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Strategic Research Definitions
- MCH Population - includes all of the Nation's women, infants, children, adolescents, including the transition to adulthood, and their families, including fathers and children with special health care needs (MCHB Strategic Plan: FYs 2003-2007).
- Children with Special Health Care Needs (CSHCN) - those who have, or are at increased risk for, a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.
- Care Coordination Services - those services that promote the effective and efficient organization and utilization of resources to assure access to necessary comprehensive services for children with special health care needs and their families (Title V sec. 501 (b) (3))
- Medical Home - a medical home can be a physician's office, a hospital outpatient clinic, a community health center or school-based clinic, as long as it provides the services that constitute comprehensive care – continuous access to medical care; referral to pediatric medical subspecialties and surgical specialists; and interaction with child care, early childhood education programs and schools to ensure that the special needs of the child and family are addressed (The American Academy of Pediatrics)
- Cultural Competence - a set of behaviors, attitudes, policies, practices and structures that come together in a system, agency or among professionals and enable that system and agency or those professionals to work effectively in cross-cultural situations (National Center for Cultural Competence, 2002)
- Linguistic Competence - the capacity of an organization and its personnel to communicate effectively with persons of limited English proficiency, those with low literacy skills or who are not literate, and individuals with disabilities (National Center for Cultural Competence, 2002)
- Quality of Care - 1) safe-avoiding injuries to patients from the care that is intended to help them; 2) effective-providing services based on scientific knowledge to all who could benefit and refraining from providing services to those not likely to benefit; 3) patient-centered—providing care that is respectful of and responsive to individual preferences, needs and values and ensuring that patient values guide all clinical decisions; 4) timely-reducing waits and sometimes harmful delays for both those who receive and those who give care; 5) efficient-avoiding waste, including waste of equipment, supplies, ideas and energy; and 6) equitable-providing care that does not vary in quality because of personal characteristics such as gender, ethnicity, geographic location, and socioeconomic status (National Committee for Quality Assurance-NCQA)
- Care Plan - a comprehensive care plan combines a medical summary, an emergency care plan, and an action care plan. It provides information that can be shared across providers; a ready reference in an emergency; and an action plan that prioritizes concerns, identifies specific tasks to address concerns, assigns responsibility for tasks, evaluates outcomes, and is done in collaboration with the child/youth and family (Division of Services for Children with Special Health Needs, MCHB, HRSA).