The number of US children identified with an autism spectrum disorder (ASD) and with other developmental-behavioral challenges has increased dramatically over the past decade. Early experiences, gene-environment interactions and relationships determine children's health, wellbeing and life-course trajectories. Medical leaders are needed who understand the impact of social, biological, ecological, psychological, and cultural factors on children and families and who are skilled in family-centered, culturally and linguistically competent practices to enhance care and inform policy. Goals & Objectives: Goal 1: To improve the life course of children with ASD, DD and other DBP conditions, recruit and prepare DBP fellows from diverse backgrounds to become skilled in family-centered, culturally and linguistically competent care and to teach these skills. Obj. 1.1: Recruit & train five culturally-diverse DBP fellows/yr. as MCH LT trainees. Goal 2: Prepare fellows to evaluate, design, conduct and disseminate DBP research and inform public policy with MCH partners. Obj. 2.4 &2.5 Participate in HRSA sponsored DBPNet multisite research network and RI's Autism Research Consortium, RI-CART. Goal 3: Offer GME & CME for MCH interprofessionals. Goal 4: Prepare trainees to assume leadership roles by focusing on MCH leadership competencies. Goal 5: Provide technical assistance to MCH programs. Obj 5.1 & 5.2: In partnership, implement RI's Autism Summit Logic Model and RI's Race to the Top Early Learning Challenge. Goal 6: Increase the diagnosis of, or rule out, individuals with ASD or DD by reducing barriers to the delivery of early screening and coordinating interdisciplinary assessment through RI EI and DBP leadership. Goal 7: Improve access to evidence-based treatment for children with ASD, DD and other DBP concerns in partnership with RI's LEND, UCEDD, EI, DHS, & DOH.
1) Engage interprofessional faculty from across RI in implementation of a BLE:DBP curriculum emphasizing collaborative, family centered and culturally competent practices within a medical home and leadership skill development. 2) Maintain enrollment of at least five DBP fellows, 30 ILT and 120 STT yearly. 3) Include community and hospital practicum experiences, project development and dissemination. 4) Provide technical assistance and continuing education with MCH partners and families of children with DBP concerns including ASD & DD. HP 2020 Objectives: MCH-29. Increase the proportion of children with ASD and DD who are screened, evaluated, and enrolled in EI services in a timely manner. MCH-31. Increase the proportion of CSHCN who receive care in family-centered, comprehensive coordinated systems.
This project represents a collaborative partnership between RI's DBP Program, RI's LEND, DOH, UCEDD, Early Intervention programs, other community partners and with families.
Each proposed objective is observable, measureable, and attainable within the stated timeframe. The primary strategies for measuring progress toward the project's goals are written and reviewed formative and summative evaluation by faculty, trainees and stakeholders, products developed and disseminated, performance measures in NIRS and review of our logic model. Annotation: The purpose of this project is to enhance collaborative relationships and implement a DBP program training future leaders in DBP for RI and the nation. By developing this program and partnerships and disseminating information, we will increase capacity in RI for interdisciplinary child health professionals to utilize valid and reliable screening tools to identify children with ASD, DD and other DBP concerns, to diagnose or rule out these conditions promptly, and to provide integrated care and evidence based interventions to improve the life course of these children.