Programs & Initiatives: A-Z

Jump to: A-C | E-G | H-L | M-P | R-U

A-C

Adolescent and Young Adult Health National Resource Center Program

The program promotes the healthy development, safety, and well-being of adolescents and young adults. It also addresses their major health issues by strengthening the capacity of state Title V Maternal and Child Health (MCH) Programs, and clinical providers and local public health agencies.

Alliance for Innovation on Maternal and Child Health Cooperative Agreement Program (AIM)

AIM consists of national professional membership organizations and the MCHB. Awardees represent professionals with decision-making responsibility for paying for, determining, designing, or implementing policy or health services affecting women and children. 

Autism Intervention Research Networks

The Autism Intervention Research Networks are an innovative approach to advancing autism research designed to motivate change in the field. The networks:

  1. set the national research agenda on specific topics of interest,
  2. provide professional development opportunities for junior colleagues,
  3. create tools and guidelines for researchers, practitioners, and families; and
  4. facilitate the translation of research into practice through the distribution of findings.

Bright Futures Pediatric Implementation

MCHB works to implement Bright Futures as the quality standard for pediatric practice, as well as in public health programming, and family and community health promotion strategies. Bright Futures Pediatric Implementation is meant to improve the quality of health promotion and preventive services for all infants, children, adolescents, and their families (including those with special health care needs).

Centers of Excellence in MCH Education, Science and Practice

The Centers work to improve the health status of women, infants, children, youth, and their families by supporting the training of public health professionals for leadership in maternal and child health. Programs support the development of the knowledge and skills needed to achieve MCH leadership competencies.

Children’s Healthy Weight Collaborative Improvement and Innovation Network (CoIIN)

This program develops and implements a Children’s Healthy Weight CoIIN, with the goal of increasing the proportion of children and young adults from birth to 21 years who fall within a healthy weight range. The program supports states in adopting evidence-based or evidence-informed policies and practices related to nutrition, physical activity, and breastfeeding. The Children’s Healthy Weight CoIIN will gather best practices, promote evidence-based and evidence-informed strategies, and increase resources related to nutrition, physical activity, and breastfeeding to support Title V programs. This will enable states to facilitate collaborative learning and adopt quality improvement principles and practices that support healthy weight behaviors.

Children's Safety Network Program

The program works to reduce fatal and serious injuries among infants, children, and youth by increasing the adoption of effective child safety interventions at the national, state, and local levels.

Collaborative Improvement and Innovation Network (CoIIN) on School-Based Health Services

The CoIIN works to improve the quality of services provided by school-based health centers (SBHCs) and comprehensive school mental health systems (CSMHSs); improve their sustainability; and expand their scale through the spread of innovative and practical policy and finance approaches.

Coordinating Center for Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy

This Center works to improve access to complete, coordinated, health care and other services through creative strategies including telehealth and telemedicine. The Center focuses on youth transition and provides outreach and education regarding epilepsy to stakeholders who serve children and youth with epilepsy. As a cooperative agreement between MCHB and the American Academy of Pediatrics, this Center provides support and technical assistance to grantees receiving funding through the Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy.

E-G

Early Childhood Comprehensive Systems Impact Program

The Early Childhood Comprehensive Systems Impact grants will utilize an intensive and targeted Collaborative Innovation and Improvement Network (ECCS CoIIN) in order to demonstrate two-generation performance improvements in family well-being and children’s developmental health by developing, testing, and adopting child, family and early childhood system indicators to measure population impact.

Early Detection of Vision Problems in Young Children

This program works to increase the detection and diagnosis of visual impairment in children from birth to age five. State public health agencies use and apply quality improvement practices to implement universal vision screening for preschool-aged children. The National Center for Children’s Vision and Eye Health at Prevent Blindness America provides for the development of a public health infrastructure to support a comprehensive system of vision care and eye health for young children.  The center provides national leadership in the development of guidelines and best practices for statewide strategies that ensure early detection, vision screening, and optimal eye health care for young children.

Emergency Medical Services for Children: Pediatric Emergency Care Applied Research Network (PECARN)

By conducting research studies in pediatric emergency care settings, PECARN helps to show the value of an infrastructure or network by determining whether treatments, transport, and care responses for ill or injured children are effective. The network seeks to ensure that interventions are responsive to the cultural and language needs of special populations, that services are family-centered and accessible, and that programs and projects represent a broad representation of culturally distinct and historically under-represented groups.

