Our sickle cell disease programs are carried out in the following regions. With the regions, community-based organizations lead the follow up work. See our Sickle Cell flyer (PDF - 173 KB) for more information, including a map.
Northeast region
The treatment demonstration program is carried out through the Johns Hopkins University in Baltimore, Maryland.
Community-based organizations leading the follow up programs:
- Sickle Cell Disease Association of America/Philadelphia-Delaware Valley Chapter (PA)
- Children’s Sickle Cell Foundation, Inc. (PA)
- Sickle Cell Association of New Jersey, Inc. (NJ)
- Sick Cell/Thalassemia Patient Networks, Inc. (NY)
- Crescent Foundation, Inc. (NJ)
Southeast region
The treatment demonstration program is carried out through the University of Alabama at Birmingham.
Community-based organizations leading the follow up programs:
- Piedmont Health Services and Sickle Cell Agency (NC)
- University of Miami (FL)
- Sickle Cell Foundation of Georgia, Inc. (GA)
- James R. Clark Memorial Sickle Cell Foundation (SC)
- Sickle Cell Disease Association of American – Mobile Chapter, Inc. (AL)
- Sickle Cell Foundation of Tennessee (TN)
Midwest region
The treatment demonstration program is carried out through the Cincinnati Children’s Hospital Medical Center in Ohio.
Community-based organizations leading the follow up programs:
- Sickle Cell Disease Association of Illinois (IL)
- Sickle Cell Disease Association of America Michigan Chapter (MI)
- Ohio Sickle Cell and Health Association, Inc. (OH)
- Martin Center, Inc. (IN)
Heartland/Southwest region
The treatment demonstration program is carried out through the Washington University in St. Louis, Missouri.
Community-based organizations leading the follow up programs:
- Sickle Cell Association (MO)
- Baton Rouge Sickle Cell Anemia Foundation, Inc. (LA)
- Sickle Cell Marc Thomas Foundation (TX)
- Supporters of Families with Sickle Cell Disease, Inc. (OK)
Pacific region
The treatment demonstration program is carried out through the Center for the Comprehensive Care and Diagnosis of Inherited Blood Disorders in Orange, California.
Community-based organizations leading the follow up programs:
- Cayenne Wellness Center and Children’s Foundation Inc. (CA)
- Hemostasis and Thrombosis Center of Nevada (NV)
- Sickle Cell Anemia Foundation of Oregon, Inc. (OR)
- Sickle Cell Foundation of Arizona, Inc. (AZ)
- Sickle Cell Disease Foundation (CA)