Research focused on autistic youth transitioning into adulthood has not kept pace with the rapid growth in size needs or diversity of this group. Research efforts to date have been limited in scope conducted in siloes (e.g. focused only on health care) and have not deployed a comprehensive definition of healthy life transitions that emphasizes health equity.
Goals and objectives:
The goal of the proposed project is to produce high-impact research across a diverse research team that corresponds to key areas of need to grow the evidence base to support healthy and equitable life outcomes among transition-age autistic youth and young adults. Goals and objectives:
(1) the production of peer-reviewed publications and National Autism Indicators Reports (2) the development of a new intervention to support Latinx autistic transition-age youth and (3) capacity building for equity impact within (a) Title V programs and (b) minority-serving institutions and community colleges. Proposed activities and target populations:
Proposed activities and target populations:
(1) the use of innovative approaches to data analysis that utilize population-level metrics to understand transition outcomes and pinpoint opportunities for improvement; (2) the development of a new intervention to support Latinx autistic youth to learn essential skills for successful transition to adulthood and healthy life outcomes; (3) capacity building for equity impact that catalyzes engagement of key institutions program infrastructure and policies that are prime opportunities to bolster improved healthy life outcomes among autistic transition-age youth and young adults. Coordination:
Communication across project sites and activities will be scaffolded across four pathways. Engagement with autistic individuals and families to lead input into project goals objectives and activities will occur monthly. Quarterly meetings of all project sites will facilitate reporting of progress and catalyze coordination of efforts across sites to ensure efficiency and productivity. New dissemination channels will maximize the reach of Project products and extend the reach of ATRP impact by strategically aligning output and audiences. Close coordination and collaboration with HRSA to evolve activities in response to funder goals will be proactively sought documented and deployed to shape ATRP activity at all phases. Products:
To maximize impact we will construct products for release across multiple audiences. We propose to produce at least 25 peer-reviewed publications which builds upon our current ATRP success. We also propose to produce at least 7 National Autism Indicators Reports aligned with key topics that have been underexplored and underdeveloped but that are necessary for supporting healthy life outcomes and equity for autistic youth and young adults. Additional products will be catered to dissemination channels including social media conferences partnerships with emerging scholars (including a Pilot Funding program) and web-based content. Evaluation:
A multi-pronged strategy will be used to assess progress toward benchmarks at each stage of project development and execution. Strategic consultation with field-leading experts will be paired with the historical success of the research team in producing deliverables across peer-reviewed publications and National Autism Indicators Reports to generate new innovative project activity and output. We will prioritize research questions in conjunction with advisory feedback and emerging findings to ensure that activities are responsive to the needs reported by and observed across communities.
Carey ME, Tao S, Koffer Miller KH, et al. Association Between Medicaid Waivers and Medicaid Disenrollment Among Autistic Adolescents During the Transition to Adulthood [published correction appears in JAMA Netw Open. 2023 May 1;6(5):e2315445].�JAMA Netw Open. 2023;6(3):e232768. Published 2023 Mar 1. doi:10.1001/jamanetworkopen.2023.2768 DOI:� DOI: 10.1001/jamanetworkopen.2023.2768 March 2023 PMC10011936
Roux AM, Miller KK, Tao S, et al. Unrealized Cross-System Opportunities to Improve Employment and Employment-Related Services Among Autistic Individuals [published online ahead of print, 2023 Aug 1].�Milbank Q. 2023;10.1111/1468-0009.12666. doi:10.1111/1468-0009.12666 DOI:doi:10.1111/1468- August 2023
Roux AM, Voltaire S, Steinberg H, Williams E-D, Anderson KA, Hutson TM, Shea LL. More Than Just a Variable: The Need to Explicitly Focus on Black Youth Within Autism Transitions Research. Autism in Adulthood. Ahead of Print. Published [insert publication date]. doi:10.1089/aut.2023.0041. DOI:doi:10.1089/aut.2023.0041. August 2023
Shea L, Chvasta K, Hotez E. New Data, Persistent Barriers: Transition Plans are Common but Miss the Mark for Many Autistic Youth.�J Adolesc Health. 2023;73(2):217-218. doi:10.1016/j.jadohealth.2023.05.003 DOI:doi:10.1016/j.jadohealth.2023.05.003 July 2023
Song W, Salzer MS, Kaplan K, Wong MY, Uppal D, Shea LL. Short Report on Effectiveness of an Autistic-Delivered Peer Support Program: Preliminary Results [published online ahead of print, 2023 Aug 9].�Community Ment Health J. 2023;10.1007/s10597-023-01174-2. doi:10.1007/s10597-023-01174-2 DOI:doi:10.1007/s10597-023-01174-2 August 2023 �Community Ment Health J.
