Family-centered care is an approach to the planning, delivery, and evaluation of health care whose cornerstone is active participation between families and professionals. Family-centered care helps support the family’s relationship with the child’s health care providers and recognizes the importance of the family’s customs and values in the child’s care. To measure family-centeredness of care, the survey asked parents whether their child’s providers spend enough time with the family, listen carefully to the parents, make the parents feel like a partner in their child’s care, are sensitive to the family’s customs and values, and provide the specific information that the parent needs.

For a child’s care to qualify as family-centered, the parent needed to answer “usually or always” to each of the above elements. Overall, 64.6 percent of CSHCN received care that met all of the components of family-centered care.

More than three-quarters of CSHCN receive care that meets each criterion for family-centeredness. The component that is most often met is sensitivities to families’ values and customs, which was usually or always the case for 88.9 percent of CSHCN. The criterion that providers usually or always spend enough time with the child, on the other hand, was met for 77.5 percent of children.

Children’s receipt of family-centered care varies by family income, with those in the lower income categories being less likely to receive care that meets all criteria for family-centeredness. Of CSHCN with family incomes below the Federal Poverty Level (FPL), 52.1 percent received family-centered care, compared to 75.3 percent of children with family incomes of 400 percent of the FPL or more.

Race/ethnicity is also a factor in children’s receipt of family-centered care. Non-Hispanic White children are the most likely (71.1 percent), and non- Hispanic Black children the least likely (51.6 percent), to receive care that met all of the criteria for family-centeredness.

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