Office of Epidemiology and Research, Division of Research

Advancing Applied MCH Research


Autism Intervention Research Network on Physical Health (AIR-P Network)

Funded Projects Search

 
 

Project Number: UA3MC11054
Grantee: Massachusetts General Hospital
Department/Center:
Project Date: 9/1/2008
Principal Investigator: Karen Kuhlthau

Final Report

Pending

Age

  • Toddlerhood (13-35 months)
  • Early Childhood (3-5 years)
  • Middle Childhood (6-11 years)
  • Adolescence (12-18 years)

Abstract

Problem: Children and adolescents with autism spectrum disorders (ASD) often experience symptoms associated with underlying medical conditions that may affect their health and wellbeing. Families face substantial difficulty accessing adequate health care, particularly families from underserved groups. Purpose: To improve the physical health and well-being of children and adolescents with ASD or other developmental disabilities by expanding and continuing the work of the AIR-P. The network will advance HRSA's goal of addressing disparities and improving health equity by focusing on individuals from underserved populations across the U.S. Goals and Objectives: AIR-P aims to: 1) conduct multisite research on evidence-based interventions that improve physical health of children and adolescents with ASD and developmental disorders, especially underserved populations; 2) transform AIR-P into a multisite Learning Network (LN) which will provide a collaborative laboratory for developing and testing evidence-based interventions and accelerating the adoption of effective interventions to improve care and reduce disparities; 3) support development and mentorship of emerging or new investigators; 4) develop and disseminate guidelines for interventions; 5) accelerate the adoption of effective interventions into practice settings and communities, especially underserved communities; and 6) leverage network capacity to compete for grant opportunities from other Federal and private sources. Proposed Activities and Target Population(s): We will conduct two core multisite research initiatives: 1) ECHO Autism, an intervention to teach PCPs to improve their care of children with ASD, and 2) a study aimed at improving participation in dental care and oral health outcomes for underserved children with ASD. These projects target children with ASD with an emphasis on those from underserved groups including children from practices for which over 50% of patients are underserved (for ECHO Autism) and patients with Medicaid insurance (the Dental project). We will also provide opportunities to support secondary data analyses of ATN Registry data as well as pilot studies. We will transform AIR-P into a Learning Network that will include cycles of tests of change and spread of successful interventions to underserved communities, complete guidelines, and disseminate findings at a national level. Coordination: The interdisciplinary team includes clinicians from diverse specialties, health policy experts, researchers, and family members. Our partnership with the Massachusetts League of Community Health Centers (the League) will allow the AIR-P to coordinate the recruitment of patients, pediatricians, and practices to our research studies. We will also partner with community organizations that serve diverse communities.

Publications

Listed is descending order by year published.

Chatham CH, Taylor KI, Charman T, Liogier D'ardhuy X, Eule E, Fedele A, Hardan AY, Loth E, Murtagh L, Del Valle Rubido M, San Jose Caceres A, Sevigny J, Sikich L, Snyder L, Tillmann JE, Ventola PE, Walton-Bowen KL, Wang PP, Willgoss T, Bolognani F. Adaptive behavior in autism: Minimal clinically important differences on the Vineland-II. Autism Res. 2018 Feb;11(2):270-283.

Hedgecock JB, Dannemiller LA, Shui AM, Rapport MJ, Katz T. Associations of gross motor delay, behavior, and quality of life in young children with Autism Spectrum Disorder. Phys Ther. 2018 Apr 1;98(4):251-259.

Katz T, Shui AM, Johnson CR, Richdale AL, Reynolds AM, Scahill L, Malow BA. Modification of the Children's Sleep Habits Questionnaire for Children with Autism Spectrum Disorder. J Autism Dev Disord. 2018;48(8):2629-2641.

Katz T, Shui AM, Johnson CR. Modification of the children's sleep habits questionnaire for children with Autism Spectrum Disorder [published online ahead of print March 2, 2018]. J Autism Dev Disord.

Kuhlthau KA, Bailey LC, Baer BL, Coury DL, Law JK, Murray DS, Razzaghi H, Forrest CB, Lipkin PH. Large databases for pediatric research on children with Autism Spectrum Disorder. J Dev Behav Pediatr. 2018 Feb/Mar;39(2):168-176.

Mazurek MO, Lu F, Macklin EA, Handen BL. Factors associated with DSM-5 severity level ratings for Autism Spectrum Disorder. Autism. 2018 Feb 1:1362361318755318.

Neumeyer AM, Cano Sokoloff N, McDonnell EI, Macklin EA, McDougle CJ, Holmes TM, Hubbard JL, Misra M. Nutrition and Bone Density in Boys with Autism Spectrum Disorder. J Acad Nutr Diet. 2018;118(5):865-877.

Payakachat N, Tilford JM, Kuhlthau KA. Parent-Reported Use of Interventions by Toddlers and Preschoolers With Autism Spectrum Disorder. Psychiatr Serv. 2018 Feb 1;69(2):186-194.

Cameron JM, Levandovskiy V, Roberts W, et al. Variability of creatine metabolism genes in children with autism spectrum disorder. Int J Mol Sci. 2017;18(8):E1665.

Erickson Warfield M, Crossman MK, Neumeyer AM, O’Brien J, Kuhlthau KA. Transition tools and access to adult primary care. Adv Autism. 2017;3(3):131-141.