EMSC Data Center

The EMSC Data Center has two major functions serving as the Data Coordinating Center (DCC) that supports the PECARN grantees in study, data management, and analysis; and the National EMSC Data Analysis Resource Center (NEDARC) to support state grantees on the collection, management and distribution of EMS data.

EMSC Innovation and Improvement Center (EIIC)

A Quality Improvement Center to improve pediatric emergency medical services in both pre-hospital and hospital care settings. The EIIC guides states to integrate pediatric considerations into policy, make system changes where needed, and implement best practices to improve both the delivery and access children have to healthcare systems.

EMSC Program

The program aims to provide every child with access to the best possible pediatric emergency care no matter where they live or travel. By supporting the expansion and improvement of emergency medical services for children who need treatment for trauma or critical care, the program works to reduce child and youth severe illness and death.

EMSC State Partnership

A national project in all 58 states, territories, and the freely associated states to improve EMS system infrastructures by improving emergency systems of care throughout the United Stes so that all children receive the best emergency care possible, no matter where they are. Success is measured by the quality of care provided in the pre-hospital and hospital settings, and the ability for that care to be ongoing.

EMSC State Partnership Regionalization of Care (SPROC)

Funded projects work to overcome barriers to specialized pediatric medical and trauma services in tribal, territorial, insular and rural locations. These projects develop models for regionalized care; form collaborations and partnerships beyond state borders; and use technology and networks to improve quality and access to care for children in these locations.

EMSC Targeted Issue Grants

These national grant projects seek to improve the quality and outcomes of pediatric emergency care that can be applied anywhere. Projects often are reseach-focused and help translate research into practice or result in a new product or resource that can show its effectiveness and value to the field of pediatric emergency care.

Family Leadership in Language and Learning program

The Family Leadership in Language and Learning program works to ensure statewide Early Hearing Detection and Intervention (EHDI) systems incorporate elements that support families, parents and caregivers of deaf or hard of hearing infants and children who have been identified through newborn hearing screening. The goal is to also optimize language, literacy, and social-emotional development for children who are deaf or hard of hearing.  Program efforts are focused on 1) supporting state and territory organizations that provide support to families of deaf or hard of hearing children; 2) coordinating with the National Technical Resource Center for Newborn Hearing Screening and Intervention and state/territory EHDI programs in improving family engagement, partnership and leadership within the EHDI system; and 3) collaborating with established Deaf Mentor programs for families.

Family-to-Family Health Information Centers

MCHB awards grants to 51 statewide, family-staffed centers that are uniquely capable of assisting families of CSHCN. With first-hand experience navigating health care services and programs for CSHCN, Family-to-Family Health Information Centers provide services such as guidance on health programs and policies, education, training, support, referral services. They also provide outreach to underserved populations and collaborate with other organizations, family groups, and professionals.

Comprehensive Medical Care for Thalassemia

This program improves the identification of individuals with thalassemia and their access to quality medical services. Activities include development of recommendations for thalassemia-related screenings, diagnosis, education, regular blood transfusion and treatment for iron overload and medical complications resulting from chronic transfusion therapy.

Enhancing the System of Services for Children and Youth with Special Health Care Needs through Systems of Integration
The goal of this program is to improve the health of children and youth with special health care needs (CYSCHN). With a patient-centered medical home approach, states aim to increase the number of CYSCHN who receive coordinated services and support. To accomplish this, states have access to a national technical assistance center and a cross-state learning community. Through these mechanisms, states can coordinate policy, program development and analysis, and create partnerships across agencies, organizations, and programs at the state and local levels.
 

Guidelines for Women’s Preventive Services

The project improves adult women’s health across the lifespan by engaging a coalition of health professional organizations to recommend updates to the HRSA-supported Women’s Preventive Services Guidelines.

H-L

Healthy Start: Eliminating Racial/Ethnic Disparities

To reduce the rate of infant mortality and improve perinatal health, the program focuses on factors which influence trends in high-risk communities. Funded communities actively work together to improve perinatal health outcomes and reduce racial and ethnic disparities by using community-based approaches to service delivery, and facilitate access to comprehensive health and social services for women, infants, and their families.

