MCH Measurement Research Network (MRN)

Project Number: U3DMC32755
Grantee: Rutgers, The State Univesity of New Jersey
Department/Center:
Project Date: 09/01/2019
Principal Investigator: Lawrence Kleinmnan

Final Report

Pending

Age

  • Prenatal
  • Perinatal/Infancy (0-12 months)
  • Toddlerhood (13-35 months)
  • Early Childhood (3-5 years)
  • Middle Childhood (6-11 years)
  • Adolescence (12-18 years)
  • Women/Maternal

Targeted/Underserved Population

  • African American
  • Hispanic/Latino
  • Native American/Alaskan Native
  • Low-income

Abstract

PROBLEM: Maternal and Child Health (MCH) suffers from a relative deficit as compared to adult health in measures that stimulate and support efforts to improve outcomes and make them more equitable. Specifically, MCH requires enhancements of MCH researchers’ capacity to measure the value of care to maternal and child population regarding positive health and family engagement. Without such advances, MCH populations may be systematically disadvantaged even by well-intended health policies and practices. GOAL(S) AND OBJECTIVES: 1) Increase the quality of options available for MCH measurement by convening and deploying a collaborative infrastructure for multi-site MCH measurementresearch. 2) Develop, Evaluate and Assess prioritized MCH measures for use in specified populations and contexts using the Collaborating Research Entity environment developed by the Network. Support and advocate for their thoughtful implementation.3) Identify opportunities for and promote the translation of our findings into policy and practice for the benefit of health and health equity in MCH populations. 4) Renew, revise, and disseminate research agenda for MCH measurement annually, while maintaining, updating and communicating the MCH MRN measure compendium. PROPOSED ACTIVITIES AND TARGET POPULATION(S): Convene, develop, and extend an interdisciplinary Network for MCH measurement research; engage a diverse group of key stakeholders; Support, inform, and leverage research and evaluation regarding HRSA-funded and other MCH activities; update and disseminate a research agenda and compendium of existing MCH measures; and generate, conduct, and disseminate multi-site assessments of potential metrics and methods for MCH research. Innovations include the novel integration of several key HRSA and NIH-funded research networks, the initial focus and the conceptual framing that fills a gap in assessing the value of MCH services. COORDINATION: The applicant will develop the network as a community of practice using principles of engagement. It will be a dynamic, growing collaboration partnered with HRSA MCHB. Monthly meetings will help to ensure effective coordination among our interdisciplinary Collaborating Research Entities (CRE), which include the AAAP PROS research network; HRSA funded Children and Youth with Special Health Care Needs (CYSHCNet) research network; NIH-funded Environmental influences on Child Health Outcomes (ECHO) research program’s Person Reported Outcomes (PRO) Core; clinical practices that care for diverse pediatric populations including socially disadvantaged, complex, and with developmental disabilities; and an electronic health record databases. PRODUCTS: New metrics and new knowledge regarding their use. Peer reviewed publications and online and networked dissemination, Updated MCH MRN research agenda and compendium of measures for potential use in MCH research and evaluation. Dissemination includes exhibiting at national meetings, publication, white papers and social media. EVALUATION: Consistent with our logic model, we will describe activities, outputs, and outcomes of our work, including the diverse stakeholder engagement.

Publications

Listed is descending order by year published.

Adams SH, Park MJ, Twietmeyer L, Brindis CD, Irwin CE Jr. Young adult preventive healthcare: changes in receipt of care pre- to post-Affordable Care Act. J Adolesc Health. 2019 Jun;64(6):763-769.

Azuine RE, Ji Y, Chang HY, Kim Y, Ji H, DiBari J, Hong X, Wang G, Singh GK, Pearson C, Zuckerman B, Surkan PJ, Wang X. Prenatal risk factors and perinatal and postnatal outcomes associated with maternal opioid exposure in an urban, low-income, multiethnic US population. JAMA Netw Open. 2019 Jun 5;2(6):e196405.

