see with clarity how we can ensure those with lived experience are represented in these conversations, and support them in illuminating the issues that carry meaning to them.
Five years from today, I don’t know where I’ll be. Heck, even the next five months is questionable! But I hope to continue advancing these conversations where they may be lacking, keeping the voices of the families we serve always in the back pocket.
I have appreciated that people in GaLEND want to get to know me for who I am. I have seen that people with disabilities can be leaders and that there are many opportunities. My experiences in GaLEND and in the Georgia Tech Excel program have really opened my eyes to the possibilities that exist for me. I am open to the connections that I will make through the GaLEND Program that I may not even be aware of yet.
I see the GaLEND experience as an opportunity to improve lives in a community in which all might live, work, worship and play together. My passion for helping families impacted by disability is fueled even more by this rich interdisciplinary experience. It is stretching me at a time when most beneficial to my work as the Executive Director for Spectrum Autism Support Group (www.atl-spectrum.com) This quote says it all! "I want to make a difference doing something that makes a difference, with people that make a difference, at a time that makes a difference." --John C. Maxwell
What have I learned in these two short months at GaLEND? So much. Most fundamentally though, I have learned that it is time for a shift in the way we think about individuals with disability. It’s time to move beyond our focus on intervention and a few basic school supports. It is time to focus on equity. What does that look like? From the stories that individuals at GaLEND have shared thus far, it encompasses full inclusion into our communities -- our school settings, (child care, preschool, K-12 and universities as well), our neighborhoods, our work places, and our arts. And that means provision of the resources that will enable this inclusion, so all individuals, regardless of disability status, can have the opportunity to pursue their dreams and aspirations, to pursue love, family, and friends. Going forward in my career, I plan to leverage my skills as a researcher and teacher to advocate for this advancement by listening closely to the lived experiences of individuals, by sharing those stories, and by working collectively to address needs so equity can one day be achieved.
In five years, I hope to be fully engaged in connecting people in collaboration and helping them share their resources to address regional and national issues of importance to children with special health care needs, children with autism and related disorders and their families.
MNLEND 2014-15 Fellow, Jocelyn Bessette Gorlin PhD, RN, CPNP, Assistant Professor, Department of Nursing, Saint Catherine University, recently published an article in the Journal of Pediatric Nursing based upon her earlier MNLEND research project and dissertation. Her research examined the experiences of families living with a child with severe autism.
There is limited literature on the experiences of families when a child has severe autism as distinct from milder autism and that also includes the voices of multiple family members. She visited the homes of families to interview many family members who would share their story, including mothers, fathers, siblings, and grandparents.
Family members were willing and eager to talk. Many said they hoped to break the cycle of isolation by sharing their story and hoped to additionally improve health care. Gorlin states that several families expressed joy that finally their story would be shared with the public when she let them know of the publication. She would like to thank the families who opened their homes and lives to her and to the LEND staff who also ultimately assisted the families in telling their important stories. Her article can be located here.
John “Jack” Reagan, current 2016-17 MNLEND Fellow, recently co-published a brief based at UIC, based on the FINDS 2010 data surveying family caregivers. The data he analyzed within the FINDS survey focused on the emotional and physical markers affecting family caregivers. These markers have both positive and negative associations to their related outcomes for family caregivers. He helped assess how caregivers reported their respective health status based on these positive or negative markers. Within the caregiver group, he focused on sibling caregivers for this brief. He looked at how the reported disability group effects reported health status, stress levels, demographics, and living arrangement.
Overall, the families that completed this survey indicated that they experience a large amount of total stress, both physical and emotional. The most influential factors on the reported health status for family members were guilt, loneliness, physical fatigue, and costs of caregiving. Stress is only one indicator of the many markers that make up the negative effects of caregiving. In the future, it will be important to recognize the difficulties of caregiving in order to provide better family support. This report illustrates the need for improved services for families and it will be critical that we begin to provide basic mental health options for families to access. Click to view the UIC Fall 2016 brief.
Lisa is a current UR LEND trainee, a family advocate, and the mother of a son with autism spectrum disorder. She is employed by AutismUp as a Family Navigator and currently works full-time in Developmental and Behavioral Pediatrics at the University of Rochester. Her time is devoted exclusively to working with families of children with autism and other developmental disabilities. She knows all too well the fear and shock that is associated with an autism diagnosis. This month, Developmental and Behavioral Pediatrics services will move into a new space designed specifically for children with autism and other developmental disabilities. Lisa will be found in the Family Library in our new space, where she will be able to provide support and guidance.
“You hear autism and that’s all you can think about. But I want to [. . .] tell [people] that it’s not terrible. It’s not awful. It doesn’t mean your child won’t be happy or won’t have a place in the world. That feeling that you’re all by yourself – it’s not true. It’s just that your reality will be a little bit different now.”
As part of their Arizona LEND leadership project, Page Buekelman, Whitney Mast, Joelle Fang, and LeAnna Lucero have been actively involved in helping the board members of the Autism Society of Southern Arizona organize the 11th annual Autism Walk in Tucson, AZ. The walk, which takes place on April 1, 2017, is the largest event for Autism in Southern Arizona, with an expected turn out of over 2,000 participants. There are also more than 50 community resources represented at the walk, providing valuable information for families of children with Autism, and many fun events for children of all ages to partake in. Each trainee has been working with a different board member throughout the planning process to organize different aspects of the event, including site coordination, volunteer organization, and entertainment. Trainees have attended bi-weekly planning meetings to consistently assess progress and determine future needs. Tasks have included but are not limited to: contacting local vendors for quotes and sponsorship, recruiting volunteers from various organizations, organizing registration set-up, compiling sponsor bags, promoting the walk via social media and flyers, and helping with informational booths at community events. Arizona LEND trainees have been encouraged to give their own input on new ideas throughout the planning process and have been actively engaged in all email communications with other board members.
As the tenth year of my post-undergraduate training draws to a close, I am able to reflect admirably on my past experiences. After attending medical school at the University of Oklahoma, residency whisked me and my fiancé away to St. Louis University. Three short years later, my now husband, a human baby (in addition to our fury ones) and I were westward bound for fellowship.
Arriving to the University of California at Davis was like a dream come true. All these long years working toward becoming a Developmental Behavioral Pediatrician (DBP) had finally culminated. I could start focusing on what I am most passionate about, helping children and families with neurodevelopmental disabilities.
As I became embedded into the inner workings of the MIND Institute, I learned about the hard-earned federal grant funding that makes it all possible. My fellowship program is funded by the Maternal Child Health Bureau (MCHB). The UC Davis MIND Institute is both a University Center for Excellence in Developmental Disabilities (UCEDD) and an Intellectual and Developmental Disabilities Research Center (IDDRC).
When we learned that the MIND Institute would also become a training site for Leadership Education in Neurodevelopmental Disabilities (LEND) in 2016, it was the icing on the proverbial cake. We had reached the quadfecta (yes, this is a word) which very few other institutions have been able to achieve.
I am exceedingly grateful for these programs, which sponsored, supported, and enriched my fellowship training. The combination of education and training in research, clinical skills, community outreach, and advocacy has enabled me to be well prepared for anything the future may hold.
With so many conflicting feelings, I face what comes ahead with my head held high and my family by my side. Confident, yet humble. Elated, yet anxious. Bittersweet.
Two years ago, I was afforded the opportunity to become a fellow in the Leadership Education in Adolescent Health (LEAH) training program at the Indiana University (IU) School of Medicine through the Maternal & Child Health Bureau’s (MCHB) Division of MCH Workforce Development (DMCHWD). This experience has impacted my life in multiple ways, through deepening my education in adolescent health, developing my leadership skills, and helping establish my connections with other adolescent health professionals.
As a second-year LEAH fellow, I’m nearing the end of my fellowship training within the LEAH program. Thus, it seems apt to reflect back on that experience now. Perhaps what stands out most to me from my experience is the bridge LEAH created for professionals from multiple disciplines. I have received my training primarily in the social sciences, and being able to collaborate with social workers, nutritionists, nurses, psychologists, and medical professionals gave me the chance to see adolescent health concerns through many lenses. While they were able to draw from my broad social perspective, I was able to apply my theoretical understandings to more clinically focused solutions. Throughout the program, I began to see how the research we conduct outside of the clinical setting can be applied to tangibly help improve adolescent health.