Healthy Tomorrows Partnership for Children Program

The program promotes maternal and child health through innovative community-based projects that improve access to care and reduce health care costs. To achieve this, projects must represent a new initiative or an original component that builds on existing community resources. Projects usually target vulnerable and underserved populations and address four key areas:

  • access to health care,
  • community-based health care,
  • preventive health care; and
  • service coordination.

Regional Hemophilia Network Program

The program uses an integrated and collaborative regional infrastructure of hemophilia treatment centers (HTCs) to promote and improve the comprehensive care of individuals with hemophilia and related bleeding disorders or clotting disorders such as thrombophilia. The goals of the program are to: improve access to coordinated and comprehensive systems of care; strengthen HTC integrated care teams, and improve the health and well-being for individuals with hemophilia and related bleeding and clotting disorders and their families.

National Hemophilia Program Coordinating Center

The Center coordinates activities for a collaborative national infrastructure of regional hemophilia networks to promote and improve comprehensive quality care for individuals with hemophilia and related bleeding or clotting disorders such as thrombophilia. The goals of the Center are to work in conjunction with the Regional Hemophilia Network program to strengthen the capacity of the networks to improve care and to increase the evidence base on care for patients with hemophilia and related blood or clotting disorders; and track national, regional, and patient-level data to assess patient and health outcomes.

Home Visiting Collaborative Improvement and Innovation Network (HV CoIIN)

The HV CoIIN, the first ever national learning collaborative in the home visiting field, brought together 33 teams from local home visiting implementing agencies across 12 states and tribal entities to seek collaborative learning, rapid testing for improvement, and to share good results. This time-limited learning activity targets for improvement four major areas of concern to the federal home visiting program, breast feeding, maternal well-being, child development and family engagement. The HV CoIIN aims to improve services provided by home visiting grantees to achieve better, faster results for low-income and other at-risk families served under the Federal Home Visiting Program.

Home Visiting - Formula Grants

The program supports the delivery of coordinated and complete high-quality, voluntary early childhood home visiting services to eligible families. HRSA administers the program in partnership with the Administration for Children and Families (ACF).

Home Visiting - Innovation Awards

The program supports Federal Home Visiting Program grantees in the development, implementation, and evaluation of innovations to strengthen and improve delivery of coordinated and comprehensive high-quality voluntary services to eligible families. HRSA administers the program in partnership with the Administration for Children and Families (ACF).

Home Visiting (MCH-HV) Research Program

The program supports applied research relating to maternal, infant, and early childhood home visiting services to advance knowledge about the implementation and effectiveness of home visiting programs, which aim to improve life outcomes among mothers, infants, and young children.

Implementation Program for New Conditions on the RUSP (Pompe, MPS 1, and X-ALD)

The purpose of this program is to support states in increasing the number of newborns that are screened, identified, and referred for treatment for Pompe disease, Mucopolysaccharidosis I (MPS I), and X-linked Adrenoleukodystrophy (X-ALD), the three conditions most recently added to the Recommended Uniform Screening Panel (RUSP) by the Secretary of HHS. Activities include: increasing the capacity of state newborn screening programs to screen; providing education and training to newborn screening laboratory.

Improving Timeliness of Newborn Screening Diagnosis

The initiative acts to ensure newborns receive timely screening, diagnosis, and treatment for heritable disorders. By coordinating collaborative learning and quality improvement activities in newborn screening programs using practice-based strategies, states work to meet the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children’s recommendations on timeliness and the number of infants receiving timely diagnosis and treatment.

Innovation in Care Integration for Children and Youth with Autism Spectrum Disorders and Other Developmental Disabilities Program

The program supports innovative, evidence-informed strategies to provide integrated care for children and youth with autism spectrum disorders (ASD) and other developmental disabilities at the state level. Providing this care to those considered medically underserved (for example, those living in poverty, within a rural geographic location, and/or people who experience health disparities) is of particular importance.

Leadership Education in Adolescent Health (LEAH)

LEAH provides interdisciplinary leadership training in adolescent health for five core disciplines including medicine, nursing, nutrition, psychology, and social work. The pre- and post-doctoral training prepares health professionals for leadership roles in public health practice and clinical care, research, training, and advocacy. The goal is to improve family- and youth-centered, community-based care for adolescents and enhance the capacity of Title V programs to improve young people's health.