Baker C, Feinstein JA, Ma X, Bolen S, Dawson NV, Golchin N, Horace A, Kleinman LC, Meropol SB, Pestana Knight EM, Winterstein AG, Bakaki PM. Variation of the prevalence of pediatric polypharmacy: a scoping review. Pharmacoepidemiol Drug Saf. 2019 Mar;28(3):275-287.

Bardach NS, Neel C, Kleinman LC, McCulloch CE, Thombley R, Zima BT, Grupp-Phelan J, Coker TR, Cabana MD. Depression, anxiety, and emergency department use for asthma. Pediatrics. 2019 Oct;144(4). Doi: 10.1542/peds.2019-0856.

Bennett AC, Gibson C, Rohan AM, Howland JF, Rankin KM. Mental health and substance use-related hospitalizations among women of reproductive age in Illinois and Wisconsin.Public Health Rep. 2019 Jan/Feb;134(1):17-26.

Bergum A, Grigg L, Givens ML, Booske Catlin B, Willems Van Dijk J. How to be an informed consumer of evidence ratings: it's in the details. Prev Chronic Dis. 2019 Sep 5;16:E121.

Bethell CD, Gombojav N, Whitaker RC. Family resilience and connection promote flourishing among US children, even amid adversity. Health Aff (Millwood). 2019 May;38(5):729-737.

Bethell CD, Jones J, Gombojav N, Linkenbach J, Sege R. Positive childhood experiences and adult mental and relational health in a statewide sample: associations across Adverse Childhood Experiences levels. JAMA Pediatr. 2019 Sep 9:e193007.

Blackwell CK, Elliott AJ, Ganiban J, Herbstman J, Hunt K, Forrest CB, Camargo CA Jr. General health and life satisfaction in children with chronic illness. Pediatrics. 2019 June; 143(6).

Brady KJS, Grant G, Stoddard FJ, Meyer WJ, Romanowski KS, Chang PH, Painting LE, Fowler LA, Nelson JK, Rivas P, Epperson K, Sheridan RL, Murphy M, O'Donnell EH, Ceranoglu TA, Sheldrick RC, Ni P, Slavin MD, Warner P, Palmieri TL, Schneider JC, Kazis LE, Ryan CM. Measuring the impact of burn Injury on the parent-reported health outcomes of children 1- to 5- years: a conceptual framework for development of the preschool Life Impact Burn Recovery Evaluation (LIBRE) profile CAT. J Burn Care Res. 2019 Jun 21. pii: irz110.

Brady KJS, Kazis LE, Sheldrick RC, Ni P, Trockel MT. Selecting physician well-being measures to assess health system performance and screen for distress: Conceptual and methodological considerations. Curr Probl Pediatr Adolesc Health Care. 2019 Sep 24:100662.

Burnette CE, Boel-Studt S, Renner LM, Figley CR, Theall KP, Miller Scarnato J, Billiot S. The Family Resilience Inventory: a culturally grounded measure of current and family-of-origin protective processes in Native American families. Fam Process. 2019 Feb 27.

Cella D, Choi SW, Condon DM, Schalet B, Hays RD, Rothrock NE, Yount S, Cook KF, Gershon RC, Amtmann D, DeWalt DA, Pilkonis PA, Stone AA, Weinfurt K, Reeve BB. PROMIS® Adult Health Profiles: efficient short-form measures of seven health domains. Value Health. 2019 May;22(5):537-544.

Chaparro MP, Bilfield A, Theall KP. Exposure to neighborhood crime is associated with lower levels of physical activity and higher obesity risk among adolescent girls, but not boys. Child Obes. 2019 Feb/Mar;15(2):87-92.

Cheng TL, Mistry KB. The uniqueness and importance of children in addressing health disparities across the life course: implications for research. Epidemiology. 2019 Nov;30 Suppl 2:S60-S64.

Collins JW, Rankin KM, Desisto C, David RJ. Early and late preterm birth rates among US-born urban women: the effect of men's lifelong class status. Matern Child Health J. 2019 Dec;23(12):1621-1626.