Ferguson BJ, Marler S, Alstein LL, et al. Psychophysiological associations with gastrointestinal symptomology in Autism Spectrum Disorder. Autism Res. 2017;10(2):276-288.

Hand BN, Dennis S, Lane AE. Latent constructs underlying sensory subtypes in children with autism: A preliminary study. Autism Res. 2017 Aug;10(8):1364-1371.

Handen BL, Anagnostou E, Aman MG, et al. A randomized, placebo controlled trial of metformin for the treatment of overweight induced by antipsychotic medication in young people with autism spectrum disorder: open-label extension. J Am Acad Child Adolesc Psychiatry. 2017;56(10):849-856.

Handen BL, Anagnostou E, Aman MG, et al. A randomized, placebo-controlled trial of metformin for the treatment of overweight induced by antipsychotic medication in young people with autism spectrum disorder: open-label extension. J Am Acad Child Adolesc Psychiatry. 2017;56(10):849-856.

Handen BL, Anagnostou E, Aman MG, Sanders KB, Chan J, Hollway JA, Brian J, Arnold LE, Capano L, Williams C, Hellings JA, Butter E, Mankad D, Tumuluru R, Kettel J, Newsom CR, Peleg N, Odrobina D, McAuliffe-Bellin S, Marler S, Wong T, Wagner A, Hadjiyannakis S, Macklin EA, Veenstra-VanderWeele J. A Randomized, Placebo-Controlled Trial of Metformin for the Treatment of Overweight Induced by Antipsychotic Medication in Young People With Autism Spectrum Disorder: Open-Label Extension. J Am Acad Child Adolesc Psychiatry. 2017 Oct;56(10):849-856.e6.

Hundley RJ, Shui A, Malow BA. Relationship between subtypes of restricted and repetitive behaviors and sleep disturbance in autism spectrum disorder. J Autism Dev Disord. 2017;46(11):3448-3457.

Kuhlthau KA, McDonnell E, Coury DL, Payakachat N, Macklin E. Associations of quality of life with health-related characteristics among children with autism. Autism. 2017:136236131770442.

Lake JK, Denton D, Lunksy Y, Shui AM, Veenstra-VanderWeele J, Anagnostou E. Medical conditions and demographic, service and clinical factors associated with atypical antipsychotic medication use among children with an autism spectrum disorder. J Autism Dev Disord. 2017;47(5):1391-1402.

Lambert JM, Staubitz JE, Roane JT, et al. Outcome summaries of latency-based functional analyses conducted in hospital inpatient units. J Appl Behav Anal. 2017;50(3):487-494.

Marler S, Ferguson BJ, Lee EB, Peters B, Williams KC, McDonnell E, Macklin EA, Levitt P, Margolis KG, Beversdorf DQ, Veenstra-VanderWeele J. Association of Rigid-Compulsive Behavior with Functional Constipation in Autism Spectrum Disorder. J Autism Dev Disord. 2017 Jun;47(6):1673-1681.

Mazurek MO, Lu F, Symecko H, et al. A prospective study of the concordance of DSM-IV and DSM-5 diagnostic criteria for autism spectrum disorder. J Autism Dev Disord. 2017;47(9):2783-2794.

Mody M, Shui AM, Nowinski La, et al. Communication deficits and the motor system: exploring patterns of associations in autism spectrum disorder (ASD). J Autism Dev Disord. 2017;47(1):155-162.

Mruzek DW, McAleavey S, Loring WA, Butter E, Smith T, McDonnell E, Levato L, Aponte C, Travis RP, Aiello RE, Taylor CM, Wilkins JW, Corbett-Dick P, Finkelstein DM, York AM, Zanibbi K. A pilot investigation of an iOS-based app for toilet training children with autism spectrum disorder. Autism. 2017 Dec 1:1362361317741741.

Mruzek DW, McAleavey S, Loring WA. A pilot investigation of an iOS-based app for toilet training children with autism spectrum disorder. Autism. [Epub ahead of print].

Neumeyer AM, Cano Sokoloff N, McDonnell E, Macklin EA, McDougle CJ, Misra M. Bone accrual in males with autism spectrum disorder. J Pediatr. 2017;181:195-201.

Pathak M, Bennett A, Shui AM. Correlates of adaptive behavior profiles in a large cohort of children with autism: The autism speaks Autism Treatment Network registry data. Autism. 2017 Nov 1:1362361317733113.

Soke GN, Rosenberg SA, Hamman RF, et al. Factors associated with self-injurious behaviors in children with autism spectrum disorder: findings from two large national samples. J Autism Dev Disord. 2017;47(2):285-296.

Anagnostou E, Aman MG, Handen BL, et al. Metformin for treatment of overweight induced by atypical antipsychotic medication in young peiople with Autism Spectrum Disorder: a randomized clinical trial. JAMA Psychiatry. 2016;73(9):928-937.

Austin J, Manning-Courtney P, Johnson ML, et al. Improving access to care autism treatment centers: a system analysis approach. Pediatrics. 2016;137(Suppl 2):S149-S157.

Bellando J, Fussell JJ, Lopez M. Autism Speaks toolkits: resources for busy physicians. Clin Pediatr. 2016;55(2):171-5.