Leadership Education in Neurodevelopmental and Related Disabilities (LEND)

LEND programs provide interdisciplinary training to improve the clinical expertise and leadership skills of professionals dedicated to caring for children with neurodevelopmental and other related disabilities including autism. Trainees in LEND programs participate in academic, clinical, leadership, and community opportunities.

M-P

Maternal and Child Environmental Health Network

The Network aims to improve maternal and fetal health outcomes through providing education, offering individualized counseling, improving access to resources, and advancing the knowledge base related to the safety of exposures to medication and environmental agents before, during, and after pregnancy.  Activities include: supporting regional Teratology Information Services that provide one-on-one risk assessments and counseling to individuals of reproductive age and to providers on known and potential reproductive risks; providing the most current evidence-based information to public and health care professionals on possible risks from environmental exposures by advancing the knowledge base, synthesizing research, and developing resources to communicate findings; and improving access to teratogen information services to vulnerable and hard-to-reach populations.

Maternal and Child Environmental Health Collaborative Improvement and Innovation Network (CoINN)

The purpose of this program is to support and improve coordinated systems of care within states to address the needs of maternal, infant, and child populations within those states that are at risk for, or experience exposure to lead.

Maternal and Child Health Collaborative Office Rounds Program

Using a study group approach to focus on practical challenges experienced by community-based practitioners, the program supports joint pediatrics-child psychiatry continuing education that promotes collaboration between pediatricians and child psychiatrists.

Maternal and Child Health Public Health Catalyst Program

The program introduces public health students to maternal and child health content and competencies to encourage careers in the MCH field. To do this, project activities include:

  • developing and offering a graduate-level course focus on foundational MCH content;
  • supporting a student-led organization, events and/or activities that bring together students with an interest in MCH;
  • recruiting students from diverse backgrounds, including students from economically disadvantaged and racially or ethnically underrepresented minority backgrounds, into MCH courses and MCH Student Interest Groups.

Maternal and Child Health Workforce Development Center

The program helps to prepare the current and future MCH workforce of State Title V programs with skills and knowledge to succeed in a transformed public health system. Key topic areas include:

  • access to care,
  • quality improvement,
  • systems integration, and
  • change management.

Maternal and Child Oral Health Resource Center

The Center strengthens state and community oral health programs' innovative approaches to increase access to quality oral health care for all MCH populations. This is accomplished through knowledge building, program development, collaboration, and information sharing. The information sharing includes a central repository for oral health programmatic materials. The repository is meant to be used by health professionals, program administrators and staff, educators, policy makers, and researchers.

MCH Autism Intervention Research

The program supports research that advances the evidence base on interventions to improve the health and well-being of children and adolescents with autism spectrum disorder (ASD) and other developmental disabilities, with a special focus on addressing the needs of underserved populations.

MCH Autism Longitudinal Data Project

The project supports research studies that examine longitudinal data on ASD and other developmental disabilities to study risk factors of these conditions, the effects of various interventions, and child development over the life course.

MCH Autism Secondary Data Analysis Research

The program supports secondary data analyses to advance the evidence base on the effectiveness of interventions, and best practices for the screening, diagnosis, and treatment of ASD and other developmental disabilities at an earlier age, with a focus on addressing differences of underserved populations.

MCH Epidemiology Doctoral Training

The Office of Epidemiology and Research (OER) supports this grant program, which provides support to one or more doctoral students per university who select a relevant MCH-applied epidemiologic analysis as the basis for their research and dissertation, using program information and data from a state, county, or city department of health.

MCH Field-Initiated Innovative Research Studies (FIRST)

The program supports translational and applied research on critical issues affecting maternal and child health, including services for children with special health care needs. The focus is on innovative research that advances current knowledge and, when put into practice, results in health and health services improvements within states and communities.

MCH Field-Initiated Secondary Data Analysis Research (SDAR)

The program supports maternal and child health research through the exclusive use of secondary analysis from existing national databases and/or administrative records.

MCH Navigator Training Program

The MCH Navigator is a learning portal for maternal and child health professionals, students, and others working to improve the health and well-being of women, children, and families. This centralized portal seeks to improve access to currently available public health MCH learning resources by matching learner needs with learning paths.

