Funded Projects

Problem:

The current pediatric pulmonary workforce does not meet the healthcare needs of CYSHCN with lung disease. The UW PPC will improve the health of CYSHCN with lung disease by training leaders to provide interdisciplinary, family-centered, culturally competent, community based care.

Goals and Objectives:

Goal 1: Train healthcare providers in interdisciplinary leadership in a culturally competent, family centered model to meet MCH competencies and improve the health of children with chronic lung disease. Objective 1: Each year, recruit and provide exemplary leadership and clinical training to 7 long-term trainees and fellows in medicine, nursing, nutrition, social work and respiratory care, ensuring MCH leadership competencies are met. Objective 2: Each year, a minimum of 40 medium-term (40-299 hours) trainees will receive interdisciplinary leadership and clinical training through UW Pediatric Pulmonary clinics and programs. Objective 3: Each year, recruit PPC trainees and fellows that bring diversity in gender, culture, ethnicity, and disability to the training program utilizing innovative recruitment strategies. Goal 2: Provide an interdisciplinary, discipline-specific leadership training curriculum, focusing on culturally competent, family centered care that strengthens and enhances community based systems of care. Objective 1: Each year, provide a course with credit for long/medium-term trainees using current technology including distance learning methods and Web 2.0 applications. Provide a clinical practicum with inpatient/outpatient interdisciplinary experiences and community-based experiences at urban and rural sites. Objective 2: All long term trainees and fellows will negotiate/develop individualized learning plans utilizing a web based e-portfolio and complete a Leadership Capstone project focusing on the MCH Leadership competencies v.3.0. Objective 3: Each year, provide a collaborative leadership workshop series with other UW MCH Leadership Training Programs consisting of education or skill acquisition opportunities or sessions for PPC faculty, trainees and fellows, regarding MCH leadership competencies. Goal 3: Maintain a model center as a leader in training, research, and interdisciplinary clinical care for CYSHCN including those with lung disease. Objective 1: Each year, PPC faculty will create individual leadership development plans (ILDPs) to identify the skills they need to further develop their leadership, research, and/or teaching expertise. Provide opportunities for faculty to fulfill continuing education needs to support their ILDPs. Objective 2: Each year, PPC faculty will develop and execute a group project that engages faculty in activities to enhance leadership education in areas such as cultural competence, family centered care, public health, community-based systems of care, or transition. Objective 3: Parents, trainees, and community leaders will be involved in evaluation, development, and implementation of PPC clinical and leadership training curricula and experiences, and parents will be used regularly as consultants and teachers. Goal 4: Provide regional/national continuing education, technical assistance and advocacy to local, regional and national MCH health professionals, agencies and policy makers yearly, based on identified need. Objective 1: Each year, provide >50 continuing education activities to 4000 practicing health care, education, or social service professionals and Title V partners, including the use of distance learning technologies, by both faculty and trainees. Objective 2: Each year, faculty, trainees and fellows provide TA to >70 national, regional, state and local TitleV MCH/CYSHCN agencies, including MCH training programs and state MCH CYSHCN staff on local to national levels to reduce disparities in care and address the needs of CYSHCN, including lung diseases. Objective 3: Each year, faculty and trainees will advocate to better health outcomes and abate CYSHCN health disparities, including lung diseases, in response to new research findings/developments in MCH to >20 key stakeholders including legislators/advisory boards/coalitions/committees serving MCH populations. Goal 5: Develop/distribute educational resources and knowledge based on new research findings/developments in MCH to health care, education, public health, social service professionals and TitleV partners. Objective 1: PPC faculty, trainees and fellows will engage in research projects and/or needs assessments related to interdisciplinary training and care of CYSHCN. Objective 2: Faculty, trainees and fellows will develop, implement and evaluate 5 projects using current educational technologies to address identified needs and emerging issues related to CYSHCN in order to provide cost-effective education to trainees, fellows, practicing healthcare professionals and families. Objective 3: Each year, PPC faculty, trainees and fellows will produce a minimum of 10 publications and/or products including peer-reviewed journal articles, books, or book chapters and patient educational materials.

Methodology:

UW PPC faculty, consisting of core disciplines, pharmacy, home care and family involvement, is responsible for training, continuing education and technical assistance for community care providers, MCH and TitleV programs. Long-term leadership training is based on goals/objectives of the UW PPC core curriculum. Learning activities addressing competency areas are completed through Individualized Learning Plans collaboratively negotiated between trainees and faculty. The core curriculum includes 1) Online PPC graduate course "Interdisciplinary Care of Children with Special Health Care Needs," 2) Clinical practica experiences at American Family Children's Hospital and community based sites, 3) Participation in community outreach, mentoring by families, consultation and technical assistance, 4) Participation in research appropriate for training level/commitment, 5) Capstone leadership project. Innovative recruitment efforts and flexible training schedules will be created to enhance the number of qualified/diverse trainees from throughout HRSA RegionV. UW PPC will use local, regional and national resources to provide leadership faculty development in public policy/advocacy, cultural/linguistic competence, family-centered care and public health. In order to provide flexible and cost-effective training/continuing education, a number of online projects will be developed utilizing emerging technologies, including distance learning, web-based applications and social networking tools.

Coordination:

UW PPC works with State of WI Title V CYSHCN, Division of Health Care Financing, Newborn Screening, WIC and EMSC programs on training, program and policy development. UW PPC works with MCHB programs such as WI LEND, HRTW, UofMN CSHCN School of Nursing and School of Public Health, U of IL-Chicago MCH School of Public Health on training/program planning. UW PPC consults with local providers and cares for underserved populations through community outreach sites.

Evaluation:

Evaluation uses data on trainees, services, technical assistance and continuing education collected and reported to MCHB annually, providing data on activities, productivity analysis, and progress toward performance measure goals, process, and outcome objectives. Trainees and training are evaluated by faculty and trainees using quantitative and qualitative tools. Graduates are surveyed at 1, 5, and 10 years post graduation to measure leadership and interdisciplinary practice in the field of MCH.

Experience to Date:

Three of 7 long-term trainees completed training in FY 2010-11 including 1 family fellow. Training is guided by the MCH leadership competencies. 168 CE hours were provided to 3454 professionals; 2 CE programs were provided by long-term trainees. CE programs had local, state, regional, national and international reach. Technical Assistance was provided to 105 groups/organizations, including 81 Title V and health related partners. Clinical services were provided to 1270 CYSHCN using a medical home model of care. Trainees participated in 4 educational and 3 research capstone projects. One long term trainee and 2 PPC faculty completed a needs assessment with Wisconsin EMS providers to identfiy gaps in knowledge related to CSHCN. Two PPC faculty and 1 long term trainee are participating in the 2010-2011 Diversity in MCH Training Peer Learning Collaborative to improve recruitment and retention of racially and ethnically diverse faculty and trainees. PPC faculty and trainees revised the online graduate UW PPC course using the life course model to provide didactic education to long-term trainees and graduate students. Progress continues to be made in family involvement, including hiring a family faculty member, providing family education workshops, and continuing the PPC Parent Advisory Councils for CF and Spinal Muscular Atrophy. Families are actively involved in PPC activities. The national PPCs are members of AMCHP in order to advance our advocacy efforts.