Broder-Fingert S, Shui A, Ferrone C, et al. A pilot study of autism-specific care plans during hospital admission. Pediatrics. 2016;137(Suppl 2):S196-S204.

Erickson-Warfield M, Zwaigenbaum L. Editor's note and prologue. Pediatrics. 2016;137 Suppl 2:S57-S60.

Ezell J, Shui A, Sanders K, Veenstra-VanderWeele J. Pattern of diagnosis and co-occurring symptoms in adopted children with Autism Spectrum Disorder. Pediatrics. 2016;137(Suppl 2):S90-S97.

Ferguson BJ, Marler S, Altstein LL, et al. Associations between cytokines, endocrine stress response, and gastrointestinal symptoms in Autism Spectrum Disorder. Brain Behav Immun. 2016;58:57-62.

Fung LK, Mahajan R, Nozzolillo A, et al. Pharmacologic treatment of severe irritability and problem behaviors in autism: a systematic review and meta-analysis. Pediatrics. 2016;137(Suppl 2):S124-S135.

Greenlee JL, Mosley AS, Shui AM, Veenstra-VanderWeele J, Gotham KO. Medical and behavioral correlates of depression history in children and adolescents with Autism Spectrum Disorder. Pediatrics. 2016;137 (Suppl 2):S105-S114.

Hill AP, Zuckerman KE, Fombonne E. Obesity and autism. Pediatrics. 2016;136(6):1051-1061.

Hundley RJ, Shui A, Malow BA. Relationship between subtypes of restricted and repetitive behaviors and sleep disturbance in autism spectrum disorder. J Autism Dev Disord. 2016;46(11):3448-3457.

Knutsen J, Wolfe A, Burke BL Jr, Hepburn S, Lindgren S, Coury D. A systematic review of telemedicine in autism spectrum disorders. Rev J Autism Dev Disord. 2016;3(4):330-344.

Knutsen J, Wolfe A, Burke Jr. BL, Hepburn S, Lindgren S, Coury D. A systematic review of telemedicine in Autism Spectrum Disorders. Rev J Autism Dev Disord. 2016;(3)4:330-344.

Kuhlthau KA, Delahaye J, Erickson-Warfield M, Shui A, Crossman M, van der Weerd E. Health care transition services for youth with Autism Spectrum Disorders: perspectives of caregivers. Pediatrics. 2016;137(Suppl 2):S158-S166.

Kuhlthau KA, Delahaye J, Erickson-Warfield M, Shui A, Crossman M, van der Weerd E. Health care transition services for youth with autism spectrum disorders: perspectives of caregivers. Pediatrics. 2016;137(suppl 2):S158-S166.

Levato Le, Aponte CA, Wilkins J, et al. Use of urine alarms in toilet training children with intellectual and developmental disabilities: a review. Res Dev Disabil. 2016;53-54:232-241.

Luna RA, Oezguen N, Baldera M, et al. Distinct microbiome-neuroimmune signatures correlate with functional abdominal pain in children with autism spectrum disorder. Cell Mol Gastroenterol Hepatol. 2017;3(2):218-230.

Malow BA, Connolly HV, Weiss SK, et al. The pediatric sleep Clinical Global Impression scale: a new tool to measure pediatric insomnia in Autism Spectrum Disorders. J Dev Behav Pediatr. 2016;37(5):370-376.

Malow BA, Connolly HV, Weiss SK, et al. The Pediatric Sleep Clinical Global Impressions Scale-a new tool to measure pediatric insomnia in autism spectrum disorders. J Dev Behav Pediatr. 2016;37(5):370-376.

Malow BA, Katz T, Reynolds AM, et al. Sleep difficulties and medications in children with autism spectrum disorders: a registry study. Pediatrics. 2016;137(suppl 2):S98-S104.

Malow BA, Katz T, Reynolds, AM. Sleep difficulties and medication in children with Autism Spectrum Disorders: a registry study. Pediatrics. 2016;137(Suppl 2):S98-S104.

Marler S, Ferguson BJ, Lee EB, et al. Brief report: whole blood serotonin levels and gastrointestinal symptoms in Autism Spectrum Disorder. J Autism Dev Disord. 2016;46(3):1124-1130.

Marler S, Ferguson BJ, Lee EB, Peters B, Williams KC, McDonnell E, et al. Brief report: whole blood serotonin levels and gastrointestinal symptoms in Autism Specrum Disorder. J Autism Dev Disord. 2016;46(3):1124-1130.

Mazurek MO, Sohl K. Sleep and behavioral problems in children with Autism Spectrum Disorder. J Autism Dev Disord. 2016;46(6):1906-1915.

Mazurek MO, Engelhardt CR, Hilgard J, Sohl K. Bedtime electronic media use and sleep in children with Autism Spectrum Disorder. J Dev Behav Pediatr. 2016;37(7):525-531.

McGuire K, Fung LK, Hagopian L, et al. Irritability and problem behavior in autism spectrum disorder: a practice pathway for pediatric primary care. Pediatrics. 2016;137(suppl 2):S136-S148.

McGuire K, Fung LK, Hagopian L. Irritability and problem behavior in Autism Spectrum Disorder: a practice pathway for pediatric primary care. 2016;137(Suppl 2):S136-S148.