Conrey EJ, Manning SE, Shellhaas C, Somerville NJ, Stone SL, Diop H, Rankin K, Goodman D. Severe maternal morbidity, a tale of 2 states using data for action-Ohio and Massachusetts. Matern Child Health J. 2019 Aug;23(8):989-995.

Cunningham-Myrie CA, Royal-Thomas TY, Bailey AE, Gustat J, Theall KP, Harrison JE, Reid ME. Use of a public park for physical activity in the Caribbean: evidence from a mixed methods study in Jamaica. BMC Public Health. 2019 Jul 8;19(1):894.

DeSisto CL, Kroelinger CD, Estrich C, Velonis A, Uesugi K, Goodman DA, Pliska E, Akbarali S, Rankin KM. Application of an implementation science framework to policies on immediate postpartum long-acting reversible contraception. Public Health Rep. 2019 Mar/Apr;134(2):189-196.

Enstad S, Rankin K, Desisto C, Collins JW Jr. Father's lifetime socioeconomic status, small for gestational age infants, and infant mortality: a population-based study. Ethn Dis. 2019 Jan 17;29(1):9-16.

Esteves KC, Jones CW, Wade M, Callerame K, Smith AK, Theall KP, Drury SS. Adverse Childhood Experiences: implications for offspring telomere length and psychopathology. Am J Psychiatry. 2019 Sep 6.

Fabiyi CA, Reid LD, Mistry KB. Postpartum health care use after gestational diabetes and hypertensive disorders of pregnancy. J Womens Health (Larchmt). 2019 Aug;28(8):1116-1123.

Fleckman JM, Taylor CA, Theall KP, Andrinopoulos K. The association between perceived injunctive norms toward corporal punishment, parenting support, and risk for child physical abuse. Child Abuse Negl. 2019 Feb;88:246-255.

Garg A, Tripodis Y, Dworsky ZD, Sege RD. Do basic unmet maternal needs influence infant maltreatment risk? A nested case-control study. Clin Pediatr (Phila). 2019 Apr;58(4):461-465.

Goldin Evans M, Broyles S, Frederiksen B, Gee RE, Phillippi S, Sothern M, Theall KP, Wightkin J. Long-acting reversible contraceptive utilization after policy change increasing device reimbursement to wholesale acquisition cost in Louisiana. Am J Obstet Gynecol. 2019 Aug;221(2):128.e1-128.e10.

Griffith TT, Bell AF, Vincent C, White-Traut R, Medoff-Cooper B, Rankin K. Oral feeding success: a concept analysis. Adv Neonatal Care. 2019 Feb;19(1):21-31.

Hanson CL, Crandall A, Barnes MD, Magnusson B, Novilla MLB, King J. Family-focused public health: supporting homes and families in policy and practice. Front Public Health. 2019 Mar 20;7:59.

Hohl BC, Kondo MC, Kajeepeta S, MacDonald JM, Theall KP, Zimmerman MA, Branas CC. Creating safe and healthy neighborhoods with place-based violence interventions. Health Aff (Millwood). 2019 Oct;38(10):1687-1694.

Kaat AJ, Blackwell CK, Estabrook R, Burns JL, Petitclerc A, Briggs-Gowan MJ, Gershon RC, Cella D, Perlman SB, Wakschlag LS. Linking the Child Behavior Checklist (CBCL) with the Multidimensional Assessment Profile of Disruptive Behavior (MAP-DB): advancing a dimensional spectrum approach to disruptive behavior. J Child Fam Stud. 2019 Feb;28(2):343-353.

Kahwati LC, Sorensen AV, Teixeira-Poit S, Jacobs S, Sommerness SA, Miller KK, Pleasants E, Clare HM, Hirt CL, Davis SE, Ivester T, Caldwell D, Muri JH, Mistry KB. Impact of the Agency for Healthcare Research and Quality's Safety Program for Perinatal Care. Jt Comm J Qual Patient Saf. 2019 Apr;45(4):231-240.

