The adolescent and young adult (AYA) years are the second critical period of the lifecourse bringing challenges and opportunities with lifelong implications for health. Neuroscience suggests the AYA years are a unique developmental window for learning. Evidence-based services informed by developmental science (including neuroscience) can improve health through prevention and coordinated care for AYAs with chronic conditions including mental conditions. An AYA Health Research Network ('Network') can help integrate developmental science into health services research and translate findings into practice.
Goals and objectives:
Goal 1: Develop research agenda for a Network with four foci: (ObjA) integrating and translating neuroscience into AYA health practice and research; (ObjB) preventive health interventions; (ObjC) integrating services; and (ObjD) emerging issues. Goal 2: Advance research agenda by: (ObjA) developing Network infrastructure including: organizational infrastructure and inventory of tools; (ObjB) implementing collaborative research projects; (ObjC) disseminating project results to researchers practitioners and AYAs and their families; and (ObjD) leveraging network capacity to compete for funding; Goal 3: Develop research capacity AYA health field by: (ObjA) integrating new investigators into Network activities; and (ObjB) linking new investigators to national research activities. Proposed activities and target populations:
Four Research Teams (RT) will develop an agenda through background research and prioritization processes. The Network leadership (Steering Committee) will include Project Directors from seven leading AYA research training and clinical programs with one member from the Center for the Developing Adolescent at the University of California Berkeley (UCB) and the Society for Adolescent Health and Medicine (SAHM). This group will be responsible for approving the Network policies and setting direction for research agenda research protocols Network expansion mentoring and evaluation. An Executive Committee that includes PI co-PI Network coordinator UCB representative and RT Chairs will oversee daily AYAH-RN operations; a Network Coordinating Center at University of California San Francisco (UCSF) will manage daily AYAH-RN operations. Coordination:
An Advisory Committee will include representatives of three Maternal and Child Health research networks (Lifecourse Child Health Measurement and Developmental Behavioral Pediatrics) and the American Academy of Pediatrics the Association of Maternal and Child Health Programs Society for Research on Adolescence and SAHM's Patient-Centered Outcomes Research Project. Products:
Network will: create a research agenda and Network infrastructure; develop collaborative research projects; publish at least eight articles; create dissemination products including presentations webinars and other media; and submit two funding applications. Evaluation:
Network will combine Continuous Quality Improvement process outcome and impact evaluation methods to assess Network performance. Primary measures will include new research projects developed and publications. Additional qualitative efforts will assess extent to which (1) AYA research is transdisciplinary and (2) research is translated into practice.
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