Mieses AM, Tavassoli T, Li E, et al. Brief report: sensory reactivity in children with Phelan-McDermid syndrome. J Autism Dev Disord. 2016;46(7):2508-2513.

Mieses AM, Tavassoli T, Li E, Soorya L. Brief report: sensory reactivity in children with Phelan-McDermid Syndrome. J Autism Dev Disord. 2016;46(7):2508-2513.

Mody M, Shui AM, Nowinski LA, et al. Communication deficits and the motor system: exploring patterns of associations in autism spectrum disorder (ASD). J Autism Dev Disord. 2017;47(1):155-162.

Murray DS, Fedele A, Shui A, Coury DL. The Autism Speaks Autism Treatment Network registry data: opportunities for investigators. Pediatrics. 2016;137(Suppl 2):S72-S78.

Muskat B, Greenblatt A, Nicholas DB, et al. Parent and health care provider perspectives related to disclosure of Autism Spectrum Disorder in pediatric emergency departments. Autism. 2016;20(8):986-994.

Nichlas DB, Zwaigenbaum L, Muskat B, et al. Toward practice advancement in emergency care for children with Autism Spectrum Disorder. Pediatrics. 2016;137(Suppl 2):S205-S211.

Nicholas DB, Zwaigenbaum L, Muskat B, et al. Experiences of emergency department care from the perspective of families in which a child has Autism Spectrum Disorder. Soc Work Health Care. 2016;55(6):409-426.

Nicholas DB, Zwaigenbaum L, Muskat B, et al. Experiences of emergency department care from the perspective of families in which a child has autism spectrum disorder. Soc Work Health Care. 2016;55(6):409-426.

Park HY, Harwood RL, Yu SM, Kavanagh L, Lu MC. Autism and other developmental disabilities research programs of the Maternal and Child Health Bureau. Pediatrics. 2016;137(Suppl 2):S61-S66.

Perrin JM, Coury DL, Klatka K, Winklosky B, et al. The Autism Intervention Research Network on Physical Health and the Autism Speaks Autism Treatment Network. Pediatrics. 2016;137(Suppl 2):S67-S71.

Schulze A, Bauman M, Tsai AC, et al. Prevalence of creatine deficiency syndromes in children with nonsyndromic autism. Pediatrics. 2016;137(1).

Vasa RA, Mazurek MO, Mahajan R, et al. Assessment and treatment of anxiety in youth with Autism Spectrum Disorders. Pediatrics. 2016;137(Suppl 2):S115-S123.

Veatch OJ, Reynolds A, Katz T, et al. Sleep in children with Autism Spectrum Disorders: how are measures of parent report and actigraphy related and affected by sleep education? Behav Sleep Med. 2016;14(6):665-676.

Veatch OJ, Reynolds A, Katz T, et al. Sleep in children with Autism Spectrum Disorders: how are measures of parent report and actigraphy related and affected by sleep education? Behav Sleep Med. 2016;14(6):665-76.

Zwaigenbaum L, Nicholas DB, Muskat B, et al. Perspectives of health care providers regarding emergency department care of children and youth with Autism Spectrum Disorder. J Autism Dev Disord. 2016;46(5):1725-1736.

Coury DL. Babies, bathwater, and screening for Autism Spectrum Disorder: comments on the USPSTF recommendations for Autism Spectrum Disorder screening. J Dev Behav Pediatr. 2015;36(9):661-663.

de Vinck-Baroody O, Shui A, Macklin EA, et al. Overweight and obesity in a sample of children with Autism Spectrum Disorder. Academic pediatrics. 2015;15(4):396-404.

DeMand A, Johnson C, Foldes E. Psychometric properties of the brief autism mealtime behaviors inventory. J Autism Dev Disord. 2015 Sep;45(9):2667-2673.

DeMand A, Johnson C, Foldes E. Psychometric properties of the Brief Autism Mealtime Behaviors Inventory. J Autism Dev Disord. 2015;45(9):2667-2673.

Hill AP, Zuckerman KE, Fombonne E. Obesity and autism. Pediatrics. 2015;136:1051-1061.

Howe YJ, O'Rourke JA, Yatchmink Y, Viscidi EW, Jones RN, Morrow EM. Female autism phenotypes inivestigated at different levels of language and developmental abilities. J Autism Dev Disord. 2015;45(11):3537-3549.

Johnson CR, DeMand A, Shui A. Relationships between anxiety and sleep and feeding in young children with ASD. J Dev Phys Disabil. 2015; 27(3):359-373.

Johnson CR, DeMand A, Shui A. Relationships between anxiety and sleep and feeding in young children with ASD. J Dev Phys Disabil. 2015;27(3):359-373.

Kuhlthau KA, Warfield ME, Hurson J, et al. Pediatric provider's perspectives on the transition to adult health care for youth with autism spectrum disorder: current strategies and promising new directions. Autism. 2015;19(3):262-271.

Mazurek MO, Petroski GF. Sleep problems in children with Autism Spectrum Disorder: examining the contributions of sensory over-responsivity and anxiety. Sleep Med. 2015;16(2):270-279.

Mazurek MO, Petroski GF. Sleep problems in children with autism spectrum disorder: examining the contributions of sensory over-responsivity and anxiety. Sleep Med. 2015;16(2):270-279.