MCH Nutrition

The projects provide long-term graduate education and short-term continuing education. This training focuses on leadership in pediatric and maternal nutrition and provides both clinical and public health approaches to working with mothers, infants, children, and youth.

MCH Pipeline Training Program

Promoting the development of a culturally diverse and representative health care workforce, the program recruits applicants and trains students from disadvantaged backgrounds in maternal and child health professions. The program educates, mentors, and provides enriching experiences to increase students’ interests in MCH public health professions.

Medical Home Implementation for CYSHCN

This program supports a national resource center, the National Center for Medical Home Implementation, focused on improving access to a regular, ongoing source of health care in the community with appropriate sources of routine and specialty health care and integrated with the requisite community services for all children and youth, particularly those with special health care needs. This center is supported through a cooperative agreement between MCHB and the American Academy of Pediatrics.

National Center for Family/Professional Partnerships

MCHB supports a national center which provides assistance and support to the HRSA-funded Family-to-Family Health Information and other MCH initiatives on topics related to family engagement and cultural and linguistic competence. The National Center for Family Professional Partnerships, a project of Family Voices, Inc., carries out family and youth leadership development and training activities, specifically for racially and ethnically diverse minority families of children and youth with special health care needs.

National Center for Fatality Review and Prevention

The Center works to improve and strengthen state and local capacity to perform complete and accurate fetal, infant and child death reviews.

National Center for Health Care Transition for Youth with Special Health Care Needs

The Center works to develop strategies, policies, and programs to ensure CYSHCN successfully transition from the pediatric to adult system of services. Through a cooperative agreement between MCHB and The National Alliance to Advance Adolescent Health, Got Transition/Center for Health Care Transition Improvement works to improve transition of youth and young adults, particularly those with special health care needs, from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families.

National Center for Health Insurance and Financing National CYSHCN

The National Center for Health Insurance and Financing for CYSHCN, a project of Boston University’s Catalyst Center, develops strategies, policies, and programs to ensure that families of CYSHCN have access to adequate financing and public and/or private insurance to pay for the services they need. As part of the cooperative agreement, the Catalyst Center works to promote universal, continuous, and affordable coverage for all CYSHCN; close benefit and financing gaps; and build sustainable capacity to promote financing of care.

National Genetics Education and Family Support Center

The goal of the National Genetics Education and Family Support Center is to ensure that all individuals who have, or are at-risk of having, a genetic condition and their families, especially those medically underserved and/or living in geographically underserved areas, have access to genetic services, are engaged in their own care, and have opportunities to engage in a meaningful way in national, regional, and local genetic services systems.

National Interdisciplinary Training Resource Center

The Center works to improve the health of infants, children, and adolescents who have, or are at risk for developing, autism spectrum disorder (ASD) and other developmental disabilities. By providing technical assistance to interdisciplinary training programs, the Center supports the efforts of training programs to better train professionals in the use of valid and reliable screening tools to diagnose or rule out ASD, and provide evidence-based interventions for children with ASD and other developmental disabilities.

National Maternal and Child Health Data Resource Center

The Center supports the implementation of the transformed Title V Maternal and Child Health Services Block Grant performance measures through technical assistance to states and facilitates public access to data from and information on the National Survey of Children with Special Health Care Needs (NS-CSHCN) and the National Survey of Children’s Health (NSCH). Together, these activities support the development of an evidence base and local capacity for informed state and local maternal and child health programming.

National Technical Resource Center for Newborn Hearing Screening and Intervention

The National Technical Resource Center for Newborn Hearing Screening and Intervention supports the Universal Newborn Hearing Screening program.  The Center provides state Early Hearing Detection and Intervention (EHDI) programs the training and technical assistance needed for planning, developing policy, and implementing innovations and quality improvement methodology to reduce their loss to follow-up/documentation (LTF/D) rates.  The Center improves the performance of state EHDI programs in decreasing the loss to follow-up rates, especially in rural and underserved communities; and in increasing the number of state EHDI programs that have incorporated quality improvement methodology and processes into their operations. This Center is a cooperative agreement between MCHB and the National Center for Hearing Assessment and Management (NCHAM).

Newborn Screening Clearinghouse

The program establishes and maintains a central, online clearinghouse of current educational newborn screening information on family support and follow-up services, and other resources, as well as research to increase awareness, knowledge, and understanding of newborn screening for parents, expectant individuals, families, and health professionals.