Kotzky K, Allen JE, Robinson LR, Satterfield-Nash A, Bertolli J, Smith C, Ornelas Pereira I, Faria E Silva Santelli AC, Peacock G. Depressive symptoms and care demands among primary caregivers of young children with evidence of congenital Zika virus infection in Brazil. J Dev Behav Pediatr. 2019 Jun;40(5):344-353.

Lantos H, Manlove J, Wildsmith E, Faccio B, Guzman L, Moore KA. Parent-Teen Communication about sexual and reproductive health: cohort differences by race/ethnicity and nativity. Int J Environ Res Public Health. 2019 Mar 7;16(5).

Larson S, Brindis CD, Chapman SA, Spetz J. Rates of exposure to victimizing events and use of substances among California's middle and high school students. J Sch Nurs. 2019 Apr;35(2):137-146.

Machtinger EL, Davis KB, Kimberg LS, Khanna N, Cuca YP, Dawson-Rose C, Shumway M, Campbell J, Lewis-O'Connor A, Blake M, Blanch A, McCaw B. From treatment to healing: inquiry and response to recent and past trauma in adult health care. Women's Health Issues. 2019 Mar - Apr;29(2):97-102.

Maffei VJ, Ferguson TF, Brashear MM, Mercante DE, Theall KP, Siggins RW, Taylor CM, Molina P, Welsh DA. Lifetime alcohol use among persons living with HIV is associated with frailty. AIDS. 2019 Nov 9.

Malhotra NA, Nevar A, Yearby R, Kleinman LC, Ronis SD. Medicaid's EPSDT benefit: an opportunity to improve pediatric screening for social determinants of health. Med Care Res Rev. 2019 Sep 15:1077558719874211.

Miller MR, Mistry KB. Developing pediatric patient safety research priorities. Pediatrics. 2019 Feb;143(2). Pii: e20182970.

Molina Y, San Miguel C, Sanz S, San Miguel L, Rankin K, Handler A. Adapting to a shifting health care landscape: Illinois Breast and Cervical Cancer Program lead agencies' perspectives. Health Promot Pract. 2019 Jul;20(4):600-607.

Mydam J, David RJ, Rankin KM, Collins JW. Low birth weight among infants born to Black Latina women in the United States. Matern Child Health J. 2019 Apr;23(4):538-546.

Owens JA, Dearth-Wesley T, Herman AN, Whitaker RC. Drowsy driving, sleep duration, and chronotype in adolescents. J Pediatr. 2019 Feb;205:224-229.

Perou R, Robinson LR, Danielson ML, Claussen AH, Visser SN, Scott KG, Beckwith L, Katz L, Smith DC. The Legacy for Children™ randomized control trial: effects on cognition through third grade for young children experiencing poverty. J Dev Behav Pediatr. 2019 May;40(4):275-284.

Power ML, Lott ML, Mackeen AD, DiBari JN, Schulkin J. Associations between maternal Body Mass Index, gestational weight gain, maternal complications, and birth outcome in singleton, term births in a largely non-Hispanic white, rural population. J Womens Health (Larchmt). 2019 Nov;28(11):1563-1568.

Raskind IG, Chapple-McGruder T, Mendez DD, Kramer MR, Liller KD, Cilenti D, Wingate MS, Castrucci BC, Gould E, Stampfel C. MCH workforce capacity: maximizing opportunities afforded by a changing public health system. Matern Child Health J. 2019 Jul;23(7):979-988.

Raymond-Flesch M, Lucia L, Jacobs K, Brindis CD. Improving Medicaid access in times of health policy change: solutions from focus groups with frontline enrollment workers. J Health Care Poor Underserved. 2019;30(1):280-296.

Ronis SD, Grossberg R, Allen R, Hertz A, Kleinman LC. Estimated nonreimbursed costs for care coordination for children with medical complexity. Pediatrics. 2019 Jan;143(1).