Stewart PA, Hyman SL, Schmidt BL, et al. Dietary supplementation in children with Autism Spectrum Disorders: common, insufficient, and excessive. J Acad Nutr Diet. 2015;115(8):1237-1248.

Stewart PA, Hyman SL, Schmidt BL, et al. Dietary supplementation in children with Autism Spectrum Disorders: common, insufficient, and excessive. J. Acad. Nutr. Diet. 2015;115(8):1237-1248.

Tilford JM, Payakachat N, Kuhlthau KA, et al. Treatment for sleep problems in children with autism and caregiver spillover effects. J Autism Dev Disord. 2015;45(11):3613-3623.

Vasa RA, Mazurek MO. An update on anxiety in youth with autism spectrum disorders. Curr Opin Psychiatry. 2015;28(2):83-90.

Warfield ME, Crossman MK, Delahaye J, Der Weerd E, Kuhlthau KA. Physician perspectives on providing primary medical care to adults with Autism Spectrum Disorders (ASD). J Autism Dev Disord. 2015;45(7):2209-17.

Warfield ME, Crossman MK, Delahaye J, et al. Physician perspectives on providing primary medical care to adults with Autism Spectrum Disorders (ASD). J Autism Dev Disord. 2015;45:2209-2217.

Coury DL, Swedo SE, Thurm AE, et al. Treating the whole person with autism: the proceedings of the Autism Speaks National Autism Conference. Curr Probl Pediatr Adolesc Health Care. 2014;44(2):26-47.

Hill AP, Zuckerman KE, Hagen AD, et al. Aggressive behavior problems in children with autism spectrum disorders: prevalence and correlates in large clinical sample. Res Autism Spectr Disord. 2014;8(9):1121-1133.

Hill AP, Zuckerman KE, Hagen AD, et al. Agressive behavior problems in children with Autism Spectrum Disorders: prevalence and correlates in a large clinical sample. Res Autism Spectr Disord. 2014;1;8(9):1121-1133.

Hoefman R, Payakachat N, van Exel J, et al. Caring for a child with autism spectrum disorder and parents' quality of life: application of the CarerQol. J Autism Dev Disord. 2014;44(8):1933-45.

Hoefman R, Payakachat N, van Exel J, et al. Caring for a child with autism spectrum disorder and parents’ quality of life: application of the CarerQol. J Autism Dev Disord. 2014;44(8):1933-1945.

Johnson CR, Turner K, Stewart PA, et al. Relationship between feeding problems, behavioral characteristics, and nutritional quality in children with ASD. J Autism Dev Disord. 2014;44(9):2175-2184.

Johnson CR, Turner K, Stewart PA, et al. Relationship between problems, behavioral characteristics, and nutritional quality in children with ASD. J Autism Dev Disord. 2014;44(9):2175-84.

Kanne SM, Mazurek MO, Sikora D, et al. The Autism Impact Measure (AIM): initial development of a new tool for treatment outcome measurement. J Autism Dev Disord. 2014;44(1):168-179.

Kanne SM, Mazurek MO, Sikora D, et al. The Autism Impact Measure (AIM): Initial development of a new tool for treatment outcome measurement. J Autism Dev Disord. 2014;44(1):168-179.

Kuhlthau KA, Warfield ME, Hurson J, Delahaye J, Crossman MK. Pediatric provider's perspectives on the transition to adult health care for youth with autism spectrum disorder: current strategies and promising new directions. Autism. 2015;19(3):262-71.

Lane AE, Molloy CA, Bishop SL. Classification of children with autism spectrum disorder by sensory subtype: a case for sensory-based phenotypes. Autism Res. 2014;7(3):322-333.

Malow BA, Adkins KW, Reynolds A, et al. Parent-based sleep education for children with autism spectrum disorders. J Autism Dev Disord. 2014 ;44(1):216-228.

Malow BA, Adkins KW, Reynolds A, et al. Parent-based sleep education for children with autism spectrum disorders. J Autism Dev Disord. 2014;44(1):216-228.

Mazurek MO, Handen BL, Wodka EL, Nowinski L, Butter E, Engelhardt CR. Age at first autism spectrum disorder diagnosis: the role of birth cohort, demographic factors, and clinical features. J Dev Behav Pediatr. 2014;35(9):561-569.

Mazurek MO, Keefer A, Shui A, Vasa RA. One-year course and predictors of abdominal pain in children with autism spectrum disorders: the role of anxiety and sensory over-responsivity. Res Autism Spect Dis. 2014;8(11):1508-1515.

Mazurek MO, Keefer A, Shui A, Vasa RA. One-year course and predictors of abdominal pain in children with autism spectrum disorders: The role of anxiety and sensory over-responsivity. Research in Autism Spectrum Disorders. 2014;8(11):1508-15.

Payakachat N, Tilford JM, Kuhlthau KA, et al. Predicting health utilities for children with autism spectrum disorders. Autism Res. 2014;7(6):649-663.

Payakachat N, Tilford JM, Kuhlthau KA, et al. Predicting health utilities for children with autism spectrum disorders. Autism Res. 2014;7(6):649-663..

Vasa RA, Carroll LM, Nozzolillo AA, et al. A systematic review of treatments for anxiety in youth with Autism Spectrum Disorders. J Autism Dev Disord. 2014;44(12):3215-3229.