Next, the IU LEAH program has a strong emphasis on building leadership skills. Participating in the LEAH program has taught me that my voice and ideas are strong and valid, and that I need to speak strongly. But, as loud as I should speak, I should listen even harder. Leadership means portraying a strong sense of self, but listening to others. Particularly, our work with adolescents is our strongest display of leadership. By hearing their voices, we can help them with the many challenges they face. Finally, as someone from a health field that did not have a singular emphasis on adolescent health, I struggled to connect with other professionals in the research arena. As part of the LEAH program, I had the opportunity to meet several of my peers working toward similar goals, in similar fields, and with similar research interests. LEAH also gave me the chance to connect with other professionals from which to learn and develop. Some of my most influential and treasured mentors are former LEAH fellows/trainees; are currently involved in adolescent health; or are connected with MCH training programs.
My experience in LEAH has shaped the trajectory of my career and goals. By teaching me to work and connect with a variety of professional perspectives, developing my leading and listening skills, and giving me the chance to develop mentoring relationships, I am poised to continue conducting research in adolescent health.
I am an undergraduate student at the School of Public Health at the University of Maryland College Park currently pursuing a Public Health Science Degree. I have always been interested in Maternal and Child Health and had dreamed of having an opportunity to work at the Maternal and Child Health Bureau. Fortunately, I had the privilege of obtaining an internship at the Division of Maternal and Child Health Workforce Development during my Fall 2016 semester. Throughout my time at DMCHWD, I was able to gain knowledge on federal processes such as grant cycles, grant reviews and the outreach each program at DMCHWD has. I was also able to participate in several trainings that enhanced my knowledge on maternal and child health leadership competencies. These trainings have broadened my application of public health skills on a day to day basis in the health workforce environment.
I worked on several tasks and projects for the division. Specifically, I worked with the Healthy Tomorrows Partnership for Children Program (HTPCP) and the American Academy of Pediatrics (AAP) to develop a Diversity and Health Equity Guide for the program. I was able to analyze several progress reports and devise a thematic analysis on cultural and linguistic competence of specific programs under HTPCP. I also developed a data summary presentation for fiscal year 2014 of the Pediatric and Pulmonary Centers program through conducting research and statistical analysis on raw data and using the Discretionary Grant Information System, a federal electronic system. Furthermore, I had the opportunity to attend several conferences such as the Bright Futures Conference and AUCD Conference.
My experience at DMCHWD has led me to continue my education in pursuing a degree in Maternal and Child Health. The division shows great team leadership, mentorship and provided me with several learning opportunities to one day become an MCH leader. Thank you DMCHWD staff for being a supportive and inspiring team!
As a graduate student in the Master of Science in Nursing program at the University of Alabama at Birmingham (UAB), it was a privilege for me to be the 2015 graduate nurse trainee at the UAB Pediatric Pulmonary Center (PPC). Through the traineeship, I gained valuable experience in regards to leadership, advocacy, professionalism, and family-centered care that I can now further utilize as a pediatric nurse practitioner at the Children’s Hospital and Medical Center in Omaha, Nebraska.
The PPC traineeship taught me the importance of utilizing the strengths of multiple disciplines and developing a holistic view of the pediatric patient and his or her family. Working among dietitians, respiratory therapists, pharmacists, nurses, physicians, and social workers demonstrated to me the strengths of each discipline and benefits of utilizing their fortes. It was a special privilege to work with leaders in each field who were previous PPC trainees themselves! Hearing firsthand from patients and families was also an honor, and the stories they shared revealed their struggles, triumphs, and perspectives what truly matters in health care delivery.
The traineeship highlighted the importance of quality improvement, research, education, and advocacy, and I was provided mentorship, resources, and experiences to enrich my growth in these areas. With multidisciplinary input, I helped initiate and lead a quality improvement project developing an educational tool to increase patient knowledge of cystic fibrosis related diabetes (CFRD). The tool increased patients’ knowledge of CFRD by more than 40 percentage points, and the findings will be disseminated through a poster presentation at the upcoming National Association of Pediatric Nurse Practitioners national conference. The traineeship further revealed to me the burden of chronic disorders on patients and families, especially in pediatric pulmonary care. Through a literature review, I investigated theories and interventions to improve a patient’s self-management of his or her care and presented my findings in a formal presentation. I was able to later also present the information to both undergraduate and graduate nursing students at the University of Tennessee at Chattanooga. Lastly, I was given the wonderful opportunity to lead the development and execution of a continuing education event for area school nurses. This project allowed me to work with PPC trainees of other disciplines to provide a free opportunity for further education for frontline nurses in pediatric care. The professional growth that came from being involved in these projects and initiatives would have been impossible without the support and funding that the traineeship provided.
Finally, the privilege of working among patients with chronic pulmonary illness through the PPC has deepened my love for pediatric chronic care and desire to support those living with these illnesses in the pursuit of long, healthy, prosperous lives!
Physical therapists have a responsibility to treat each patient with respect, dignity, and compassion. Physical therapy can have a lasting impact not only on the individuals served, but also on the therapists as well. I plan to apply the knowledge that I have gained from my experiences and through my aspirations to actively make an impact on the lives of others. Most recently, my experience in the Maternal Child Health-Leadership Education, Advocacy, and Research Network (MCH-LEARN) at Kennedy Krieger Institute has influenced my perception of healthcare as related to health disparities and the importance of achieving health equity. For instance, although life expectancy and health has improved over time, some populations are treated inequitably due to cultural and socio-economic factors. During the summer component of my internship at Kennedy Krieger Institute, I participated in a research project at Johns Hopkins School of Medicine where I contacted patients who attended their “After Care Clinic” to receive feedback on their experiences and necessary improvements. First, this revealed that providers were concerned about and valued patients’ care. Second, I gained insight on treatment methods for sickle cell anemia and its unique prevalence among the African-American community. I conducted research on the feasibility of a rehabilitation program that could help manage pain in sickle cell patients to avoid overuse of prescription pain medicine. This is important because some health care providers suspect drug-seeking behavior when patients request pain medication. While this may be true, this perception of mostly African-American patients may not be the case for all African-American patients. In fact, one patient expressed that she felt the need to dress in business attire to appear more professional before going to her health care provider. Could these perceptions influence patient utilization of health care and contribute to health disparities? How can I as a health practitioner help reduce such perceptions?
Another experience that shaped my perception of healthcare took place in St. Croix, U.S. Virgin Islands. The physical therapist took into account both the mental and physical aspects of her patients at her private practice, “Integrated Therapy.” My interest was to observe the techniques used to treat people in the Caribbean and compare it to my other experiences. Her integrative approach to physical therapy targeted the disability directly and also incorporated multiple therapeutic techniques like massage with natural healing oils to help her patients recover. I learned that diversity extends beyond the type of patients we treat and should also be included in the therapeutic treatments employed to meet the needs of specific populations. The United States has a growing and diverse population, and inclusion of people of varying cultures in healthcare such as physical therapy can offer innovative ideas, different perspectives, and increase cultural factors that can improve health outcomes within our nation.
In order to learn more about the role of research in addressing ways to prevent, treat, and aid people in recovering from rehabilitative conditions, I applied and was accepted into the MCH-LEARN program at Kennedy Krieger Institute and also accepted into ASCEND (A Student-Centered Entrepreneurship Development) training model at Morgan State University, funded by the National Institutes of Health. These programs have introduced me to public health and strengthened my understanding of health disparities. During my internship at Kennedy Krieger Institute, we discussed the social determinants of health such as living condition, workplace, and social environment that influence the health outcomes of a patient. It has instilled in me a sense of awareness and sensitivity to for all individuals. It has shown me that as a future health practitioner, it is my responsibility to contribute to health equity. My varied academic background in public health and physical education has contributed to my understanding of the holistic approach in treating an individual.
Upon receiving the Duke Doctor of Physical Therapy degree, I will use my academic, research, practical, and personal experiences to advance therapeutic approaches to help reduce health disparities in underserved groups. Like those before me, I plan to contribute to diversifying the field by mentoring students from underserved high schools to make them more aware of the physical therapy profession. I also want to organize my own sports camp for children including those with physical disabilities. The camp will utilize motivational speakers, introduce the children to health careers, and teach them the importance of fitness, adequate nutrition, and teamwork.