Newborn Screening Data Repository and Technical Assistance Center

The Center provides leadership on carrying out state-based public health newborn screening and other genetics programs. This occurs through technical assistance, resource development, state education and training, policy initiatives, disorder surveillance, evidence-based data collection, evaluation, and collaborative efforts with stakeholders.

NewSTEPS 360 CoIIN

The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) has worked over the past two years to develop a network, collect data from NBS programs and analyze quality practices within programs. The goal of the program is to To support states through technical and financial means so that they can achieve timely reporting of results in 95 percent of newborns that receive dried-blood spot (DBS) newborn screening. NewSTEPs 360 is the result of a competitive funding opportunity that sought one source to support state newborn screening programs to improve timeliness.

Partnership for State Title V MCH Leadership Community

This effort works to improve the health of all mothers and children by assisting states in creating, carrying out, and maintaining public health programs and a comprehensive system of care for the delivery of MCH services that are well aligned with the transformed Title V MCH Services Block Grant.

Partnership for Urban MCH Leadership Community

This effort works to improve the health of all mothers and children by partnering with urban MCH leaders to improve public health programs and the delivery of MCH services and to assure optimal alignment with the transformed Title V MCH Services Block Grant. The focus is on achieving collective impact, strengthening analytic capacity, and developing strong partnerships with State Title V programs to advance urban MCH priorities.

Pediatric Pulmonary Centers (PPC)

The Centers develop interdisciplinary leaders through graduate and post-graduate training to improve the health status of infants, children, and youth with chronic respiratory and sleep-related conditions. These training programs promote comprehensive, coordinated, family-centered, and culturally-sensitive systems of health care that serve the diverse needs within their communities.

Providing Support for the Collaborative Improvement and Innovation Network (CoIIN) to Reduce Infant Mortality

To reduce infant mortality and improve birth outcomes, efforts to the CoIIN include supporting collaborative learning, applying evidence-based strategies, and scaling-up interventions by encouraging action across states and among many partners.

Public Policy Analysis and Education Center for Early Childhood Health

The Center works with the Infant and Early Childhood Health Program to identify, analyze, and develop policy options and programs related to the advancement of the health, safety and well-being of children in early childhood, and their families.

R-U

Reaching Practicing MCH Professionals in Underserved Areas through Education and Training Program

To strengthen the nation’s maternal and child health system, the program develops the public health workforce in isolated geographic areas that lack traditional education programs. Innovative strategies address the special educational needs of diverse public health professionals in isolated, underserved communities including rural and frontier areas, U.S. jurisdictions, and Indian reservations.

Regional Genetics Networks

Seven Regional Genetic Service Collaboratives provide regional leadership to improve, expand, strengthen, and evaluate access to a system of genetics services and the quality of those services to improve health outcomes for children, youth and adults across their lifespan.

Reproductive and Environmental Health Network

The Network aims to improve maternal and fetal health outcomes by providing evidence-based information on the safety of exposures in pregnancy and lactation

Safe Infant Sleep Systems Integration Program

This program works to increase the adoption of safe infant sleep behaviors among infant caregivers through integrating safe sleep practices and breastfeeding support within service delivery systems that interact with families.

Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

The Advisory Committee on Heritable Disorders in Newborns and Children Committee was established under the Public Health Service Act, Title XI, §1111 (42 U.S.C. 300b-10,) as amended by the Newborn Screening Saves Lives Reauthorization Act of 2014 (P.L. 113-240). The Health Resources and Services Administration/Maternal and Child Health Bureau provides coordination, management, and operational services to the Committee, with direction and guidance from the U.S. Department of Health and Human Services. The purpose of the Committee is to provide the Secretary with recommendations, advice, and technical information regarding the most appropriate application of technologies, policies, guidelines, and standards for: effectively reducing morbidity and mortality in newborns and children having, or at risk for, heritable disorders; and enhancing the ability of state and local health agencies to provide for newborn and child screening, counseling, and health care services for newborns and children having, or at risk for, heritable disorders. 