Vasa RA, Carroll LM, Nozzolillo AA, et al. A systematic review of treatments for anxiety in youth with autism spectrum disorders. J Autism Dev Disord. 2014;44(12):3215-3229.

Zuckerman KE, Hill AP, Guion K, Voltolina L, Fombonne E. Overweight and obesity: prevalence and correlates in a large clinical sample of children with autism spectrum disorder. J Autism Dev Disord. 2014;44(7):1708-1719.

Zuckerman KE, Hill AP, Guion K, Voltolina L. Overweight and obesity: prevalence and correlates in a large clinical sample of children with autism spectrum disorder. J Autism Dev Disord. 2014;44(7):1708-1719.

Ameis SH, Corbett-Dick P, Cole L, Correll CU. Decision making and antipsychotic medication treatment for youth with autism spectrum disorders: applying guidelines in the real world. J Clin Psychiatry. 2013;74(10):1022-1024.

Broder-Fingert S, Shui A, Pulcini CD, Kurowski D, Perrin JM. Racial and ethnic differences in subspecialty service use by children with autism. Pediatrics. 2013;132(1):94-100. Erratum in: Pediatrics. 2013;132(4):780.

Coury DL. DSM-5 and autism spectrum disorders: implications for families and clinicians. J Dev Behav Pediatr. 2013;34(7):494-496.

Coury, DL. DSM-5 and Autism Spectrum Disorders: Implications for Families and Clinicians. J Dev Behav Pediatr. 2013;34(7):494-496.

Fawkes DB, Malow BA, Weiss SK,et al. Conducting actigraphy research in children with neurodevelopmental disorders--a practical approach. Behav Sleep Med. 2015;13(3):181-196.

Hamlin JC, Pauly M, Melnyk S, et al. Dietary intake and plasma levels of choline and betaine in children with autism spectrum disorders. Autism Res Treat. 2013;2013:578429.

Hamlin JC, Pauly M, Melnyk S, et al. Dietary intake and plasma levels of choline and betaine in children with autism spectrum disorders. Autism Res Treat. 2013;2013:578429.

Kaat AJ, Lecavalier L, Aman MG. Validity of the Aberrant Behavior Checklist in Children with Autism Spectrum Disorder. J Autism Dev Disord.

Kaat AJ, Lecavalier L, Aman MG. Validity of the aberrant behavior checklist in children with autism spectrum disorder. J Autism Dev Disord. 2014 May;44(5):1103-1116.

Kuhlthau K, Orlich F, Hall TA, et al. Health-Related Quality of Life in children with autism spectrum disorders: results from the autism treatment network. J Autism Dev Disord. 2010 Jun;40(6):721-729.

Mazurek MO, Kanne SM, Wodka EL, Physical aggression in children and adolescents with autism spectrum disorders. Research in Autism Spectrum Disorders. 2013;7(3):455-465.

Mazurek MO, Kanne SM, Wodka EL. Physical aggression in children and adolescents with autism spectrum disorders. Research in Autism Spectrum Disorders. 2013;7(3):455-465.

Mazurek MO, Vasa RA, Kalb LG, et al. Anxiety, sensory over-responsivity, and gastrointestinal problems in children with autism spectrum disorders. J Abnorm Child Psychol. 2013;41(1):165-176.

Mazurek MO, Vasa RA, Kalb LG, et al. Anxiety, sensory over-responsivity, and gastrointestinal problems in children with autism spectrum disorders. J Abnorm Child Psychol. 2013;41(1):165-176.

Neumeyer AM, Gates A, Ferrone C, Lee H, Misra M. Bone density in peripubertal boys with autism spectrum disorders. J Autism Dev Disord. 2013;43(7):1623-9.

Peters B, Williams KC, Gorrindo P, et al. Rigid-compulsive behaviors are associated with mixed bowel symptoms in autism spectrum disorder. J Autism Dev Disord. 2014;44(6):1425-1432.

Peters B, Williams KC, Gorrindo P, et al. Rigid-compulsive behaviors associated with mixed bowel symptoms in Autism Spectrum Disorder. J Autism Dev Disord. 2014;44(6):1425-32.

Sikora D, Moran E, Orlich F, et al. The relationship between family functioning and behavior problems in children with autism spectrum disorders. Research in Autism Spectrum Disorders. 2013; 7:307-315.

Sikora D, Moran E, Orlich F, et al. The relationship between family functioning and behavior problems in children with autism spectrum disorders. Research in Autism Spectrum Disorders. 2013;7(2):307-315.

Vasa RA, Kalb L, Mazurek M, et al. Age-related differences in the prevalence and correlates of anxiety in youth with autism spectrum disorders. Research in Autism Spectrum Disorders. 2013;7(11):1358-1369.

Adkins KW, Molloy C, Weiss SK, et al. Effects of a standardized pamphlet on insomnia in children with autism spectrum disorders. Pediatrics. 2012;130 Suppl 2:S139-S144.

Adkins KW, Molloy C, Weiss SK, et al. Effects of a standardized pamphlet on insomnia in children with autism spectrum disorders. Pediatrics. 2012;130(Suppl 2):S139-S144.

