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Healthy Weight Research Network (HW-RN) for Children with Autism Spectrum Disorders and Developmental Disabilities (ASD/DD)

Project Website
Principal Investigator: Linda G. Bandini
Project Number: UA3MC25735
Grantee: University of Massachusetts Medical School
Department/Center: E.K. Shriver Center
Project Date: 7/1/2016

Age

  • Perinatal/Infancy (0-12 months)
  • Toddlerhood (13-35 months)
  • Early Childhood (3-5 years)
  • Middle Childhood (6-11 years)
  • Adolescence (12-18 years)
  • Young Adulthood (19-25 years)

Abstract

Problem:

Obesity is a significant problem for children with ASD/DD. Although considerable research exists on obesity in children generally, research is limited on children with ASD/DD. Goals & Objectives: The overarching goal of the HWRN is to build research capacity that will accelerate the pace of research, achieved by a consensus-driven research agenda. Goal 1: Sustain and expand a national, interdisciplinary research network that focuses on promoting healthy weight among children with ASD/DD. Objectives: (1) Maintain a Network infrastructure that engages, supports, and promotes the work of the HWRN and its members; (2) Review/refine our consensus-driven research agenda; and (3) Expand HWRN membership by encouraging researchers in obesity and ASD/DD fields to become involved with the Network, to build collaborative bridges between these two spheres. Goal 2: Develop and implement research protocols that fulfill the aims of the network's research agenda. Objectives: (1) Fund 2 pilot projects per year corresponding to the HWRN research agenda; (2) Conduct 1 secondary data analysis annually on prevalence, risk factors, and/or other relevant correlates of weight status in children with ASD/DD; and (3) Collaborate on 2+ extramural grant proposals to leverage additional funding to support HWRN work. Goal 3: Disseminate network research findings to diverse audiences. Objectives: (1) Submit 2+ papers to peer-reviewed journals annually; (2) Present HWRN research findings at national meetings; (3) Disseminate HWRN research findings relevant to/written for clinicians, family members, self-advocates, and other lay audiences, including guidelines/tool kits providing guidance on preventing or managing obesity in youth with ASD/DD; and (4) Provide HWRN membership with a compilation of the current research on HWRN-related topics. Proposed Activities & Target Populations: The HWRN will: (1) conduct research on the prevalence of overweight/obesity, key risk factors, and obesity-related health conditions among youth with ASD/DD including under-served populations; (2) engage in formative work on physical activity and healthy eating; (3) conduct efficacy/feasibility studies on interventions designed to prevent/reduce excessive weight among youth with ASD/DD; (4) leverage external funding for research that fulfills the HWRN research agenda; and (5) disseminate findings and guidelines to broad research, clinical, and lay audiences.

Coordination:

The HWRN is composed of a national, interdisciplinary team of established researchers with expertise in ASD/DD and/or obesity and a wide array of Associate Members and Subscribers that represent clinicians, policy makers, researchers, family members, and selfadvocates. We collaborate with several organizations including the AUCD, LEND and UCEDD programs, the AIR-P, DBP-Net, and present at national meetings concerned with both developmental disabilities, obesity and health promotion. Products: 10+ peer-reviewed articles; 15+ research presentations; 5 webinars; 15 research summaries; 20 Research Digests; 20 Newsletters; 60 HWRN Funding Bulletins

Evaluation:

Program outcomes will assessed by: the extent to which the aims of each objective have been met and feedback from HWRN membership and constituents.

Publications

Listed is descending order by year published.

Amo-Setién F, Abajas-Bustillo R, Sarabia-Cobo C, et al. Prevalence and factors associated with overweight and obesity among Spanish students attending special education schools. J Appl Res Intellect Disabil. 2020 May; 33(3): 364-372.

Curtin C, Hyman SL, Boas DD, et al. Weight management in primary care for children with autism: expert recommendations. Pediatrics. 2020 Apr; 145(Suppl 1): S126-s139.

Folta SC, Curtin C, Must A, Pehrson A, Ryan K, Bandini L. Impact of selective eating on social domains among transition-age youth with autism spectrum disorder: A qualitative study. J Autism Dev Disord. 2020 Aug; 50(8): 2902-2912.

Walls M, Curtin C, Phillips S, Eliasziw M, Jacke C, Must A, Bandini L, Broder-Fingert S. (2020) Developmental and behavioral pediatricians’ diagnosis and management of overweight and obesity in children with Autism Spectrum Disorder. Journal of Developmental & Behavioral Pediatrics.[Published online ahead of print]. doi:10.1097/DBP.000000000000078

Walls M, Curtin C, Phillips S, et al. Developmental-behavioral pediatricians' diagnosis and coding of overweight and obesity in children with Autism Spectrum Disorder. J Dev Behav Pediatr. 2020 May; 41(4): 258-264.

Amo‐Setién F, Abajas‐Bustillo R, Sarabia‐Cobo C, Parás‐Bravo P, Leal‐Costa C, Redondo‐Figuero C, Bandini L. Prevalence and factors associated with overweight and obesity among Spanish students attending special education schools. Journal of Applied Research in Intellectual Disabilities.