Jada is involved with the MCH Pipeline Program through MCH-LEARN at the Kennedy Krieger Institute in Baltimore, MD. She is studying for her Bachelor of Science in Physical Education with a concentration in Pre-Professional Physical Therapy, and will graduate in May. Jada will begin her Doctor of Physical Therapy (DPT) Program at Duke University in the fall 2017. She has received the Helen Kaiser Physical Therapy/Diversity and Leadership Scholarship, for a total of $60,000, to support her in the DPT Program.
I am a fifth year doctoral student in Human Nutrition and a third year LEAH nutrition fellow through Johns Hopkins University Bloomberg School of Public Health (JHSPH). In the field of nutrition, adolescence represents a transitional period during which young men and women begin to make choices and exercise control over the foods that they choose to eat. As such, it is a critical opportunity to establish healthy eating habits that both support active lifestyles and continued growth as well as prevent risk for developing chronic disease later in life. Being a LEAH fellow allows me to work with other health professionals with a similar focus on adolescents, and the multidisciplinary environment brings a broad perspective to adolescent health and reminds us of the importance of considering health through all dimensions rather than just our own particular fields of interest.
The Johns Hopkins LEAH fellowship has a specific emphasis on the elimination of health disparities, particularly among Baltimore youth. My research supports this overall mission but focuses on American Indian (AI) populations. Adult AIs have the highest prevalence of obesity and several other chronic diseases compared to any other ethnic group in the US. In addition to these disparities, they also suffer from extreme poverty and have limited access to basic health care. The same poor health trends can be observed among AI adolescents and children. My dissertation work evaluates the impact of a multi-level, multi-component obesity intervention program in five AI communities, under the supervision of Dr. Joel Gittelsohn. I have traveled to each site and see firsthand how families and entire tribal communities suffer the burden of nutrition-related chronic diseases, but have also seen resilience, hope, and determination to heal the communities and live healthy lives, especially amongst the youth.
As I assess the dietary and physical activity impacts of the intervention, I have had the opportunity to present preliminary results at several professional conferences. I presented my proposed analysis at the 2015 Annual Meeting in Washington D.C., and recently presented a poster at FNCE 2016: the Food and Nutrition Conference and Expo annual meeting for the Academy of Nutrition and Dietetics summarizing the physical activity outcomes, for which I received an outstanding abstract award (Link to Abstract ). It is my goal to complete the analysis for my dissertation and defend in January 2017.
Being a LEAH fellow has been an integral part of my academic and professional training here at JHSPH. I have been able to engage with outstanding faculty mentors as well as other individuals like myself, just starting out in adolescent health and medicine. My writing, research, presentation, and professional skills have improved greatly from my involvement in the LEAH fellowship, and my experience in LEAH has helped me to shape my future goals. I genuinely hope to continue my involvement with the LEAH fellowship and the promotion of adolescent health through nutrition as I move forward in my career.
I am graduate student at the Rollins School of Public Health and a MCH Center of Excellence Fellow. I had the pleasure of completing my practicum experience at the Maternal and Child Health Bureau’s Division of Workforce Development. During my 10 weeks with the division, I was afforded the opportunity to learn about MCH program administration and policy development and work on a variety of projects. I created program resources highlighting innovative and best practices of grantees for topics including transition, telemedicine, and distance technology. I assisted in updating the division website, including the curation of a quarterly theme package update, and analyzed performance measure data for one of the divisions grant programs. I expanded my knowledge of MCH program administration and policy development through attendance at conferences and work sessions including the LEAH Annual Meeting, a monthly policy work group, the MCH-WDC Panel Review, FY 2017 FOA Process & Materials Brown Bag Session, and HRSA’s 2016 Research & Innovation Symposium. These experiences allowed me to enhance my knowledge of MCH programs, the federal grant cycle and budgeting process, and cultivated my MCH leadership skills. Additionally, I developed skills in communications, qualitative research, and data analysis. I am very grateful for the opportunity I had to work with the Division of Workforce Development, and I am inspired by their dedication to the health and well-being of women, children, adolescents, and their families!
The Alabama State University (ASU) Maternal and Child Health Pipeline Training Program (MCHPTP), is currently in its 10th year. The program, which began in 2006, was established with the goals of: (a) addressing the identified need to support efforts at the local, state and federal levels to diversify the national healthcare workforce; (b) providing enhanced academic opportunities and establishing a mentoring framework for undergraduate ASU students to explore careers in maternal and child health; and (c) to establish a sustainable undergraduate academic certificate program in maternal and child health. The MCHPTP program has had a great impact on the local, state and national levels. More than 200 students have benefited both directly and indirectly from the opportunities afforded through this grant. Many of the trainees have gone on to purse health or health-related graduate/professional studies or they are working in MCH related fields.
The program is most proud of its trainees, who are persevering despite all odds. One of those distinguished former trainees is Dexter Constant, a native of Montgomery, Alabama. Dexter became an MCHPTP trainee in 2009 with the hopes of becoming a physical therapist. Uncertain of the pathway he would take, he was still determined and dedicated to the process. Through his participation in the MCHPTP, along with the mentoring provided by the program staff, Dexter was able to find the path that led him to his ultimate passion. In May 2012, Dexter graduated with his bachelor’s degree in biology. Shortly after the commencement exercises were held, Dexter returned to ASU as one of four students to enroll in the University’s new Master of Science in Prosthetics and Orthotics (MSPO) program in the College of Health Sciences.
Dexter felt prepared to meet this next step in his professional development because of the educational foundation afforded him as an undergraduate student at ASU. His participation and involvement in organizations such as the MCHPTP and the Biomedical Club helped him gain valuable insight into health and health-related fields. In the fall of 2014, Dexter Constant received is Masters of Science degree in Prosthetics and Orthotics from Alabama State University. He was the first undergraduate from ASU to be accepted and the first African-American graduate of the program.
Dexter is currently completing his orthotic residency in Memphis, Tennessee at the Center for Orthotics and Prosthetics, Incorporated. Dr. Steven Chesbro, former Dean of the College of Health Sciences commented, “We’re excited that Dexter not only pursued a professional degree in prosthetics & orthotics, but that he selected a residency program that focused on the needs of children.” Dexter Constants’ educational and career path supports the program’s objective of increasing the number of minority health care providers who are focusing on the needs of women and children. Mrs. Catrina Waters, project coordinator for the MCHPTP also commented of Dexter’s accomplishments, “We are really excited for Dexter, and knowing he is one of the few African-Americans in the prosthetics & orthotics field, and that he chose a residency focusing on the needs of children, is exactly what the MCH Pipeline Training Program at ASU was designed to do.”
Recently, Dexter was asked to reflect on the past eight years and the impact ASU’s MCHPTP has had on his personal and professional development. He replied, “The Maternal and Child Health Pipeline Training Program was very enriching in my professional development into a healthcare profession. I was exposed to many health disparities that plague our local communities. I was given the opportunity to explore health and health-related careers in detail and learn how they each work together to provide care to not only women and children but the community as a whole. The MCHPTP piqued my interest in the realm of prosthetics and orthotics and I am proud to have been able to successfully pursue a career in P&O with a focus in pediatrics. In my current professional residency, I'm able to apply what I have learned from the pipeline program by providing patient care at Le Bonheur Children's Hospital in Memphis, Tennessee. By participating in the Alabama State University Maternal and Child Health Pipeline, I'm able to understand how to better serve our multi-cultural communities and have an increased awareness of the challenges health professions face throughout their careers.”
In this end, ASU MCHPTP continues to work towards creating a more diverse and culturally prepared workforce.
The experience that I have obtained from Pathways for Students into Health Professions Program has shaped my desire to further my career in the field of health. After graduating UCLA in 2013, I decided to expand my education by attending graduate school at USC where I am earing a dual master in social work and public health (MSW/MPH). During this academic endeavor I interned for Lawndale Elementary School District. I work on a multitude of projects for the LA County Department of Public Health. My main projects were conducting community resource guides for the city of Los Angeles, providing psycho-education for adolescents’ sufferings from health conditions, as well as co-facilitating in social skills groups. As a completion of my MSW/MPH program I have also conducted research in Santiago, Chile. This past year I was an intern for IES Abroad -Health Science Program. My duties entailed conducting needs assessments for pubic and private medical institutions in Chile, meeting with health professionals on the bases of Chile’s healthcare system, as well as conducting research. I centered my internship around my research topic of “Tobacco consumption amongst Adolescents” in efforts to implement smoking cessation programs to reduce adolescent tobacco consumption. As I am approaching the end of my academic career, I plan on working in the field of public health in efforts to increase health and wellness in communities on a global, national, as well as local level.