Coury DL, Anagnostou E, Manning-Courtney P, et al. Use of psychotropic medication in children and adolescents with autism spectrum disorders. Pediatrics. 2012;130(Suppl 2):S69-S76.

Coury DL, Ashwood P, Fasano A, et al. Gastrointestinal conditions in children with autism spectrum disorder: developing a research agenda. Pediatrics. 2012;130(Suppl 2):S160-S168.

Foster EM, Pearson E. Is inclusivity an indicator of quality of care for children with autism in special education? Pediatrics. 2012;130 Suppl2:S179-S185.

Furuta GT, Williams K, Kooros K, et al. Management of constipation in children and adolescents with autism spectrum disorders. Pediatrics. 2012 Nov;130 Suppl 2:S98-S105.

Furuta GT, Williams K, Kooros K, et al. Management of constipation in children and adolescents with autism spectrum disorders. Pediatrics. 2012;130(Suppl 2):S98-S105.

Goldman SE, Richdale AL, Clemons T, Malow BA. Parental sleep concerns in autism spectrum disorders: variations from childhood to adolescence. J Autism Dev Disord. 2012;42(4):531-538.

Hyman SL, Stewart PA, Schmidt B, et al. Nutrient intake from food in children with autism. Pediatrics. 2012;130 Suppl 2:S145-S153.

Hyman SL, Stewart PA, Schmidt B, et al. Nutrient intake from food in children with autism. Pediatrics. 2012;130(Suppl 2):S145-S153.

Lajonchere C, Jones N, Coury DL, Perrin JM. Leadership in health care, research, and quality improvement for children and adolescents with autism spectrum disorders: Autism Treatment Network and Autism Intervention Research Network on Physical Health. Pediatrics. 2012 Nov;130 Suppl 2:S62-S68.

Lajonchere C, Jones N, Coury DL, Perrin JM. Leadership in health care, research, and quality improvement for children and adolescents with autism spectrum disorders: Autism treatment network and autism intervention research network on physical health. Pediatrics. 2012;130(Suppl 2):S62-S68.

Landa RJ, Kalb LG. Long-term outcomes of toddlers with autism spectrum disorders exposed to short-term intervention. Pediatrics. 2012;130 Suppl2:S186-S190.

Lin SC, Yu SM, Harwood RL. Autism spectrum disorders and developmental disabilities in children from immigrant families in the United States. Pediatrics. 2012 Nov;130 Suppl 2:S191-S197.

Maglione MA, Gans D, Das L, Timbie J, Kasari C; Technical Expert Panel; HRSA Autism Intervention Research Behavioral (AIR-B) Network. Nonmedical interventions for children with ASD: recommended guidelines and further research needs. Pediatrics. 2012;130 Suppl 2:S169-S178.

Mahajan R, Bernal MP, Panzer R, et al. Clinical practice pathways for evaluation and medication choice for attention-deficit/hyperactivity disorder symptoms in autism spectrum disorders. Pediatrics. 2012;130 Suppl 2:S125-S138.

Mahajan R, Bernal MP, Panzer R, et al. Clinical practice pathways for evaluation and medication choice for attention-deficit/hyperactivity disorder symptoms in autism spectrum disorders. Pediatrics. 2012;130(Suppl 2):S125-S138.

Malow BA, Byars K, Johnson K, et al. A practice pathway for the identification, evaluation, and management of insomnia in children and adolescents with autism spectrum disorders. Pediatrics. 2012;130(Suppl 2):S106-S124.

Malow BA, Byars K, Johnson K, et al. Sleep Committee of the Autism Treatment Network. A practice pathway for the identification, evaluation, and management of insomnia in children and adolescents with autism spectrum disorders. Pediatrics. 2012 Nov;130 Suppl 2:S106-S124.

Neumeyer AM, Gates A, Ferrone C, Lee H, Misra M. Bone density in peripubertal boys with autism spectrum disorders. J Autism Dev Disord.

Park HY, Lin SC, Harwood RL, Yu SM, Kavanagh L. Autism Intervention Research Programs of the Maternal and Child Health Bureau. Pediatrics. 2012;130 Suppl 2:S59-S61.

Perrin JM, Coury DL, Hyman SL, Cole L, Reynolds AM, Clemons T. Complementary and alternative medicine use in a large pediatric autism sample. Pediatrics. 2012 Nov;130 Suppl 2:S77-S82.

Perrin JM, Coury DL, Hyman SL, Cole L, Reynolds AM, Clemons T. Complementary and alternative medicine use in a large pediatric autism sample. Pediatrics. 2012;130(Suppl 2):S77-S82.

Perrin JM, Coury DL, Jones N, Lajonchere C. The Autism Treatment Network and Autism Intervention Research Network on Physical Health: future directions. Pediatrics. 2012;130 Suppl 2:S198-S201.

Perrin JM, Coury DL, Jones N, Lajonchere C. The autism treatment network and autism intervention research network on physical health: Future directions. Pediatrics. 2012;130(Suppl 2):S198-S201.

Perrin JM, Coury DL. Improving health care for children and youth with autism and other neurodevelopmental disorders. editors' note and prologue. Pediatrics. 2012;130(Suppl 2):S57-S58.