Bandini LG, Curtin C, Eliasziw M, Phillips S, Jay L, Maslin M, Must A. Food selectivity in a diverse sample of young children with and without intellectual disabilities. Appetite. 2019;133, 433-440.

Forseth B, Papanek PE, Bandini L, Schoeller D, Moosreiner A, Sawin KJ, Polfuss M. Feasibility and acceptability of a self-report activity diary in families of children with and without special needs. Comprehensive Child and Adolescent Nursing. 2019;42(4):293-303.

Matheson BE, Drahota A, Boutelle KN. A pilot study investigating the feasibility and acceptability of a parent-only behavioral weight-loss treatment for children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders. 2019;49(11):4488-4497.

Stanish HI, Curtin C, Must A, Phillips S, Maslin M, Bandini LG. (2019). Does physical activity differ between youth with and without intellectual disabilities? Disability and Health Journal. 2019;12(3):503-508.

Tybor DJ, Eliasziw M, Kral TV, Segal M, Sherwood NE, Sikich L, Must A (2019). Parental concern regarding obesity in children with autism spectrum disorder in the United States: National Survey of Children's Health 2016. Disability and Health Journal. 2019;12(1):126-130.

Chistol LT, Bandini LG, Must A, Phillips S, Cermak SA, Curtin C. Sensory Sensitivity and Food Selectivity in Children with Autism Spectrum Disorder. J Autism Dev Disord. 2018 Feb;48(2):583-591.

Egbert AH, Wilfley DE, Eddy KT, Boutelle KN, Zucker N, Peterson CB, Celio Doyle A, Le Grange D, Goldschmidt AB. Attention-Deficit/Hyperactivity Disorder Symptoms Are Associated with Overeating with and without Loss of Control in Youth with Overweight/Obesity. Child Obes. 2018 Jan;14(1):50-57.

Ptomey LT, Saunders RR, Saunders M, Washburn RA, Mayo MS, Sullivan DK, Gibson CA, Goetz JR, Honas JJ, Willis EA, Danon JC, Krebill R, Donnelly JE. Weight management in adults with intellectual and developmental disabilities: A randomized controlled trial of two dietary approaches. J Appl Res Intellect Disabil. 2018 Jan;31 Suppl 1:82-96.

Frey GC, Temple VA, Stanish HI. Interventions to promote physical activity for youth with intellectual disabilities. Salud Publica Mex. 2017 Jul-Aug;59(4):437-445.

Lai B, Young HJ, Bickel CS, Motl RW, Rimmer JH. Current Trends in Exercise Intervention Research, Technology, and Behavioral Change Strategies for People With Disabilities: A Scoping Review. Am J Phys Med Rehabil. 2017 Oct;96(10):748-761.

Polfuss M, Sawin KJ, Papanek PE, Bandini L, Forseth B, Moosreiner A, Zvara K, Schoeller DA. Total energy expenditure and body composition of children with developmental disabilities. Disabil Health J. 2017 Dec 28. pii: S1936-6574(17)30233-9.

Ptomey LT, Willis EA, Greene JL, Danon JC, Chumley TK, Washburn RA, Donnelly JE. The Feasibility of Group Video Conferencing for Promotion of Physical Activity in Adolescents With Intellectual and Developmental Disabilities. Am J Intellect Dev Disabil. 2017 Nov;122(6):525-538.

Ptomey LT, Willis EA, Lee J, Washburn RA, Gibson CA, Honas JJ, Donnelly JE. The feasibility of using pedometers for self-report of steps and accelerometers for measuring physical activity in adults with intellectual and developmental disabilities across an 18-month intervention. J Intellect Disabil Res. 2017 Aug;61(8):792-801.

Rimmer JH, Padalabalanarayanan S, Malone LA, Mehta T. Fitness facilities still lack accessibility for people with disabilities. Disabil Health J. 2017 Apr;10(2):214-221

Rimmer JH. Equity in active living for people with disabilities: Less talk and more action. Prev Med. 2017 Feb;95 Suppl:S154-S156.

Temple VA, Frey GC, Stanish HI. Interventions to promote physical activity for adults with intellectual disabilities. Salud Publica Mex. 2017 Jul-Aug;59(4):446-453

Weems M, Truex L, Scampini R, Fleming R, Curtin C, Bandini L. A Novel Weight-Loss Tool Designed for Adolescents with Intellectual Disabilities. J Acad Nutr Diet. 2017 Oct;117(10):1503-1508.

Wilroy J, Mehta T, Pekmezi D, Thirumalai M, Young HJ, Rimmer, J. Scale Up Project Evaluating Responsiveness to Home Exercise And Lifestyle Tele-Health (SUPER HEALTH). Arch Phys Med Rehabil. 2017;98(10), e107.

Must A, Curtin C, Hubbard K, Sikich L, Bedford J, Bandini L. Obesity prevention for children with developmental disabilities. Curr Obes Rep. 2014; 3(2): 156-170.


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