Ronis SD, Kleinman LC, Stange KC. A learning loop model of collaborative decision-making in chronic illness. Acad Pediatr. 2019 Jul;19(5):497-503

Rothrock NE, Bass M, Blumenthal A, Gershon RC, Hanson B, Joeris A, Kaat A, Morrison S, O'Toole RV, Patel S, Stover M, Weaver MJ, White R, Varela Diaz M, Vrahas MS. AO patient outcomes center: design, implementation, and evaluation of a software application for the collection of patient-reported outcome measures in orthopedic outpatient clinics. JMIR Form Res. 2019 Apr 12;3(2):e10880.

Rothrock NE, Kaat AJ, Vrahas MS, OʼToole RV, Buono SK, Morrison S, Gershon RC. Validation of PROMIS physical function instruments in patients with an orthopaedic trauma to a lower extremity. J Orthop Trauma. 2019 Aug;33(8):377-383.

Ruggiero K, Pratt P, Antonelli R. Improving outcomes through care coordination: Measuring care coordination of nurse practitioners. J Am Assoc Nurse Pract. 2019 Aug;31(8):476-481.

Schiff JS, Antonelli RC. Measurement that matters-joy in the village!. Psychiatr Serv. 2019 May 1;70(5):357.

Shenkman E, Tomar S, Manning D, Davis D, Sun Y, Amundson CW, Mistry K. Feasibility and usability of measuring receipt of sealants in 2 states. J Am Dent Assoc. 2019 Oct;150(10):839-845.

Singh GK, DiBari JN. Marked disparities in pre-pregnancy obesity and overweight prevalence among US women by race/ethnicity, nativity/immigrant status, and sociodemographic characteristics, 2012-2014. J Obes. 2019 Feb 10;2019:2419263.

Theall KP, Chaparro MP, Denstel K, Bilfield A, Drury SS. Childhood obesity and the associated roles of neighborhood and biologic stress. Prev Med Rep. 2019 Mar 18;14:100849.

Upadhya KK, Psoter KJ, Connor KA, Mistry KB, Levy DJ, Cheng TL. Cluster randomized trial of a pre/interconception health intervention for mothers in pediatric visits. Acad Pediatr. 2019 Oct 17.

Vilda D, Wallace M, Dyer L, Harville E, Theall K. Income inequality and racial disparities in pregnancy-related mortality in the US. SSM Popul Health. 2019 Aug 28;9:100477.

Wallace M, Felker-Kantor E, Madkour A, Ferguson T, Welsh D, Molina P, Theall KP. Adverse Childhood Experiences, smoking and alcohol use, and allostatic load among people living with HIV. AIDS Behav. 2019 Sep 26.

Wallace ME, Crear-Perry J, Green C, Felker-Kantor E, Theall K. Privilege and deprivation in Detroit: infant mortality and the Index of Concentration at the Extremes. Int J Epidemiol. 2019 Feb 1;48(1):207-216.

Wang G, DiBari J, Bind E, Steffens AM, Mukherjee J, Azuine RE, Singh GK, Hong X, Ji Y, Ji H, Pearson C, Zuckerman BS, Cheng TL, Wang X. Association between maternal exposure to lead, maternal folate status, and intergenerational risk of childhood overweight and obesity. JAMA Netw Open. 2019 Oct 2;2(10):e1912343.

Whitaker RC, Dearth-Wesley T, Herman AN, Oakes JM, Owens JA. A quasi-experimental study of the impact of school start time changes on adolescents' mood, self-regulation, safety, and health. Sleep Health. 2019 Oct;5(5):466-469.

Whitaker RC, Herman AN, Dearth-Wesley T, Hubbell K, Huff R, Heneghan LJ, Rowe PC. The association of fatigue with dispositional mindfulness: relationships by levels of depressive symptoms, sleep quality, childhood adversity, and chronic medical conditions. Prev Med. 2019 Dec;129:105873.

Whitaker RC, Herman AN, Dearth-Wesley T, Smith HG, Burnim SB, Myers EL, Saunders AM , Kainz K. Effect of a trauma-awareness course on teachers' perceptions of conflict with preschool-aged children from low-income urban households: a cluster randomized clinical trial. JAMA Netw Open.2019 Apr 5;2(4):e193193.