Vanessa is a first year student in the Masters Entry in Clinical Nursing (MECN) program at UCLA that prepares students to be Registered Nurses, Clinical Nurse Leaders, and Public Health Nurses. She is currently involved in the Global Action in Nursing (GAIN) Club and the National Association of Hispanic Nurses (NAHN), Los Angeles Chapter. She was awarded a 12,000 Disadvantage Scholarship from the School of Nursing and is a Nurse Volunteer at Ronald Reagan Hospital. She graduated from UCLA in 2013 with a major in Psychology and minor in Chicano studies and spent her time off working as a research assistant at Stanford School of Medicine. She participated in PSHP during her time at UCLA and is grateful for the summer internship that first sparked her interest in nursing.
As a University of Minnesota graduate public health student and MCH nutrition trainee I had the opportunity to complete my field experience practicum with the Division of Maternal and Child Health Workforce Development (DMCHWD). It was an honor to have had the opportunity to work so closely with the division staff on projects dedicated to improving health disparities within MCH populations. The 10 weeks I spent working with the inspirational and highly supportive division staff affirmed my passion for fostering health equality. I also developed a strong recognition of the importance of promoting health through innovation and collaboration between federal, state, and local efforts. During my internship I developed public health and professional skills and enhanced MCH knowledge in policy development, the federal budgeting process, the federal grants cycle processes and leadership. I attended many conferences and seminars on maternal and child health including the 2015 Autism CARES Meeting, WIC’s Impact on Periconceptional Nutrition meeting, and a state Title V Block Grant Review. Additionally, I had the opportunity to work on a variety of projects. I really enjoyed working with DMCHWD staff to create and compile quarterly web items, draft Program Planning Templates and conduct background research, as needed, for Division Funding Opportunity Announcements (FOAs). I plan to pursue a public health career in the area of MCH and cannot thank the staff enough for providing me with educational opportunities as well as their mentorship.
As a graduate student at the Johns Hopkins Bloomberg School of Public Health, I had the privilege of completing a practicum at the Maternal and Child Health Bureau’s Division of MCH Workforce Development. My time at the Maternal and Child Health Bureau was invaluable and allowed me to grow and develop as a public health professional. I took a leadership role in a trainee ambassador group planning committee and conducted interviews with project officers to assess family involvement in MCHB programs. I was also given the opportunity to create policy briefs, develop conference and webinar presentations, assist with focus groups, communicate with grantees, and conduct background research for programs. Through my practicum, I gained an in-depth understanding of the federal government’s role in protecting the health of mothers, infants, and children nationwide.
This experience has been the perfect complement to my master’s degree in maternal, child, and adolescent health and development, and it allowed me to hone my skills in an applied setting. This immersion in federal government health programs inspired my own master’s thesis focusing on federal and state laws around child health in schools. Being surrounded by so many passionate and dedicated public health leaders was inspiring and a truly wonderful experience. As I continue on into my career in public health, I will do so knowing that I am part of the supportive network of MCH trainees and professionals.
Maternal and Child Health Leadership Education in Neurodevelopmental Disabilities (LEND) Preparing tomorrow's health professional leaders to serve children and youth with disabilities and the families that care for them. Nicole Robinson came to the WVU-CED for a one-semester internship, three and a half years later she is still at the CED, leading a team of undergraduate interns, like herself, as a LEND trainee. As an undergraduate psychology major, Nicole was interested in pursuing a career in some form of counseling. "My internship with the iASD [intensive Autism Service Delivery] Clinic was the first time that I had worked with children with autism. Seeing the progress made by the kids in that one semester got me hooked. One child had only three words when I started and by the end of the semester... Read more on the CED website
My name is Rebecca Graves Ellison, and I am a Maternal and Child Health (MCH) nutrition trainee at the University of Tennessee, Knoxville. I am pursuing a dual master’s degree to receive a Master of Science in Public Health Nutrition and a Master of Public Health with a Health Policy and Management concentration. Additionally, I will be completing the dietetic internship in Spring 2015 in order to obtain the registered dietitian credential. My long-term career goal is to work at the federal level addressing public health and policy issues, and I am specifically interested in public health nutrition and chronic disease prevention.
I had the privilege of spending seven weeks at the Maternal and Child Health Bureau (MCHB) during my last summer of graduate school, working most directly with Denise Sofka, MPH, RD, Senior Public Health Analyst, Division of MCH Workforce Development and Michele Lawler, MS, RD, Deputy, Division of State and Community Health. This placement as an MCHB summer intern was an invaluable and rewarding experience, leading to immense personal and professional growth. For my major service project, I planned, implemented and evaluated a nutrition-focused strategic plan for the Bureau. The purpose of the MCHB five-year nutrition strategic plan is to increase the visibility of MCHB nutrition-related initiatives currently taking place across all divisions, and highlight ways MCHB nutritionists can collaborate with other federal agencies, as appropriate, and use evidenced-based, culturally appropriate, and integrated methods to address national nutrition-related problems, without duplicating other federal efforts.
I could not have completed this project without the generous help and guidance of the MCHB staff. The welcoming environment and supportive staff made me excited to come to work each day. I have nothing but wonderful things to say about the Bureau, and this internship certainly exceeded my expectations. I was fortunate to work with and learn from Denise and Michele, and I am grateful for the wisdom gained from their guidance. Additionally, I am very thankful for the Bureau’s investment in trainees and support for student internship opportunities. I want to pay it forward by mentoring others and by serving the United States MCH populations at the federal level. I hope that other students and trainees have similar opportunities to work and serve at MCHB in the future!
The MCH Pipeline Training Program (MCH Pipeline) helped me to figure out the next steps to further my career goals. Deciding on a major during undergraduate school was a challenge for me, and once I finally chose a major in psychology I had no idea of what to do next. After taking some courses in psychology, I decided on becoming a behavioral analyst as my career choice. Yet again, I made another big decision in my life without fully understanding how to make that goal happen. The MCH Pipeline gave me insight into what to do next. Within the program, I have been offered a lot of career networking opportunities. I have even worked with families who have children with autism, and through this, I gained a different perspective on the line of work I want to do in the future. One of the biggest lessons I have learned from my time in the MCH Pipeline Program is the importance of including family in decisions. I have always thought the focus in my field would be solely on the child. After reading chapters from Understanding Families, and meeting with families, I have seen how knowing more about the family and including them in decisions can greatly impact results. The MCH Pipeline Training Program has been a big help in guiding my career. I have received one-on-one assistance in preparing for graduate school from not only the instructors, but also from students who have previously applied themselves. The MCH Pipeline Training Program has been a great experience, one I will never forget. I would recommend this program to anyone who needs more guidance in preparing for their future careers.
Ms. Benitez is currently enrolled at the University of Wisconsin – Milwaukee, pursuing a major in psychology and a certificate in autism. She is a hardworking and dedicated individual in both her studies and in her profession as a line therapist. She has been part of the MCH Pipeline Training Program for 3 months. She currently lives in Greendale, WI and commutes to Milwaukee. She has maintained a 3.5 or above G.P.A. in her years so far at the University of Wisconsin – Milwaukee. She is also president of Wishmakers on campus and serves the role of membership chair for the Mortar Board Senior National Honor Society.
I am a second year LEAH Adolescent Medicine Fellow at Boston Children’s Hospital. Since my pediatrics residency, I have been drawn to the challenging issues of the adolescent population. I was very interested in the ways that so many teen health issues—pregnancy, obesity, violence—were social or behavioral in origin. I cared for so many female teen patients whose life plans were derailed by an unplanned pregnancy. When looking at adolescent medicine fellowships, I learned about the multidisciplinary approach of the LEAH programs. During residency, I approached patients through an exclusively medical lens, and so I loved the idea of training alongside colleagues in social work, psychology, nursing and nutrition. As first-year fellows, we have the chance to write a review article on a topic of our choosing for a pediatrics journal. Because of my interest in teen pregnancy prevention, I chose to review the subject of long-acting reversible contraception (LARC) methods, which have, in recent years, gained approval from the medical community as first-line birth control options for teens. Writing the review article so early in fellowship gave me an expertise in this area, and I was able to become a resource for others in my division who sought to learn about LARC methods. Furthermore, I have had the chance to speak about LARC methods, and contraception more generally, to audiences of general pediatricians from around the country. During fellowship I have been encouraged to think of novel ways of promoting health in the adolescent and young adult population. Along these lines, I will soon have the chance to teach about contraception in a whole new way, as I am designing family planning workshops for young adult women in the prison system.