Severe Combined Immunodeficiency (SCID) Newborn Screening Implementation Program

The goal of this program is to enhance, improve or expand the ability of state and local public health agencies (including territories, and tribes) to screen for SCID as part of their newborn screening program, as well assist in providing health care professionals and newborn screening laboratory personnel with education and training in newborn screening for SCID, and support the development and dissemination of appropriate education and training materials for parents, families, patient advocacy and support groups, resulting in a greater number of newborns that are screened, identified, and referred for treatment for SCID.

Sickle Cell Disease and Newborn Screening Follow-up Program

The program enhances the follow-up services of state sickle cell disease newborn screening programs and supports community-based efforts. Activities focus on improving access for newborns diagnosed with, or as carriers of, sickle cell disease, and their families. It depends heavily on partnerships among state Title V and newborn screening programs, community-based sickle cell disease organizations, sickle cell disease treatment centers, and community-based primary care providers.

Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program

The program funds regions that work to improve the care and treatment of sickle cell disease by coordinating service delivery, genetic counseling and testing, bundling of technical services, training of health professionals, and efforts to expand and coordinate education, treatment, and continuity of care for individuals with sickle cell disease.

State Systems Development Initiative (SSDI)

By developing, enhancing, and expanding state Title V MCH data capacity, SSDI allows for informed decision making and resource allocation that supports effective quality programming for women, infants, children, and youth, including children and youth with special health care needs. States concentrate their SSDI resources on three goals:

  • build and expand state MCH data capacity to support Title V program efforts and contribute to data-driven decision making in MCH programs.
  • support the state’s Collaborative Improvement and Innovation Network (CoIIN) to Reduce Infant Mortality by improving the availability and reporting of timely data to inform efforts and track outcomes that drive quality improvement and collaborative learning.

Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy

The program promotes the delivery of quality health care for children and youth with epilepsy. It focuses on three approaches:

  • using evidence-based models of telehealth and/or telemedicine with health information technologies,
  • applying the Got Transition Six Core Elements Framework to help youth successfully transition from the pediatric to adult system of health care, and
  • promoting outreach and education about epilepsy among stakeholders.

Strengthen the Evidence for MCH Program and Maternal and Child Health Historical Digital Library

These two programs that work together to provide access to current evidence, and its historical context, in order to support the implementation of the MCH Title V Transformation. The Strengthen the Evidence for MCH Program evaluates available evidence to identify strategic approaches states can use to achieve MCH Priorities and their selected National Performance Measures. The historical library provides the context of historical MCH Program progression since the before the enactment of Title V, by ensuring access to selected historical materials from the Maternal and Child Health Bureau and related programs, which are not otherwise available in libraries. Title V Maternal and Child Health Block Grant Program is the nation’s oldest federal-state partnership. It aims to improve the health and well-being of women (particularly mothers) and children.

Supporting Healthy Start Performance Project

The Healthy Start (HS) EPIC Center provides assistance to support HS grantees in achieving program goals. The HS EPIC Center helps to strengthen staff skills to implement evidence-based practices in maternal and child health, facilitates grantee-to-grantee sharing of expertise and lessons from the field, enables grantees to conduct ongoing evaluation of activities for effectiveness, and builds program capacity to work with community partners to improve health and social service systems for women, infants, and families.

Systems of Care for Children with Medical Complexity

The Health Delivery System Innovations for Children with Medical Complexity program aims to improve the quality of life for children with medical complexity, the wellbeing of their families, and the cost-effectiveness of their care through development and implementation of innovative care and payment models.  Using a Collaborative Improvement and Innovation Network approach, families of CMC, pediatric primary and specialty care clinicians, leaders of integrated health care delivery systems and/or freestanding children’s hospitals, state Title V CYSHCN and Medicaid leaders, and other relevant stakeholders will work together to test strategies and build evidence for optimizing high quality, cost-effective, family-centered care for children with medical complexity.

Universal Newborn Hearing Screening and Intervention Program

The goal of the Universal Newborn Hearing Screening program is to support the statewide programs and systems of care that ensure that deaf or hard of hearing children are identified through newborn and infant screening and receive evaluation, diagnosis, and appropriate intervention that optimize their language, literacy, and social-emotional development.  To accomplish this, the program focuses on these areas:

  • increasing health professionals’ engagement within and knowledge of the Early Hearing Detection and Intervention (EHDI) system,
  • improving access to early intervention services and language acquisition, and
  • improving family engagement, partnership, and leadership within the EHDI programs and systems.
Date Last Reviewed:  December 2016