Perrin JM, Coury DL. Improving health care for children and youth with autism and other neurodevelopmental disorders. Editors' note and prologue. Pediatrics.2012;130 Suppl 2:S57-S58.

Reynolds A, Krebs NF, Stewart PA, et al. Iron status in children with autism spectrum disorder. Pediatrics. 2012 Nov;130 Suppl 2:S154-S159.

Reynolds A, Krebs NF, Stewart PA, et al. Iron status in children with autism spectrum disorder. Pediatrics. 2012;130 Suppl 2:S154-S159.

Sikora DM, Johnson K, Clemons T, Katz T. The relationship between sleep problems and daytime behavior in children of different ages with autism spectrum disorders. Pediatrics. 2012;130 Suppl 2:S83-S90.

Sikora DM, Johnson K, Clemons T, Katz T. The relationship between sleep problems and daytime behavior in children of different ages with autism spectrum disorders. Pediatrics. 2012;130(Suppl 2):S83-S90.

Sikora DM, Vora P, Coury DL, Rosenberg D. Attention-deficit/hyperactivity disorder symptoms, adaptive functioning, and quality of life in children with autism spectrum disorder. Pediatrics. 2012 Nov;130 Suppl 2:S91-S97.

Sikora DM, Vora P, Coury DL, Rosenberg D. Attention-deficit/hyperactivity disorder symptoms, adaptive functioning, and quality of life in children with autism spectrum disorder. Pediatrics. 2012;130(Suppl 2):S91-S97.

Tilford JM, Payakachat N, Kovacs E, et al. Preference-based health-related quality-of-life outcomes in children with autism spectrum disorders: a comparison of generic instruments. Pharmacoeconomics. 2012; 1;30(8):661-679.

Tilford JM, Payakachat N, Kovacs E, et al. Preference-based health-related quality-of-life outcomes in children with autism spectrum disorders: A comparison of generic instruments. Pharmacoeconomics. 2012;30(8):661-679.

Coury D. Very little high-quality evidence to support most medications for children with autism spectrum disorders. J Pediatr. 2011 Nov;159(5):872-873.

Coury D. Very little high-quality evidence to support most medications for children with autism spectrum disorders. J Pediatr. 2011;159(5):872-873.

Coury DL. Review: Little evidence of clear benefit for most medical treatments for children with autism spectrum disorders. Evid Based Ment Health. 2011;14(4):105.

Goldman SE, McGrew S, Johnson KP, Richdale AL, Clemons T, Malow BA. Sleep is associated with problem behaviors in children and adolescents with autism spectrum disorders. Res Autism Spectr Disord. 2011;5(3):1223-1229.

Goldman SE, McGrew S, Johnson KP, Richdale AL, Clemons T, Malow BA9. Sleep is associated with problem behaviors in children and adolescents with Autism Spectrum Disorders. Res Autism Spectr Disord. 2011;5(3):1223-1229.

Goldman SE, Richdale AL, Clemons T, Malow BA. Parental sleep concerns in autism spectrum disorders: variations from childhood to adolescence. J Autism Dev Disord. 2012;42(4):531-538.

Kanne SM, Mazurek MO. Aggression in children and adolescents with ASD: prevalence and risk factors. J Autism Dev Disord. 2011 Jul;41(7):926-937.

Kanne SM, Mazurek MO. Aggression in children and adolescents with ASD: Prevalence and risk factors. J Autism Dev Disord. 2011;41(7):926-937.

Perrin JM, Kolls JK, Coury DL. Evidence-based practice and health advocacy organizations. JAMA. 2011 Oct 5;306(13):1443; author reply 1444-1445.

Perrin JM, Kolls JK, Coury DL. Evidence-based practice and health advocacy organizations. JAMA. 2011 Oct 5;306(13):1443;author reply 1444-1445.

Perrin JM. Children with special health care needs and changing policy. Acad Pediatr. 2011;11(2):103-104.

Perrin, JM. Children with special health care needs and changing policy. Acad Pediatr. 2011;11(2):103-104.

Coury D. Medical treatment of autism spectrum disorders. Curr Opin Neurol. 2010;23(2):131-136.

Kuhlthau K, Orlich F, Hall TA, et al. Health-Related Quality of Life in children with autism spectrum disorders: results from the autism treatment network. J Autism Dev Disord. 2010 Jun;40(6):721-729.

Coury D, Jones NE, Klatka K, Winklosky B, Perrin JM. Healthcare for children with autism: the Autism Treatment Network. Curr Opin Pediatr, 2009;21(6):828-832.

Coury D, Jones NE, Klatka K, Winklosky B, Perrin JM. Healthcare for children with autism: the Autism Treatment Network. Curr Opin Pediatr; 2009;21(6):828-832.

Kogan MD, Blumberg SJ, Schieve LA, et al. Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics. 2009 Nov;124(5):1395-1403.

Kogan MD, Blumberg SJ, Schieve LA, et al. Prevalence of parent‐reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics. 2009;124(5):1395-1403.

Allik H, Larsson JO, Smedje H. Health-related quality of life in parents of school-age children with Asperger Syndrome or High-Functioning Autism. Health Qual Life Outcomes. 2006 Jan 4;4:1.

Keywords

Autism, Nutrition & Diet, Sleep, Clinical Practice, Developmental Disabilities, Special Health Care Needs

Title V in Your State