For my research project, I decided to focus on the relationship between developmental assets and sexual health outcomes. Specifically, I examined the association between a young adult’s self-reported “sense of purpose” and several adverse sexual health outcomes. It was an invaluable experience for me to develop a clinical question, look at a national data set (the Growing Up Today Study), and design my study. I have had wonderful mentorship throughout the process. I wrote a successful grant for the Aerosmith Endowment Fund which allowed me to hire a programmer for the project as well. I was privileged to travel to Washington DC for the annual LEAH conference, during which I shared my research project and got to hear from other LEAH fellows from around the country. The wide variety of topics presented by the other fellows—such as community gardening in Seattle, and rural reproductive health clinics in New Mexico—made me think more broadly about the emerging issues of adolescent health.
My clinical training has also been comprehensive and varied. The majority of my patients are primary care patients in our Adolescent/Young Adult Medicine program. An important part of our training is also the management of two specialty populations: patients with eating disorders, as well as reproductive/endocrine issues. Because I came to fellowship with the ability to speak Spanish, and a specific interest in serving the Spanish-speaking population, I was able to have clinical time at Martha Eliot Health Center, a satellite of Boston Children’s Hospital in a primarily Hispanic neighborhood. Working at a community health center has been a wonderful complement to seeing patients on the main campus of Boston Children’s. Caring for patients at Martha Eliot has allowed me to think much more meaningfully about teen health issues such as teen pregnancy and violence; both are issues that require effective clinical care on an individual level, as well as population-based approaches.
Hearing my patients’ accounts of community violence has been particularly moving. So many teens have described losing friends to violence, and feeling the constant scourge and threat of violence in their everyday lives. I felt moved to explore the issue of gun violence prevention, and my fellowship has afforded me the opportunity to do that. I have been able to learn about and write about this subject, and most recently I had the chance to speak to state legislators about teens and gun violence.
My time in the LEAH fellowship has most certainly helped to shape my future career trajectory. Based on my experience exploring many aspects of academic adolescent medicine, I feel most committed to clinical care, as well as advocacy work for my patients, and so I hope to find a position that allows me to combine these interests. I have learned a great deal from this fellowship. I have been fortunate to receive attentive mentorship from a variety of disciplines that has hopefully made me a better clinician, researcher, teacher, and advocate. I have been well-supported by my division as I have explored issues that have grabbed my interest. This, in particular, has taught me that the highest-quality work that I can produce comes when I pursue projects that engage me intellectually as well as emotionally. I hope to have this luxury as I continue working in adolescent medicine.
As an Undergraduate student at James Madison University, I am working towards a Bachelor of Science degree in Public Health. This past summer (2014) I had the privilege of participating in the Pathways for Students Internship Program, working under for HRSA, in the Maternal and Child Bureau (MCHB), under the Division of MCH Workforce Development. While unsure of what I wanted to pursue specifically in Public Health, this opportunity has greatly shaped my desires of pursuing a Masters of Public Health in Maternal and Child Health or Nutrition. I was excited that I would be able to acquire knowledge about a specific field within public health before I started exploring different focuses of public health graduate programs. While working in DMCHWD, I was provided with the opportunity of gaining many life-long skills for the professional work-setting. I was fortunate to be able to simultaneously work on many projects which shadowed what many public health analysts do on a daily basis. Through my work on various projects this summer, I learned that a huge number of meetings, conference calls, emails, and other vehicles of communication are necessary to accomplish any task.
Although my undergraduate education has taught me what public health is, this internship has directly exposed me on how to properly apply these educational skills; some of those skills including critical thinking to performing data analysis, enhancing my writing skills, learned how to use SharePoint, and increasing my cognizance on Maternal and Child Health through attending many meetings, conference calls, and life course perspective seminars guided by Dr. Lu. While one of my main long-term projects included collaborating with the SPH program officer within the division to revise a Funding Opportunity Announcement (FOA) for the Schools of Public Health grant competition for Fiscal Year 2015, I enhanced my ability to critically think and write by turning meeting notes into a 3-page Concept Paper on enhancing trainee engagement through various communication vehicles. While I worked on other small projects, the one project that was most intriguing to me was analyzing data through Excel on multiple Performance Measures of MCH Workforce Development Grantees to calculate the percentage of graduates of MCHB long-term training programs who are engaged in work related to MCH populations for updating the division’s facts sheets.
Overall, I had a wonderful experience as an intern with DMCHWD at HRSA. The DMCHWD staff allowed me to participate in a variety of different meetings & projects and always explained to me the often complicated governmental public health processes. I met many intelligent & experienced public health professionals who all helped me grow and learn over the duration of my internship. I am very grateful for this experience and am confident that it has prepared me well for a future career in the public health field.
As an undergraduate at UCLA, I participated in the Pathways for Students into Heath Professions (PSHP) program. As an undergraduate, I knew that I wanted to working in community health, specifically in MCH. However, I was not aware of the pathway and the knowledge based required for a professional MCH career. PSHP provided faculty mentoring, summer internships and various educational opportunities to cultivate my professionalism and understanding of maternal and child health. One of the biggest lessons I learned as a PSHP student is an understanding of the social determinants of health and their effect on maternal and child health. I believe having that knowledge foundation has helped me tremendously throughout my public health coursework and career trajectory. Likewise, PSHP developed my interest in obtaining a graduate education. In May 2013, I received a Masters of Public Health from the University of Illinois, Chicago, with a focus in community health. During my MPH coursework, my capstone research centered on childhood obesity in the 77 community neighborhoods of Chicago, IL. With assistance from the Consortium to Lower Obesity in Chicago Children (CLOCC) and the Public Health Institute of Metro Chicago, I was able to acquire data to better understand the impact of school-based obesity programming on community neighborhoods childhood obesity prevalence.
Since the completion of my MPH program, I have returned to UCLA to obtain my nursing licensure. My career goals are to work as a public health nurse with a focus in vulnerable maternal & child populations. PSHP has continued to help me further my training, career and MCH professional identity and I look forward to future collaborations with MCH Pipeline Program.
Natasha Graves of Pennsylvania is an alumnus of Howard University. She received a Bachelors of Science (B.S.) in Health Education in May 2012 where she graduated Phi Beta Kappa and Summa Cum Laude with a 3.81 GPA. Recently, Natasha became a Certified Health Education Specialist. Currently, Ms. Graves is graduate student working towards a Masters in Public Health at UCLA’s Fielding School of Public Health, with a concentration in maternal and child health. Ms. Graves exemplifies the need and benefit of HRSA’s funding to encourage minorities to work in public health fields.
Natasha tells of her experience: “Participating in the MCH Pipeline Training Program at Howard University, entitled Howard University’s Pathways to MCH Professions, was the best part of my academic undergraduate career. The MCH program helped me not only enhance my skills in the field of public health and give me the knowledge I needed to pursue a career in public health, but also enabled me to realize that maternal and child health is my true passion. From the program, I realized I want to work on maternal and children’s health disparities, specifically addressing the issue of infant mortality. There is no reason for women and children to be dying, when the cause is preventable. The children who are subject to becoming an infant mortality statistic need advocates. Access to health resources, adequate nutrition, and clean water should not be reasons for infants to die before they actually begin to live. I want to work to give those women and children a chance to live their lives to their fullest potential. The program also gave me a wealth of both career and networking opportunities that have been extremely useful in both my professional and academic life. I participated in the MCH Program for 2 ½ years, which was a true benefit. Howard’s Pipeline to MCH allowed me an opportunity to travel to the annual CDC MCH Epidemiology Conference in December 2010, network with local, state and federal MCH professionals, learn about research being done in the field, as well as talk to faculty from schools of public health. I was also able to participate in a field practicum shadowing experience and meet MCH public health professionals from the DC area. The program has not only inspired me but also exposed me to concepts that I am currently studying in my graduate program. I have found my niche working towards my Masters in Public Health at UCLA’s Fielding School of Public Health, with my curriculum focusing on maternal and child health because of the Pipeline to MCH Program.”
