The number of children with chronic pulmonary disorders is steadily rising. The goal of the PPC is to provide interdisciplinary leadership training for graduate level health professionals who will show leadership in health care for children with chronic respiratory conditions.
Goal 1: Provide interdisciplinary clinical training to health professionals focused on comprehensive, culturally-competent, community-based, family-centered care for children with chronic respiratory disease. Objective 1: To recruit and train two pediatric pulmonary fellows during the granting period and at least one long-term trainee who exhibits a high potential for leadership in the disciplines of nursing, nutrition, respiratory care, and social work in each fiscal year. Objective 2: Provide training through the core curriculum and clinical experiences in the etiology, diagnosis, evaluation, treatment, and prevention of chronic respiratory diseases in children and through this training foster skill development in an interdisciplinary team approach to the care of these children. Objective 3: To provide interdisciplinary training through the core curriculum and outreach clinics in working with culturally diverse populations, including how belief systems of the regional population (Native Americans, Hispanics, and Pacific Islanders) affect health practices and outcomes. Goal 2: Provide leadership training to assure and improve the health care and systems of care for CYSHCN and reduce disparities in care for underserved populations. Objective 1: To provide training to trainees and fellows in disease prevention and health promotion as it relates to respiratory disease of childhood with emphasis on administration, management, and community needs assessment through a core curriculum and planned projects/presentations. Objective 2: To provide training to trainees and fellows in working with minority populations of the region to decrease morbidity and increase wellness as it applies to respiratory diseases through community-based, outreach clinical care sites. Objective 3: To provide training to trainees and fellows in advocacy and the legislative process and in public and private systems of health care and public health policy through an interdisciplinary core curriculum and in exposure to the legislative process. Goal 3: Maintain an exemplary clinical and leadership training program with MCH values that serves children with chronic respiratory conditions with input and evaluation from families, trainees and leaders. Objective 1: Provide an opportunity for a parent or parents to act as a liaison for CYSHCN families and develop into a resource for families while also serving on the PPC Advisory Board. Objective 2: The UA PPC Advisory Board will meet annually to review, discuss, and evaluate the PPC program. Objective 3: The UA PPC will recruit parents to volunteer as a placement for trainees to shadow their special needs child to gain insight on the challenges of everyday life and evaluate the services offered to meet their needs. Goal 4: Increase MCHB infrastructure by providing consultation and technical assistance in the planning and implementation of services at all levels to assure quality and accessible healthcare for children. Objective 1: Offer training and educational conferences to school personnel on caring for CYSHCN with chronic respiratory illnesses and to work with school districts to increase education and understanding of these children in school settings. Objective 2: Offer training and seminars for skill enhancement and dissemination of new information to home health providers, case managers, community physician office personnel, WIC personnel, CRS (Title V) employees, and public health department personnel on caring for children with respiratory diseases. Objective 3: UA PPC will work in partnership with CysticLife, LLC to provide medical information and live web-based presentations addressing the needs of individuals with cystic fibrosis. Goal 5: Develop and disseminate new knowledge through interdisciplinary research focused on leadership training, health promotion and disease prevention, family resilience, and health care delivery to CYSHCN. Objective 1: Provide each fellow with formal training in research techniques, culminating in publication of a first-authored, peer-reviewed, hypothesis driven research project. Objective 2: Offer training to fellows and trainees on research techniques through the core curriculum and experience on research related activities. Objective 3: Provide training and experience in educational techniques geared toward expanding heath communications channels, through supervised teaching experience, presentations to the team, telemedicine presentations, and educational presentations to outreach clinics, and development of educational videos.
The UA PPC traineeship will incorporate both didactic and clinical experiences. This will include interdisciplinary clinics and leadership training. A capstone project will entail a needs assessment to focus on an educational project that will be developed and disseminated. Cultural competency and family-centered topics and experiences will be incorporated throughout the traineeship.
The UA PPC will coordinate with the UA Leadership Education in Maternal and Child Public Health grant and the UA LEND grant. These collaborations will increase the richness of experiences for trainees in the area of leadership development. The UA PPC will also collaborate with the Arizona Asthma Coalition to help disseminate education materials. Other collaborating organizations are outreach clinical sites for training and school districts for disseminating educational material and training.
Review will occur at the end of each fiscal year and steps taken to address objective-specific deviations will be planned. Trainee evaluations and National Information and Reporting System (NIRS) will also be used to evaluate that goals and objectives were met.
The UA PPC trained one fellow, one long term nutritionist, and 29 medium term trainees: 25 medical residents, one nurse, two nutritionists, one pharmacist, and one respiratory therapist. Faculty and trainees delivered clinical services to 13,572 patients. The UAPPC conducted outreach clinics to Fort Defiance, Chinle, Yuma, Sierra Vista, White River, Arizona and Gallup, New Mexico. The UA PPC faculty participated in 70 technical assistance projects and presented 87 educational presentations. There are 91 educational lectures and 19 projects available on the UAPPC website. From July 1, 20010 to June 31, 2010, the UAPPC website had 169,784 hits. The UA PPC hosts the Western States Pediatric Pulmonary Case Conferences monthly. The UA PPC hosted a Parent's Day Out for families with a loved one with cystic fibrosis. Collaborations have also included hosting the Mountain West Cystic Fibrosis (MWCF) Conference and being active in the MWCF Consortium. The UA PPC holds leadership roles with the American Lung Association of Arizona. Many of the UA PPC faculty attend Camp Not A Wheeze, an asthma education camp program for children. Dr. Kristen Archbold and her team are currently funded with a 5-year grant by the NIH to study the effects of positive airway pressure (PAP) therapy on behavior and cognition in school-aged children with obstructive sleep apnea.