Anderson KA, Hemmeter J, Wittenburg D, et al. National and state trends in
autistic adult supplemental security income awardees: 2005-2019. J Autism Dev
Disord. 2022;52(8):3547-3559. doi:10.1007/s10803-021-05215-1 2022 34406587
Anderson KA, Hemmeter J, Wittenburg D, et al. National and state trends in
autistic adult supplemental security income awardees: 2005-2019. J Autism Dev
Disord. 2022;52(8):3547-3559. doi:10.1007/s10803-021-05215-1 2022 34406587
March
Rast JE, Fernandes SJ, Schott W, Shea LL. Disparities by Race and Ethnicity in Inpatient Hospitalizations Among Autistic Adults [published online ahead of print, 2023 Feb 9]. J Autism Dev Disord. 2023;10.1007/s10803-023-05911-0. doi:10.1007/s10803-023-05911-0 DOI:doi:10.1007/s10803-023-05911-0 February 2023 J Autism Dev Disord
Rast JE, Fernandes SJ, Schott W, Shea LL. Disparities by Race and Ethnicity in Inpatient Hospitalizations Among Autistic Adults [published online ahead of print, 2023 Feb 9]. J Autism Dev Disord. 2023;10.1007/s10803-023-05911-0. doi:10.1007/s10803-023-05911-0 DOI:doi:10.1007/s10803-023-05911-0 February 2023 J Autism Dev Disord
August
Roux AM, Shea LL, Steinberg H, et al. Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations.�Autism Res. 2023;16(3):480-496. doi:10.1002/aur.2890 DOI: doi:10.1002/aur.2890 December 2022 Autism Res
Roux AM, Shea LL, Steinberg H, et al. Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations.�Autism Res. 2023;16(3):480-496. doi:10.1002/aur.2890 DOI: doi:10.1002/aur.2890 December 2022 Autism Res
August 2023
Roux AM, Shea LL, Steinberg H, et al. Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations.�Autism Res. 2023;16(3):480-496. doi:10.1002/aur.2890 DOI: doi:10.1002/aur.2890 December 2022 Autism Res
August 2023 July 2023
Song W, Salzer MS, Kaplan K, Wong MY, Uppal D, Shea LL. Short Report on Effectiveness of an Autistic-Delivered Peer Support Program: Preliminary Results [published online ahead of print, 2023 Aug 9].�Community Ment Health J. 2023;10.1007/s10597-023-01174-2. doi:10.1007/s10597-023-01174-2 DOI:doi:10.1007/s10597-023-01174-2 August 2023 Community Ment Health J
Anderson KA, Roux AM, Rast JE, Garfield T, Shea L. Low-income households of children with autism and the economic safety net. Acad Pediatr. Published online November 4, 2023. doi:10.1016/j.acap.2023.11.001 DOI: doi:10.1016/j.acap.2023.11.001 November 2023
Hotez E, Hudson S. Expanding on "Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care" to Support BIPOC Autistic Postsecondary Students. J Autism Dev Disord. 2023;53(9):3717-3721. doi:10.1007/s10803-023-06001-x DOI: doi:10.1007/s10803-023-06001-x May 2023 J Autism Dev Disord.
Knauss D. Access, Empowerment, and Independence: Employment for All. Posit Approaches J. 2022;11(3) November 2022 #https://www.myodp.org/mod/book/view.php?id=42011#