As an undergraduate student at UCLA I knew that I wanted to pursue a career that gave me the skills and knowledge to empower and build resilience within communities and individuals. I was fortunate to be part of the UCLA Pathway for Students into Health Professions (PSHP), which exposed me to the wide-range of maternal and child health issues. PSHP also opened my networking opportunities and allowed me to make connections with leaders in the field of maternal and child health. Learning about health disparities and the many factors that influence the health of mothers and children was enlightening and I knew that I wanted to be part of the movement that improved these outcomes. The connections and knowledge that I was exposed to as an undergraduate motivated me to pursue a dual Masters degree in Public Health and Social Welfare at UCLA.
Public health and social work issues are multidimensional and intrinsically related because diverse social factors affect a person’s well-being. I strongly believe that dual Masters in Public Health and Social work is a wonderful fit for my career goals because I would like to develop evidence-based intervention models that can improve the lives of women and children living in low-income communities. Specifically, I am interested in the field of family planning, and would like to work with Latina and African American teenagers and young women. The deepest satisfaction in all of my work is facilitating positive change within families and communities. I am so grateful to have had the opportunity to be part of Pathway for Students into Health Professions for giving me the knowledge and foundation on which my career will be built on.
Yesterday I was overwhelmed with joy as I heard three adults with autism speak of their successful college experiences and career aspirations (civil engineering, sports education, and childcare). They all shared how excluded they were in school and how few friends they had growing up. In college they found a niche and were all enjoying a more rich social life. One of the speakers spoke of how he was frequently bullied. I rarely hear the word “bully” without being flooded with numerous intense memories. One of the most poignant was when I was in the ninth grade. As I was gathering my books after school, a circular crowd formed around an escalating conflict, as furtive onlookers anticipated first blood. To my horror, an acquaintance, Jason (a fellow ninth-grader with cerebral palsy, intellectual disability, limited speech, restricted range of motion of both arms and legs, bilateral abductor lurch) was in the middle of the circle. What added to my shock was the starting fullback of our football team was pushing him, laughing and trying to get Jason to hit him so he would feel justified in pulverizing him. Impulsivity is often looked down upon, but as I left my brain at my locker with my books, my body and mouth was between Jason and our vigorous fullback. I told Jason to go home. I had to yell it over the din for him to hear me. After my third emphatic iteration he reluctantly walked away as I restrained his aggressor. My mouth then turned to Mr. Fullback and the crowd. Shame and ridicule were momentary companions and we thrashed until there was no more taste for Jason’s injury.
Why Developmental-Behavioral Pediatrics? Perhaps it is because my impulse has always been to come to the aid of those in need. Maybe I watched too much Spiderman as a child. Or perhaps being taught frequently that true greatness comes through service to my brothers and sisters, which is everyone.
Why Harvard and Boston Children’s Hospital? Research opportunity, diversity of mentors, diversity of served patient population, reputation, a positive interview experience, and local sports teams (GO RED SOX!) drew me to the program at Boston Children’s Hospital.
I am an active duty officer in the Unites States Air Force. When I am done with fellowship I will be assigned to work in a location based on the needs of the Air Force (most likely Germany, Alaska or England). My future job will be both clinical and administrative, with no protected time for research. My fellowship will have no direct impact on my immediate trajectory due to prior obligations with the Air Force, but will absolutely elevate my professional capacity to care for children. Due to the high quality of my training and my exceptional research opportunities, it will increase the likelihood of getting assigned at a residency program and training future residents for the Air Force. This training is clearly opening doors for opportunities in academic medicine after I conclude my full time service to our country.
I am tremendously enthusiastic about my research project, the part I fretted about most before I started fellowship. I’ve recently submitted my first abstract entitled, “Item-Level Analysis Demonstrates Significant Differences in Word Production and Understanding at 12 Months of Age in Children at Risk for Autism.” We’ve found that there are qualitative language differences measurable at 12 months of age when comparing typically developing and ASD children. We found that children with ASD have a significantly lower likelihood to produce “Hi” which may be early linguistic evidence of reduced social communication. We also found that children with ASD demonstrated a significantly higher likelihood of producing the word "block" as well as understanding words related to animals, toys and objects. This may be an early linguistic manifestation of restricted, repetitive interests or activities. We have recently formalized collaboration with the Infant Sibling Projects at the University of Calgary, University of Pittsburg, and the University of California San Diego. With this much larger pool of data will stabilize our initial 12-month estimates. Answering a novel research question and working with a lot of bright people is stimulating and FUN!
Biggest Lessons learned – Developmental-Behavioral Pediatrics is awesome! Research can be fun once you’ve found a direction and have a good mentor. The more I learn the more I realize how little I know, and how much more there is to discover and do.
I became involved with Illinois LEND in the fall of 2010 as the first Self-Advocate trainee at the LEND at Illinois. By being a part of LEND self-advocates have a chance to experience leadership in a new way. We learn about the medical part of disability, which you would not get a chance to learn from any other leadership training, and to see how other health professionals interact with people with disabilities. Self-advocates can learn a lot from the clinical experiences in the LEND program. While self-advocates may have significant knowledge of policy, leadership, and how to advocate for issues that may come up in legislation, we don't have as much experience in the clinical setting. LEND provides an opportunity to see this side of disability. This experience gives self-advocates a way to learn more about other disabilities than their own so when they work with other self-advocates they will know how to include and support them in other projects or groups they do.
LEND also gives the other trainees a chance to learn from the point of view of a person with a disability. A lot of what people know about disabilities comes from books, rather than first-hand experiences with people with disabilities. I think it is important for self-advocates to be involved in LEND to help provide the perspective of people with disabilities. This way self-advocates and students can learn together. Not only can self-advocates be teachers, but they can also learn from the other trainees and presenters.
I hope other LEND programs will give self-advocates an opportunity to be a LEND trainee. Both self-advocates and other trainees learn from each other and are able to share their experiences with each other. LEND trainees are able to take what we learned, work together, and use that knowledge in the community to be more influential in changing policy and legislation. This will help make a better world for people with disabilities.
I have had the privilege of completing an MCHB-funded Leadership Education in Developmental-Behavioral Pediatrics Fellowship Program at the Children’s Hospital of Philadelphia (CHOP). Before I left CHOP on my interview day I knew this was the right fit for me. Looking back there were really two reasons I felt this was the place to train, it was all about the people I met and the potential opportunities that were available for a trainee. The program provided me the opportunity to learn from a diverse and interdisciplinary group of faculty and other trainees and provided outstanding clinical and research training. Although I didn’t have a clear idea of what research or scholarly pursuits I wanted to pursue, the numerous doors for learning that were available along with experienced mentors to help guide my early career choices were all assets of the program that were unique and hard to miss.
During my three years of fellowship, I have worked with Drs. Thomas Power, Jennifer Mautone, and Nathan Blum on validating a new behavioral health-screening questionnaire to be used in primary care. I joined the cross-disciplinary study team and was able to learn about the inner workings of a research team and the integral role each member plays, organizing and running team meetings, as well as the nuts and bolts of data collection and management – most of which were fairly new concepts for me. As the initial phase of measure validation was concluding in the urban primary care offices, one of my mentors suggested applying for a Young Investigator Award through the Academic Pediatric Association (APA) and American Academy of Pediatrics (AAP) which could potentially fund a second phase of the study. Grant writing was not something I had any familiarity with, but with the collaborative effort and support of the study team it ended up an important turning point in my early research training. Fortunately our team was awarded the grant and suddenly I now had to use everything I learned with the initial validation and apply it in a more supervisory role. Writing an IRB application, submitting it for review to the scientific review committee, interviewing and hiring research assistants, creating meeting agendas, coordinating finances for the study itself and the research assistants involved, reporting to grant funders, amongst other tasks fell initially to me yet mentors and supervisors were always available for guidance and feedback throughout this process. I could not have planned it better myself – to first have the opportunity to join a fully functioning research team and then quickly apply what I had learned and establish a new research team was a truly invaluable experience.
In addition to the research training, MCHB funding provided me the freedom to pursue other areas of study. I have an interest in Bioethics and expressed to my mentors my interest in pursuing a Master’s degree in Bioethics at The University of Pennsylvania. Mentors in the program encouraged me to pursue this degree and helped me to jump the many hurdles necessary to successfully complete this Master’s Program during a busy fellowship.
