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Division of Services for Children with Special Health Needs (DSCSHN) Awards 2023

National Center for a System of Services for Children and Youth with Special Health Care Needs (CYSHCN)

This funding helps implement the Blueprint for Change: Guiding Principles for a System of Services for CYSHCN. The awardee will assist Title V programs and other key partners who serve CYSHCN and their families by implementing strategies in four critical areas: health equity, CYSHCN and family well-being and quality of life, access to services, and financing of services.

Grantee Recipient City State Award
American Academy of Pediatrics Itasca IL $1,500,000 a year

NBS Propel (State Newborn Screening System Priorities Program)

This funding supports 28 state/territory NBS programs to:

  • Address state/territory-specific challenges and pursue priorities to enhance, improve, and expand their NBS System
  • Address timely collection and reporting of NBS specimens to improve early diagnosis and treatment for individuals with heritable conditions
  • Support long-term follow-up for individuals with Severe Combined Immunodeficiency (SCID) and other NBS conditions
  • Link public health agencies and clinicians and meaningfully partner with families
Grantee Recipient City State Award Amount
American Samoa Department of Health Pago Pago AS $ 345,000
Arizona Department of Health Services Phoenix AZ $ 343,300
Colorado Department of Public Health and Environment Denver CO $ 345,000
Connecticut Department of Public Health Hartford CT $ 345,000
Georgia Department of Public Health Atlanta GA $ 345,000
Iowa Department of Public Health Des Moines IA $ 317,616
Indiana Department of Health Indianapolis IN $ 345,000
Kansas Department of Health and Environment Topeka KS $ 326,554.60
Univ of Massachusetts Chan Med Sch Worcester MA $ 345,000
Michigan Department of Health and Human Services Lansing MI $ 345,000
Minnesota Department of Health St. Paul MN $ 345,000
North Carolina Department of Health and Human Services Raleigh NC $ 344,955
Nebraska Department of Health and Human Services Lincoln NE $ 345,000
NH, DHHS, DPHS, MCH Concord NH $ 340,000
NJ Department of Health Trenton NJ $ 345,000
New Mexico Department of Health Santa Fe NM $ 344,685
Health Research, Inc./NYSDOH Menands NY $ 345,000
Ohio Department of Health Columbus OH $ 344,996.05
Oklahoma State Department of Health Oklahoma City OK $ 345,000
Oregon Health Authority - State Public Health Laboratory Hillsboro OR $ 345,000
University of Puerto Rico Medical Sciences Campus San Juan PR $ 320,471
Rhode Island Department of Health Providence RI $ 345,000
SC Department of Health and Environmental Control Columbia SC $ 345,000
Tennessee Department of Health Nashville TN $ 345,000
Texas Department of State Health Services Austin TX $ 344,879
Utah Department of Health and Human Services Taylorsville UT $ 341,962
Virgin Islands Department of Health Charlotte Amalie VI $ 345,000
The Board of Regents of the University of Wisconsin System Madison WI $ 156,113

NBS Excel (National Center for Newborn Screening System Excellence)

This funding supports one national organization to:

  • Provide leadership, technical assistance (TA), and quality improvement expertise to state NBS programs
  • Collect data to identify barriers to achieving health equity and access to NBS services
  • Enhance state performance in NBS
  • Provide subject matter expertise and training to promote meaningful engagement of, active partnership with, and leadership to families and/or individuals with heritable disorders
Cooperative Agreement Recipient City State Award Amount
The Association of Public Health Laboratories, Inc. Silver Spring MD $ 2,300,000

Learn more about our other programs for children and youth with special health care needs.

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