My MCHB-funded training program emphasized the importance of remembering the perspective of the family in providing clinical care. This was one of the most important lessons for me personally. Families come to see a Developmental and Behavioral Pediatrician with a preface to their story and that story continues once they leave our office. A host of challenges have lead families to this point and numerous more await them once they leave our office. Navigating school districts or service providers and insurance coverage issues all while questions of their child’s prognosis and outcome persist are commonplace for our patients and their families. As much as I want to provide a parent or patient the tools to be well informed and a better advocate I have to remember where they are in the process of understanding those differences and the implications they hold for the family. As a trainee I worked with talented parent advisors and advocates who were a valuable resource and who are best equipped to remind clinicians of the importance of the perspective of the family in caring for children. Ultimately understanding the preface to a patient’s story may not make a clinician’s final report but there is a value in understanding the whole picture and this can serve as a catalyst to promote the right type of change to the next chapter of the child’s story.
Currently, as I am in the early months in my new position at The University of Texas Health Science Center at Houston and my experiences during fellowship have prepared me well to take advantages of opportunities in my new position. I have been recruited as a co-investigator and the prescribing physician for an NICHD funded study examining interventions for children with ADHD and Reading Disorders. Furthermore I am collaborating with the McGovern Center for Humanities and Ethics at The University of Texas Health Science Center at Houston and hope to build on my current work in bioethics.
I am the parent of a wonderful 7 year old boy with high functioning autism. He has changed my life for the better. I am now involved in an education program and work that is fulfilling. I am able to learn about developmental disabilities, affect family centered care, and from relationships with healthcare professionals. I have become an expert in my field, and been moved to further my education because of LEND. I have been an advocate for my son since birth. At a young age he received early intervention for speech delay and some physical problems. I noticed he developed some other behaviors that resembled autism. I was constantly told, “not to worry”, or that “he does not have autism.” When he was finally diagnosed with autism at 4 years old, I felt unequipped to help him. I remember asking myself “now what?” “What are the next steps after a diagnosis?”
I looked for resources and learning opportunities to help me learn how to strongly advocate for him, and get him the services and supports he needed. I found the LEND through one of the many emails I receive about resources. At that time I was a stay-at- home mom. I had to leave my career to manage my child’s care and also any school issues he was having. My husband works full time as a software engineer and supports us. I always wanted to go back to school on a graduate level. This program looked like it would help me to gain needed information on neurodevelopmental disabilities, and also influence providers on family centered care.
Through the LEND program I feel empowered. I never thought as a parent that I had a real voice. I am the expert on my child and I am valued. Parents should know that they are vital members of their child's health care team. I have gained valuable relationships with practitioners in this program and it has been a mutually beneficial experience.
How has your training program experience influenced your future career trajectory?
I have learned that I can be a leader, and affect change. I am a graduate student in a program at another university. I am studying Applied Behavior Analysis (ABA), and will complete my program and receive my Masters Degree in the summer. I am going to sit for my Board Certified Behavior Analyst (BCBA) exam in May. I am finishing up my 1500 hours of fieldwork under the supervision and guidance of a BCBA. I feel I would not have pursued this course without being involved in LEND. I feel I can help many more parents of children like my own son as an advocate and a provider.
Through LEND, I have been able to be involved in research. I have completed a research poster on barriers that minority face in getting an autism diagnosis and treatment. I have also been able to present my findings at conferences in different states. I would not have had these opportunities without the program. I now have a survey under IRB review. I would like to be able send this survey out to families of children on the spectrum to find out specific barriers to treatment they face. It is my hope that with the data I will be able to publish my findings.
My hope is to use further develop the skills I have acquired through this program so that I can continue to be involved in research, community outreach, as well as be a subject matter expert on Autism and cultural competency, and health disparities.
It is my hope to be accepted to a doctoral program so I can research behavioral health, and health disparities. My ultimate goal is to work for a University and work on increasing cultural competency and decreasing health disparities for minority populations. My specific area of expertise would be Autism.
What is one lesson learned from your time in the LEND Program?
Through LEND, I learned that anyone can be a leader! I am a servant leader. My leadership evolved from my desire to serve others parents and children with autism. I believe in being an expert in your field and empowering others to develop their gifts. I felt I was “just a parent” before LEND. I feel I am a parent with a purpose and I have much to give. My work has not only affected my family, but others as well. I have been able to provide resources for others and be an advocate. I plan on advocating for my son until he is able to do it himself. I am an accidental leader, but a leader nonetheless.
As an incoming Masters in Public Health (MPH) candidate at Boston University School of Public Health, I worked as a summer intern at the Department of Health and Human Services/HRSA in the Maternal and Child Bureau (MCHB) Division of MCH Workforce Development. As a maternal child health (MCH) concentrator I was excited that I would be able to acquire knowledge about the field before I started graduate school. My primary area of interest was research in the prenatal care in minority populations. While interning at MCHB, I gained invaluable knowledge about MCH policies, the life course approach, current MCH initiatives, and technological skills. During this time, I developed stronger leadership skills and enhanced both my communications skills along with my ability to multi-task. I attended conferences and seminars on child health including the Secretary’s Advisory Committee on Infant Mortality the First Focus Children’s Budget 2012 on Capitol Hill, and the Maryland Block Grant Review.
I worked on a variety of projects within Workforce Development. I collaborated with staff members in the redesign of the MCH Navigator website, which is a MCH professional supplementary learning website. I also added new learning opportunities to the website and cataloged existing trainings. In addition, I wrote the MCH Navigator monthly electronic newsletter. I worked with the Division of Research, Training and Education (DRTE) and wrote a literature review on autism spectrum disorder in underserved communities, which will be used in a paper for publishing. I updated the Microsoft Office Access database, of all currently funded MCH Training program, abstracts. On a daily basis I interacted with technical staff in transferring recent information to the MCH website. This experience was an excellent gateway to the MCH field. I was privileged to have the opportunity to learn about the MCH Navigator, which serves as a huge information resource for trainees and professional alike on targeted MCH information.
Soon after I graduated from Indiana University-Bloomington, with a Bachelors of Science in Public Health, I was given the opportunity to work as an intern at the Health Resources and Service Administration (HRSA) Maternal and Child Health Bureau (MCHB) in the Division of Research, Training and Education (DRTE). During my time at the MCHB I worked on a research project with the purpose to highlight the need to address disparities among Hispanics in the MCH workforce. Particularly, the research focuses on identifying MCH training programs and recruitment practices for potential MCH Hispanic trainees across disciplines to ensure a sustained commitment to the diversity of MCH faculty and trainees. I was also involved in other activities such as reading assignments, view various archived presentations and learn from distance MCH courses through which I gained a better understanding and appreciation of the field of public health at MCH generally and the Bureau specifically. As a part of the internship, I also had the opportunity to participate in networking activities with Hispanic Public Health leaders and Hispanic National Leaders in the Washington, DC area by attending luncheons, staff meetings, interviews and conferences.
Through these opportunities and my exposure on the different aspects of public health in the federal sector I discovered that my passion is in public health, specifically in improving the health and well being of women and children. I believe that my experience and the projects that I worked on during my internship at MCHB improved my knowledge, skills, and abilities so that I will become more competent in addressing health disparities among under-represented communities. Overall, my experience at MCHB was great, I had the opportunity to meet extraordinary people with a wonderful and positive attitude who worked with me and provided me with their guidance and support throughout my time at MCHB. I am very thankful for this learning experience and I am confident that my experiences at DRTE have prepared me to continue to pursue a graduate degree in public health with a concentration in Epidemiology.
This past year I had the honor of becoming the Rose F. Kennedy University Center for Excellence in Developmental Disabilities (UCEDD) first LEND Law Fellow. As a student at Cardozo School of Law in Manhattan, I heard of this great opportunity through a friend who knew I had my heart set on disability policy and advocacy. Looking back on my time with Children's Evaluation and Rehabilitation Center, (CERC) I can easily say that it was the most rewarding, and eye-opening professional experience of both my undergraduate and law school career. I was not only amazed by how much I learned about UCEDDs and the innovative research being done in the field developmental disabilities, but also by how many influential, and welcoming mentors I encountered – including attorneys, physicians, CERC directors (past and present), occupational therapists, physical therapists, psychologists, administrators, LEND fellows, and the most motivated and inspirational self-advocates I have ever known. Thanks to my attendance at LEND lectures, team meetings, and various conferences in DC, NYC, Albany, and Delaware, I was able to experience the value of interdisciplinary collaboration firsthand, as well as learn about an array of research topics from top-notch experts and academic scholars.
Thanks to my wonderful supervisors - Ms. Sheryl Dicker and Dr. Robert Marion - I learned so much about myself as a writer, researcher, and, most of all, an advocate. During my time as a LEND fellow, I completed several projects - which included writing a series of memos on the legal issues surrounding transition from special education to adulthood, and the challenges faced by individuals with developmental disabilities during the process, as well as a memo to the staff at CERC about the right of parents to obtain independent educational evaluations relating to special services for their children. I also co-authored several articles on "Autism Spectrum Disorder and the Law" for the publication Autism Spectrum News. Lastly, this past May, I presented my final project to CERC staff, focusing on the housing options available for adolescents and adults with disabilities and the fight to support community living.
Starting in January I will be relocating to Washington D.C. to complete a one-year Association of University Centers on Disabilities (AUCD) Disability Policy Fellowship. I could not be more thankful for the support of my mentors at CERC, nor more excited, to have this once in a lifetime opportunity. At AUCD I will be working alongside Kim Musheno, Director of Legislative Affairs, and Dawn Rudolph, the Director of Administration on Developmental Disabilities (ADD) Technical Assistance. In this role I hope to bring to light, and add to, the pool of knowledge I have gained from CERC. I realize that in the field of disability policy, I will never stop, or want to stop, learning, and will do everything in my power to advocate for positive change in disability legislation and policy.
Kristina Majewski was selected as the 2012 AUCD Disability Policy Leadership Fellow. In her LEND fellowship, she focused on research related to the transition of individuals with intellectual and other disabilities from special education to adulthood, as well as on the state of available housing options and deinstitutionalization efforts for this population. As the proud sibling of two adolescents with special needs, she has spent the past ten years working as an active member of various advocacy groups and volunteer agencies that specialize in developing community activities, administering legal aid, and providing various resources for individuals with disabilities.
My experience at the Maternal and Child Health Bureau Division of Research, Training and Education (DRTE) this summer was a period of valuable growth. As a Maternal and Child Health Masters in Public Health (MPH) trainee at the University of Minnesota, I am interested in policy and macro level work. I was eager to expand my knowledge in application of federal level policies and Title V programs -- programs that are funded and administrated through MCHB. Interning at DRTE expanded this understanding, allowing me the chance to work in a setting that aims to further professionals and trainees' careers. My main project at the Bureau was working on an online learning portal for MCH professionals, called the MCH Navigator. Through screening and summary write-ups, I was able to contribute to the preliminary launch of the site. This continued editing as well as implementing a vetting project for the site helped me to fine-tune my organizational abilities. The vetting project also gave me the opportunity to implement my first evaluation process, a skill-set I learned as a student in Minnesota. I most enjoyed organizing the preliminary data and presentations, which allowed me to see my work and collaboration with others assembled into one final output.
The staff and my mentors at DRTE have helped push my pubic health knowledge into application. They supported me in visiting other division heads, and participating in outside meetings, one including a Congressional hearing with the Association of Maternal and Child Health Programs (AMCHP) on autism funding reauthorization. I also had the opportunity to participate in HRSA level meetings. These, in addition to my main activities, have helped further my training, career and MCH identity. I look forward to continuing my studies and collaborating with the professionals I made contact with over future years.
As I was preparing for my fulltime internship with the Division of Research, Training and Education (DRTE) at the Maternal and Child Health Bureau (MCHB) one year ago, I thought a lot about the organization of the federal executive branch, the relationship between states and federal policies, and the challenges of working in government. As a Masters of Science in Public Health (MSPH) candidate at the MCH Training Program at the Johns Hopkins School of Public Health, I knew that my time at DRTE would allow me to explore potential career paths and better prepare me for the impending job search process. What I did not realize was how much of an impact my internship would have on my professional identity and confidence as I began a career in maternal and child health (MCH).
My primary responsibilities at DRTE centered on the MCH Navigator—a new web-based learning portal for MCH professionals. During my twelve months with the Division (six months full-time, the rest part-time), I contributed to a variety of aspects of this project, including searching for and screening online learning resources, coordinating workgroup meetings, developing and revising draft documents, and making suggestions about the structure and substance of the MCH Navigator system. I also participated in strategic planning activities for the MCH Training Program; a task which required me to draw both on my time at DRTE and my experiences as an MCH Trainee at the Johns School of Public Health. I was also involved in a number of smaller projects, including the drafting of materials for the MCH Training website and helping to brainstorm better ways of that DRTE could communicate directly with MCH Trainees. These experiences built not only upon the knowledge and skills that I gained in my academic program, but also allowed me to further develop my "soft" skills, including interpersonal communication, organization, and critical thinking. The individuals with whom I worked—both DRTE staff and professionals from partner organizations and institutions—were extremely warm and welcoming, making this past year both an enjoyable and rewarding experience.
As I leave DRTE, I recognize that the increased knowledge and appreciation that I gained for the field of MCH and the intricacies of the federal government. I know that the relationships I have developed—whether they be personal or professional (or sometimes both)—will stay with me as I continue to explore the field of maternal and child health.
As a graduate student in the Tulane School of Public Health, I was given the opportunity to work as an intern at the Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB), in the Division of Research, Training and Education (DRTE). All of the DRTE staff were extremely welcoming and gave me many options for projects I could help with over the summer.
One of my main tasks was to formulate a draft of a HRSA Healthy Weight Strategic Plan. Working with two other interns in different Bureaus, we developed a background section about current obesity trends and initiatives. We also included information about HRSA's mission and goals, the functions of the many HRSA bureaus, and a chart based on the Recommendations in the White House Task Force on Childhood Obesity Report laying out actions HRSA could possibly take.
I also compiled Performance Measure data from10 different grantee programs managed by DRTE. I edited and updated charts to display this information, to be used in presentations to the grantees as a record of their achievements over the past few years.
Additionally, I helped edit the Background section for the LEND guidance, helped prepare presentations for HRSA staff to present at national conferences, participated in many planning conference calls about the 75th Anniversary of Title V, Bright Futures publications, a grant proposal review, and upcoming meetings. I was able to attend many different conferences throughout the year, including the ASTPHND Annual Meeting, the Diversity Peer Collaborative Conference, and a Kaiser Family Foundation presentation about Global Health.
Through my work on various projects this summer, I learned that a huge number of meetings, conference calls, emails, and other communications are necessary to accomplish any task. I was impressed by the frequent cross-bureau communication and joint efforts undertaken by HRSA staff from different offices and divisions. Even though this wide range of contributors often slowed the process of accomplishing projects, the many viewpoints they all bring to the table seems to be a great asset to the work being done.
Overall, I had a wonderful experience as an intern at DRTE, MCHB. The DRTE staff allowed me to participate in a variety of different activities and always explained to me the often complicated governmental public health processes. I met many unique people who all helped me grow and learn over the duration of my internship. I am very grateful for this experience and am confident that it has prepared me well for a future career in the public health field.
The MCH Pipeline Training program has been a major help to me. All throughout my undergraduate career I was not sure of what my career choice was in healthcare. After becoming a part of the MCH program, I developed an interest for maternal and child health and nursing. Within the program, Mrs. Catrina Waters prepared me for moving into the direction to pursue a degree in nursing and work in underserved communities. The program offered a lot of career networking opportunities and ways to excel professionally. I had the opportunity to meet Dr. Glenda Smith, a nurse practitioner from UAB. I was able to have mock interviews and resume and personal statement preparation. The MCH Pipeline Training program has been a major help in assisting me in finding my passion in healthcare. I would strongly recommend it to anyone.
Ms. Caroline Stewart has been accepted into the University of Alabama at Birmingham Accelerated Masters Program in Nursing. Caroline is a very dedicated and academically successful young lady. She has participated in the ASU Pipeline Training Program for 3 ½ years. She is a native of Racine, WI. Caroline currently lives in Birmingham, AL. She is a biology pre-health major. She has maintained 3.0 or above G.P.A. in her years at Alabama State University. She is a member of Beta Kappa Chi National Honor Society and Zeta Phi Beta Sorority, Incorporated.